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  1. rvallee

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    Yes but not excessively. At least not usually. As long as I keep my temperature in check, though, I can go from cold to blistering hot in seconds but otherwise seem to sweat as usual.
  2. rvallee

    News from France

    Another in Paris. Given the size of Long Covid and how small those protests are, the protests the ME community organized over the years look pretty damn solid all things considered. I wonder if there will ever be a fair and thorough account of everything that was done to change this.
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    ? The debilitating effects of long Covid have just begun to hit economies A study of German footballers revealed they still weren’t fighting fit six months after recovering from infection...
  4. rvallee

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    As long as you don't mind peeing 27 times per day and several times at night. Which I do.
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Although there is no official program in Canada, Cheung is basically the de facto authority on Long Covid.
  6. rvallee

    News from Canada

    Although there is no official program in Canada, Cheung is basically the de facto authority on Long Covid.
  7. rvallee

    British Psychological Society: Development and promotion of valid psychological screening to predict chronicity, post COVID-19 infection, 2021

    https://www.bps.org.uk/sites/www.bps.org.uk/files/Member%20Networks/Divisions/DCP/DCP%20Covid-19%20Bulletin%20-%20October%202021.pdf (Page 3): The BPS has been using a new system for choosing its annual Senate campaign this year. Member networks were invited to submit suggestions on a policy...
  8. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long COVID is ruining lives, but it also presents Australia with an opportunity https://www.abc.net.au/news/2021-10-18/long-covid-presents-opportunity-to-support-chronic-illness-mecfs/100506530 Believe it or not, we've seen this before Post-viral syndromes have always been prevalent but are...
  9. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    The WHO is letting down long Covid patients https://www.theguardian.com/commentisfree/2021/oct/17/who-long-covid-patients The WHO delivered a suboptimal response to Covid-19; they hesitated for weeks before they declared Covid-19 a public health emergency of international concern on 31 January...
  10. rvallee

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    A "first principle" that goes about as long as in a typical Star Trek episode. "Oh noes, we can't possibly intervene in this society", proceeds to intervene a whole lot because, you know, circumstances. Hmm.
  11. rvallee

    "Patient's Charter for ME/CFS/PVFS"

    There's a project under way to critique those, basically has several of the questionnaires and the intent is for patients to rate them. Not sure if he only promoted it or is behind it but Michael VanElzaker tweeted a few weeks ago. It lead to a few angry comments but the whole point is precisely...
  12. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We heard the same from multiple sources. Even with POTS somehow getting minimal recognition, no one seems to understand that just because they were ignorant or dismissive of it doesn't mean there aren't already people working on it. Nope, it just has to be "brand new" because otherwise it's...
  13. rvallee

    Short-term and Long-term Rates of Postacute Sequelae of SARS-CoV-2 Infection, 2021, Groff et al

    Ah but it's mostly patients who have been saying that, "those" patients even, so it doesn't count. But it's still amazing that you can literally predict the future and the experts who missed out on it will be totally indifferent to it, not even consider the idea of asking those people how they...
  14. rvallee

    POTS - definition, diagnosis and symptoms

    And let's be honest here, POTS is clearly whatever physicians used to call "fainting women" back then, just as "neurasthenia" was early description of ME. Descriptions of this likely date back several centuries, it's just that no one was able to see enough patterns. But to call this new is...
  15. rvallee

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    Really hard to do using the instructions because it's too many details to follow side-by-side but with a browser that translates pages it's pretty easy. So if it's too much to follow try it with a browser that has a "Translate this page" option somewhere. I used Chrome.
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Evidence that evidence hardly even matters, because the evidence is there and yet almost no one is reacting to it, they only see what they want to see. What matters is what people do with it. When they do nothing, well, nothing happens, might as well be as if the evidence did not exist. And yet...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's very easy to do, though, so that overrules the "not reasonable" part, I guess. And, in truth, it really is very easy to simply not care and pretend it doesn't exist, there is no mechanism to account for that. There are decades of experience behind that indifference. But the fact that it...
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    "This is so new", names something that's been known literally for decades. WTF is wrong with this entire profession's inability to learn from experience? If it's not in a textbook taught by a teacher and graded with an answer sheet it's like the process of learning is impaired to the point of...
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