Search results

Just looked at Kelland's twitter feed, and saw she was sharing congratulations of Sharpe:

No. So would Shepherd have been instead of Chris Burton or Mike Beadsworth?

No, they never seem interested in naming individuals. Then they'd have to engage in debate about the truth about the individual critics that they try to smear as a vague group.

There are loads of good and informed patients that people will have never heard the names of. I don't know the other lay members on the committee, but that doesn't surprise me. Also, I do think that there's some reason to be careful about the right to privacy of those who did volunteer. The...

Nice one. This SMILE trial stuff burns me up though... reading a summary like this makes me twitch with frustration. I just can't believe how broken British medical research is. A bit of a typo here? Prospectively registered?

The more good expert witnesses the better, but at the end of the day it's the people with power/votes that really matter imo. Those appointed to the committee illustrate the sort of people that NICE think should have power over how we're treated.

Looks like the FINE site is down, but that presentation has been archived here: https://web.archive.org/web/20140811161130/http://www.fine-trial.net/downloads/CFS patient presentation.pdf

Anyone listen to this? Any tough, probing questions?

He's not silent, he's promoting BS: https://forums.phoenixrising.me/index.php?threads/ben-goldacre-checking-if-clinical-trials-reported-what-they-said-they-would.41627/#post-672243

She was referring to the Cochrane IPD review which still has not been released.

I think it's actually the opposite. Price did the 2004 version: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub2/full Larun then joined, and used the 2004 version of the basis/protocol for her review (although she then deviated from that protocol in the manner noted by...

Looks like Larun's PhD thesis was on 'Chronic fatigue syndrome - Knowledge, activity and challenges' https://translate.google.com/translate?hl=en&sl=no&u=http://bora.uib.no/bitstream/handle/1956/5105/Dr.thesis_Lillebeth%2520Larun.pdf%3Fsequence%3D1&prev=search From 2011.

I think that any worthwhile guidelines will need to emphasise the importance of warning patients about the sort of manipulative quackery that Chris Burton is currently promoting and making money from. I doubt that a process which decided Christ Burton should be one of the people with the most...

I think that the Amsterdam Short-Term Memory test is used to see if people are exaggerating memory problems, so this seems quite an odd study to me.

So they've got a podcast on the PACE trial and 'What role should the public play in science?', but this discussion involves just two PACE trial authors attacking their critics? If only there was some organisation that would be able to provide access to a balanced range of independent scientific...

I actually wondered if that 60% "are supporters of PACE" could be a bit strong, as some have not commented on that. 'Connected to the provision of GET might have been better'? - I haven't looked at the details on all these people yet though. Tagging @Eagle ICYI.

What a surprise that it looks like this is all about 'activists insist it's physical' and not at all about the problems with the science. The gross simplification of the 'psychological vs physical' thing is there go to card for smearing people concerned about their work, but it's such a minor...

All the recent signs from NICE I've seen indicate an embrace of waffly holistic biopsychosocial care on the basis of junk-science. This is not a great sign for the ME/CFS guidelines, or for the UK as a society.

I'd read Munafò's replies as polite evasion. He is at Bristol, and I do not see him as remotely on-side or willing to speak out about the way patients have been condemned for pointing out problems with the research from people like Crawley. I think that any worthwhile NICE guidelines will be...

It didn't look like this was instended as 'medical research'. Her twitter page said she was doing some sort of design work. I just googled her name and saw she'd done a sponsored run for MEA: https://www.justgiving.com/fundraising/rhiannonpayne Looks like she was a teenager who fell ill and...