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And also, how anything like 'CBT to help adjust to the condition' in the new NICE guidelines will leave people like Moss-Morris with power over how patients are treated.

"The Improving Access to Psychological Therapies (IAPT) Pathway for People with Long-term Physical Health Conditions and Medically Unexplained Symptoms. Full implementation guidance"...

I just had a look for a facebook profile, and saw that post had only been shared 9 times. I guess that a lot of her concerns will be assessed when there's an attempt to replicate this work with a larger sample. Lots of people have speculated about lots of different things over the years. What...

A delaying tactic could still do us a lot of harm though. edit: I think I misunderstood Coyne's tweet. My expectation is that Cochrane will promote and support Larun's work despite her failure to refute the concerns raised. This will then set-back and delay other efforts.

It would be good to have this confusion cleared up. Hard to know who got the wrong end of the stick.

Some of the responses from medical professionals I saw when these problems were first coming to light were worrying. It's like they were in denial about the problems because they didn't want to acknowledge they were part of a broken system.

I hadn't seen that, and thought it was interesting. A few bits seemed relevant to us. I've been interested by the way that some PACE defenders have tried to use checklists as a way of avoiding critical thinking:

Researching, practising, and debating mental health care Sarb Bajwa Niall Boyce Wendy Burn https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(18)30438-3/fulltext To me this looks like more empty blather from those unwilling to speak out about bad behaviour from their colleagues...

Great news... hopefully that will give them time to cover some of the many problems we've faced. So many things I want to see get raised!!

It was Sharpe who used the 'undeserving sick' quote, and there was an implied criticism of it. I think that they do talk about the need to challenge these prejudices, but then they continue to try to use them to dismiss patients raising concerns about things like PACE. Actions matter more than...

I'm sure he'd think of himself as doing that, ignoring the way that his treatment of ME/CFS patients raising concerns about things like PACE helps to stigmatise MH patients and presents them as undeserving of honest discussion and debate.

Thanks Suzy. I expect that it was very largely your work which let us dodge a bullet here - I'm very grateful. Particularly as now you've retired I don't think we would have been able to organise a response to Dua's proposal being accepted that would have been half as good as one you'd led...

I'm not sure what I think about the NICE process, I think I'm feeling more negative about it than Tuller tbh, but I think that blog does a really good job of summarising lot of the issues surrounding the NICE review to people, and therefore works as something that could help introduce people to...

LOL at a systematic review of the evidence for LP being conducted by... Phil Parker: https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=104336&VersionID=1166431

The abstract made it sound like another study that tries to confuse association and causation where their data didn't really support their narrative, but I stopped reading before getting to their results... too many infuriating unfounded claims to read before bed in just the intro. Funded by MS...

edit: sorry - just noticed Inox posted this article already. Ingrid Helland has also said how excited she was about the SMILE results showing LP was effective (presumably she didn't notice that for the primary outcome specified at the start of the trial there was no difference between groups)...

Would be good to get some PACE relevant stuff raised.

Thanks so much to David for keeping pushing with this. It's so infuriating. Just to remind people of the BMJ's deceptive presentation of this issue to COPE: https://publicationethics.org/case/service-evaluation-research-controversial-area-medicine

This is from a year ago. The panel was changed after protest.

Thanks @Michiel Tack - I feel like I've been struggling to find the time to read anything recently, but this is definitely book-marked for when I have a chance.