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I remember talking to Tom Kindlon way back before the PACE results came out, and it gradually dawning upon me that this £5 million trial was designed in such a way that it would be very unlikely to produce results that would change anyone's minds about the efficacy of CBT/GET. It turned out the...

Might be good to get some informed comments in there.

Reckon I'll just keep my fingers crossed on that one tbh.

This could be an OT topic for the thread, but I normally want to stand up for the continued use of 'evil' as a term. I think that it can be applied to people who just fail to take their responsibilities seriously, ignore injustices, etc, rather than just those cackling at the horrors they've...

The promotion of quacky 'cures' and expensive speculative treatments also takes away a lot of money that could have gone to research projects. Emotionally it's understandable that people would prefer to spend their money like that, but it's another reason that it is valuable to have people...

There does seem to be a pattern of things like that. I wrote a response to Wessely's 'personal story', which included this bit on one of his autonomic papers that he now proudly presents as an example of his commitment to research on the biological underpinnings of ME/CFS:

Will be interesting to know the specifics of this, given some of Wellcome's questionable history and their continued funding of the SMC: • Mental health is currently being explored as a potential new priority area from the reserve fund.

Absolutely. It would be really useful to get more information on this.

No worries - I think I may have been unfair in bouncing my own thoughts off your comment. It was just that your comment prompted me to post some things I'd been thinking about over the last couple of day. I probably should have just posted without quoting your post - sorry.

I'm surprised we're still getting research like this. Interesting that the abstract made so many of the limitations clear, but then their conclusion still tried to make it sound exciting. John McBeth is the Deputy Director of the Arthritis Research UK Centre for Epidemiology. That's not a great...

I appreciate that point of view, and recognise that I don't have a personal family connection to the Holocaust in the way that many do and might affect my emotional reaction to things, but I think that there can be value in comparing problems in contemporary politics to those found under the...

On the other hand, it could be the PAG resignations that helped lead to the CMRC changing direction? Having a large chunk of a group show that they'd rather walk away than be part of what is currently happening can be a powerful way of sending a message. Also, while only using the remnants of...

I'm certainly not trying to downplay the serious cultural problems PACe has fed into, or the justified fear and anxiety many patients/parents now feel in their interactions with British medical professionals, I'm just saying that this is the sort of thing where it's difficult to present clear...

Fine to talk about anything, but if planning to make it a central part of an argument about PACE, I'd want some strong evidence to cite. I haven't watched the speech - I tend not to use audio/video stuff much.

Also sometimes there will be good reason why research on children in emergency situations is needed. I'm just doubtful work from Crawley should be used to guide the ethics of this.

It's harder to get evidence for rarer events like that, and it's normally best to focus on the concerns with stronger supporting evidence. Also, I don't know how 'directly' the PACE results are involved in some of that - anyone know of a child custody case that cited PACE to justify removal of a...

It's concerning if the PAG is now just made up of the remnants of the initial group, with many having resigned due to the problems with what was happening, and I think that may now be the case (sorry if I've got that wrong). Did @Russell Fleming say he was a member, but then resigned?

I sometimes suspect Jameson is a crafty double-agent, out to make CBT/GET promoters look bad, but other times he's clearly too into it. He does so many of the things I dislike about the worst patient 'advocates', but it seems more unpleasant when it's been done in defence of authority figures...

Whenever patients make mistakes in their criticisms of the PACE trial, I can look at these twitter accounts to cheer myself back up again.

Some positive signs, but I'd prefer an open acknowledgement that they'd got things wrong previously. slide 6: "Despite some changes to the Medical Charities over the 5 years, with some merging, others leaving and new ones joining, the CMRC remains strong." Hmmm... not that strong? The last 5...