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  1. rvallee

    The Pandemic`s Unresolved Infectious Psycho-Neuro-Immunologies: Myeloid Cells, Vessels, Nasal Cross-Roads, 2021, Treviranus

    Is this the 1,000 monkeys smashing on typing machines I've heard so much about? This definitely ain't Shakespeare.
  2. rvallee

    Updates on status of ICD-11 and changes to other classification and terminology systems

    They just go in unprepared to those discussions? They don't even read a brief, just go in dry and muse about things? No wonder these things take years, they don't have a clue and no one seems able to even care. And the "so much work to be done". It's been 18+ months, on top of at least 5...
  3. rvallee

    The Effectiveness of Actively Induced Medical Rehabilitation in Chronic Inflammatory Bowel Disease (MERCED Study), 2020, Hüppe et al.

    If this is good enough research to warrant a prize, then it would truly be for the greater good to shut all this nonsense down, especially for the people working in this. It's as if the lessons that gave way to the scientific method were a distant long-forgotten dream of some sort, going back...
  4. rvallee

    Personal stories of CBT for ME, blogs videos

    This website is a copy-crawler that just takes stuff from Reddit and re-hosts it. Here's the real discussion thread on Reddit.
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    And on that same article, if there is any doubt that it was meant to be derogatory and promote FUD, despite the obvious insincere attempts at deflection from the author, one of the physicians quoted shared the horrible Devine op-ed in the WSJ as good, and somehow thinks that people who insult...
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is he incompetent or disingenuous? This isn't the kind of job where you can feign stupidity or pass ignorance as an acceptable answer. He's kind of hinting that this is a "no one could have predicted" kind of thing. This is why we can't have nice things. It's perfectly OK to lie about public...
  7. rvallee

    BPS attempts at psychologizing Long Covid

    Mayo Clinic has received a large NIH grant to study Long Covid. Of course this is standard but that's basically the point: the standard is a disaster, this kind of form is completely useless at giving information. I just hope that the strong reactions on social media may influence things a bit...
  8. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It appears that "the new unreliable estimates are lower than worse estimates no one offered" is the official reason for considering Long Covid a non-issue in the UK. This is obviously a nonsensical argument, a false one even, since all the deniers making this point would have scoffed at even the...
  9. rvallee

    Shared Individual Formulation Therapy (SIFT): an open-label trial of a new therapy accommodating patient heterogeneity in [FND], 2021, Gutkin et al

    Really seems like he nailed it at "Spontaneous remission explains B+A vs RCT diffs" and could have stopped there. It really does explain it all, the numbers showing benefits fall far below the known natural remission threshold. It's the exact same process behind why people recover from the flu...
  10. rvallee

    Concerns about Cochrane

    Scale up by scaling down! It's addition by subtraction. We could fit so many sports metaphors in this baby. But yeah this could be scaled up manyfold and barely get off the starting line. Decades of messes to clean up don't happen in a day.
  11. rvallee

    Proposed model of integrated care to improve health outcomes for individuals with multimorbidities (2012) Sampalli et al.

    Same old top-down by physicians for physicians formula. They never bother looking at the problem, only what they can deliver, strictly supply-side thinking. Naïve and superficial, as always when they're only interested in answering their own questions, regardless of whether it's relevant to the...
  12. rvallee

    Chills and feeling cold

    Appears to be pretty common, another one of those things that aren't documented because no one asks. If it's happening and I'm taking a shower it can lead to the weird experience of being both hot and cold at the same thing, which is... interesting. Or alternating between hot and cold, which is...
  13. rvallee

    Concerns about Cochrane

    What are the terms for being nominated? It would seem fairly reasonable to put forward the effort of people pushing back against the churn of low-quality BPS research. It's a joint effort, but obviously you can't reduce research waste better than simply not ever funding research that we know is...
  14. rvallee

    BPS attempts at psychologizing Long Covid

    Neuroscientist who very likely had never heard the term brain fog until last year and would have scoffed at a patient describing it, though with the same answer she offers here, now has a 30-day plan to cure your anxiety and confusion. You can even find out your Hogwart schoolcognitive profile...
  15. rvallee

    News from Germany

    I'm no expert but making the information accurate and relevant seems like a more important priority than making it accessible. Not quite there yet, Cochrane.
  16. rvallee

    Current forms and checklists for disability

    Ah, I don't use Facebook. Mostly for the best but I do miss out on a bit of stuff like that. This is for the DTC so I guess I'm in luck. I'll send you a DM. Thanks!
  17. rvallee

    Shared Individual Formulation Therapy (SIFT): an open-label trial of a new therapy accommodating patient heterogeneity in [FND], 2021, Gutkin et al

    Actually funny that in the BPS article I shared in another thread with an interview with Jo Daniels, CBT 'works' is quoted in the article. They know that it's only valid to say it 'works' as long as you don't define work as meaning the same thing it actually does. They know it can't be argued...
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sure makes all those comments from physicians about they know how to deal with this already and there's not much more to be done sound especially wrong. They literally point to the existing CBT/GET junk as if they've got this dealt with 99% or so. The general message coming from medical...
  19. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It appears to be disappointing, more of the usual waffling that seems to be far more about giving excuses for failing but not too bothered by the failure. 18+ months into this and every last one of those articles could have been written on day 1, no one's learned a damn thing and the old tropes...
  20. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Still by far the most common scenario I see: one day it just got better. Which is the same scenario as with bouts of remissions and relapses: one day it just got better, then another day it came back. But nothing special was done, no special diet or activities. Usually "it came back" is a...
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