Search results

"Functional disorders have completely changed away from Freud, we know so much more about... stuff... and things" Also "Freud said that and he was 100% right..."

A few years ago I asked my GP if we could check for POTS, maybe a referral, and she didn't know (or pretended not to know) what it was. I didn't know about dysautonomia so didn't ask but I'm not sure it would have been any more useful. There is simply nothing available for this because it just...

That's a reflection of how dysfunctional the system is, there is no need to grovel to the few people who aren't 100% wrong. There is no middle ground between reality and delusion, either we stick to reality or nothing matters.

Political leaders pay a lot of attention to the WSJ, at least the news side. Paywalled so putting a screenshot instead. (Actually WSJ is usually paywalled but this one appears to be open access so try it).

Was gonna post that. Sometimes it feels like we've been warning about this for a year and a half and it just fell on deaf ears. It's too unbelievable to accept. After all, the whole thing about Cassandra's curse is that she wouldn't be believed. Sure enough. We called everything in advance and...

There's no reference point for this in medicine, no terms, no concepts, it's been completely ignored and dismissed as vaguely psychological, so they really have nothing to work with. It would be great if they recognized that it's a need, though, instead of whining for years about how it's hard...

Looks like a bunch of the usual dumb stuff still made it, though, at least in the presentations:

You replied in the thread but just for others' sake: discussion of the WHO "post-covid 19 condition" in this thread: https://www.s4me.info/threads/who-a-clinical-case-definition-of-post-covid-19-condition-by-a-delphi-consensus.22688.

It sure reads enough like an ad to ask whether someone paid for it, but we'll never know.

This is odd and disappointing. We know for a fact that playing nice with the ideologues gets us nowhere, this is a terrible decision.

Ah, my bad. I had misread that he had been director for 30 years. I really need to stop relying on my memory... it doesn't serve me well anymore. I still think he could have done more but the erasure did not happen on his watch. His actions brought us back to that point, though I wouldn't...

Looks like The Telegraph is happily publishing BPS nonsense, been a few lately. It seems to poorly attempt to tie it in with ME and Long Covid but frankly I think it's just an ad for Optimum Clinic and the book this guy is selling. I haven't bothered reading it, what little I have seen makes it...

Amazing that post-exertional symptom exacerbation, first proposed in the NICE ME draft guidelines that are rejected by the NHS and the colleges, will have found its way onto NHS clinical care for Long Covid while being aggressively rejected for ME. Just amazing. Although of course the last page...

Thread with some highlights:

See also this thread: International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions) ____________ Today, the World Health Organization has published a consensus definition and guidelines for Long Covid...

People With Long Covid Are Risking Their Health Going Back to the Office https://www.rollingstone.com/culture/culture-features/long-covid-19-office-disability-1237587/ In fact, for more than a century, medical professionals have observed and documented post-viral illnesses — with many...

The Division of Thought Crimes?

I could not a find a single word about how this is a phenomenon that has been known for decades and is known to have already affected millions. Amazing how medicine can build two independent definitions of the same thing and be stuck in pervasive refusal to acknowledge it. Notice at some point...

That's just a slap to the face. The rest of medicine also did nothing, but Collins not only failed to change things, he was NIH director while ME was sabotaged to set the stage for decades of failure. That failure is on him, it was on his watch, and the crumbs he allocated to us don't even make...

Because human nature is the same everywhere, when there is too much discretion in what research can be funded, the process eventually becomes mostly corrupt as friends fund other friends, so it has to be convoluted to the point of essentially being abstracted from reality. This makes it...