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  1. rvallee

    Shared Individual Formulation Therapy (SIFT): an open-label trial of a new therapy accommodating patient heterogeneity in [FND], 2021, Gutkin et al

    This is basically the "anyway, here's (a remake of) Wonderwall" of cover band musicians. They just keep creating models and "treatments" for those models in an endless loop, all clearly derived from the same idea, all so nearly identical it is essentially the same thing the way a remake of a...
  2. rvallee

    Psychological Stresses in Children Trigger Cytokine- and Kynurenine Metabolite-Mediated Abdominal Pain and Proinflammatory Changes, 2021, Myint et al

    So they put their hypothesis, not the original hypothesis but a subsequent hypothesis, into the title based entirely on speculative musings? What kind of joke of an editing process allows that? Especially as they recognize there isn't even any correlation, not that this should mean anything...
  3. rvallee

    Current forms and checklists for disability

    I think the HowToGetOn blog probably has what I'm looking for. Otherwise I can't find much. Thanks! I had this one in mind vaguely but couldn't remember what I was trying to remember... amnesiaception.
  4. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Saw this earlier and did not notice it was the cover feature. I tried to read it but it's loooooooong and meandering, New Yorker style.
  5. rvallee

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    I often use "or whatever" as a shorthand to the empty narratives they use to justify themselves but this is literally it. Stress... of some sort. Stress... or whatever. They are actually getting lazier with time, this is just very low effort resulting in accidental self-parody.
  6. rvallee

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    A good example of how completely detached from reality they are. Different person but clearly like-minded. This appears to be about a dramatization of some of the horrors of early psychiatric institutions, before they had to be regulated, and the problem of mass misdiagnosis, especially with...
  7. rvallee

    Number of musculoskeletal pain sites leads to increased long-term healthcare contacts and healthcare related costs, 2021, Mose et al

    "Shocking study finds that restaurant-goers are more hungry than the average population, we discuss the groundbreaking implications and how the restaurant industry still has massive growth opportunity if it can figure out who is hungry and how to get them near restaurants at the time their...
  8. rvallee

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    I tried to find what they mean by "patient-centered manner of communication" and it's left to the imagination. I can only assume it means using tortured acronyms. As best as I can tell the author suggests this is patient-centered because the author thinks it is, which makes the point better than...
  9. rvallee

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    I assume so, regardless of whether it is, there is simply no way to tell the difference, so might as well be.
  10. rvallee

    Current forms and checklists for disability

    It's a hope for the best kind of thing. It's not as rigid here as what I heard from the DWP process in the UK. Worse case it would be described as best as possible but I'm sure someone has published something like that somewhere. In other ironies, I programmed so many forms and data entry UIs...
  11. rvallee

    Current forms and checklists for disability

    There is, basically asking for additional information if relevant when the standard questions aren't applicable. It's a bit too small to include all that is relevant, so my GP suggested a form that she had in mind but couldn't remember which one she had used for another patient. I'm just...
  12. rvallee

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    The weirdest thing about this is that generally speaking, visual representation for most diseases does the exact opposite: they try to use normal photos precisely to show that disease doesn't look like anything and that it can happen to anyone. Often normal photos with smiling people will be...
  13. rvallee

    Current forms and checklists for disability

    I'm probably asking for something that already exists in a thread somewhere but can't find what I'm looking for and I can't figure out the terms to search for it. I'm trying to find current/recent forms and checklists for disability. I am in the process of filling out paperwork for some...
  14. rvallee

    BPS attempts at psychologizing Long Covid

    Somehow, she is actually arguing that she didn't write what she actually did just write. Orwell was really way out there in the bushes thinking it would be necessary to rewrite the past, the authors of an op-ed explicitly arguing something can literally deny the very thing they just wrote and...
  15. rvallee

    BPS attempts at psychologizing Long Covid

    Manufacturing consent machine goes brrrrr... Posting tweet because it contains a few screenshots. From the people who brought you, courtesy of Simon Wessely himself: "actually, 9/11-related 'health problems' are just mass hysteria". I'm not sure how the idea of "we are healthier than ever"...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Some weird discussions happening over the latest ONS data and people nitpicking reasons to interpret data one way or another depending on what version of reality they prefer. In unrelated matters, this is what put me off studying politics, found that there was way too much interpretation and...
  17. rvallee

    UK: NICE Longcovid guideline 2020

    Honestly, the "living guideline" thing seems mostly to be about "don't hold us accountable for anything in there, it could change at any moment". Sounds like the perfect excuse to eat their cake and have it too. But since it's all done in secret who the hell knows?
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's just embarrassing that 18+ months into this, medicine is so glued in place that we are still seeing the very same articles as from the very beginning, just more and longer. Still interviewing individual patients and reporting stories of neglect, failure and suffering, with the odd physician...
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