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Right, it's like "we managed to waste seven years of your lives with crappy papers, legal appeals and misrepresentations, so now you should just leave us alone. We won at the time, and there's no going back now."

Wishing you loads of luck!

I'd be surprised if we could find anyone who coined the phrase. Seems like one of those things that's been floating around for ages. Pretty funny that Jameson's site is the one that shows up as having used it first though.

Oh oh.

Thanks for letting us know. Best wishes with it.

In 2005 Sharpe had this (slightly one-sided) exchange with a patient, and the patient spoke of 'false illness beliefs'. I'm sure I've seen may others use the term too. http://fumblings.com/weblog/archives/2005/11/a_response_to_m.html I don't think I've seen that PACE researchers use it...

Sharpe is making me feel bad for thinking Chalder was the weak link amongst the PACE PIs. I had wondered why she was the one who replaced White to testify at the Information Tribunal. Now I know.

Here's that tweet on the 'OPTIMISTIC' group: I wonder if they had a prespecified criteria for clinical significance for their DM1-ActivC outcome? They mention finding improvement for an objective measure of physical activity in the commentary excerpt. Quite a big increase in the number of...

I have to admit to feeling a sense of dread going through this, but it didn't seem too bad. I feel some sympathy to the authors if they were new to a topic where no-one agrees about anything, and it seems that they responded to the uncertainty by saying as little as possible about ME/CFS or how...

Oh wow - just realised I am amazing at keeping notes on things (even if they are now an inaccessible mess). It was this White peer review report for 'Chronic fatigue syndrome after Giardia enteritis: clinical characteristics, disability and long-term sickness absence'...

Yes, I noticed that, but thought that including the address for when it was there might help anyone who wanted to try and track it down. I've not been able to find where it has been moved to though, and can't remember what paper it was a peer review report for.

Could be worth contacting Maxwhd on twitter if you have an account - looks like he put it on youtube: https://twitter.com/maxwhd/with_replies

I thought that was similar to how he usually phrased it, and I always wondered if it was to provide ambiguity over exactly what work he was paid for (I thought there was a COI declaration somewhere where he explicitly said he had been paid for his DWP work) eg this from Lancet PACE 2011: "PDW...

Tylee is setting that up as a problem that wise Chalder can help them avoid though, rather than promoting it as the right approach in the training video. It's followed by: There are so many annoying bits in those videos. To me, that really indicates that it would be best to 'bang on' about...

You could always just copy/paste and then format it however you think would suit you best.

As a fellow thief of good ideas I can't claim a jot of credit. Depressingly, I think that the problem of bias when using self-report symptom questionnaires to measure the efficacy of a treatment like CBT for CFS was pointed out in a letter responding to the publication of one of the very first...

Just so people know, there's a thread on this here: https://www.s4me.info/threads/solve-me-cfs-initiative-webinar-crossroad-of-the-immune-response-and-the-microbiome-impact-on-me-cfs-with-derya-unutmaz-thurs-28th-june-2018.4411/

I feel that even if someone comes across as ethical, competent and caring, if the information that they're providing to patients is based on pseudo-science, then they're not really competent, ethical and caring. It's a sad reflection of the state of mainstream medical care for CFS that some...

LOL. I assume that is what's being requested, eg my emphasis: "Subsequently, in February of 2016, many of us signed an open letter to The Lancet requesting an independent investigation of the study." This sentence could make that less clear, but I can't imagine anyone at the Lancet would...