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That doesn't sound like news to me. They've always said that entry into PACE required that patients fulfil Oxford criteria, but that then that they also looked at results for a sub-group who also fulfilled (their version on) the London crtieria for ME. There was this quote from Sharpe in 2011...

I suspect not... but who knows?

They're just guided by their trustees. They're currently asking for applications from ME patients to replace some of their trustees: https://www.s4me.info/threads/action-for-me-looking-for-new-trustees-with-m-e.3817/#post-67828

The mention is only short, but I thought it might still be of interest. It's not an ideal summary imo, but still good to have more mentions of the PACE scandal around the place...

*bump* while things are slow over the weekend. Go S4ME geniuses, go!

I'd previously drawn attention to this section in a book from Jonh Bancroft, a researcher who'd promoted aversion therapy for 'deviant' sexuality. There are aspects of the mentality which remind me of certain biopsychosocial CFS researchers, and it mentions working with Gelder and Marks (Marks...

So QMUL were meant to be providing oversight for the research, but they don't know how much it cost or who paid for it?

It's the trustees that have the power, and they're currently looking for new ones, so it would be good to get people who are as well informed as possible in there, even if it might involve some frustrating meetings. https://www.actionforme.org.uk/about-us/working-and-volunteering-for-us/ "As...

From the job description:

Sounds like good news. Congratulations to all who worked to draw attention to this problem.

That the WHO classification of ME causes White and insurance companies problems by making it harder to turn down patients claims is the key things that they've done. From White's presentation to Swiss Re (now deleted from their website): I can see how Action for ME could be manipulated into...

Whenever I re-read the 'unscientific and personal attacks' stuff it makes my blood boil. Shameful stuff from Lloyd, Van der Meer and the journal. So unfair you'd have to even consider that. It just shows how effectively we've been stigmatised. IMO so long as what's been posted is completely...