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  1. Esther12

    Sheffield ME and FM conference 18 Oct, David Tuller: Sheffield - 23/24 Oct 2018

    Thanks - the vid had stopped when I went to look, so I'd assumed I'd missed it. Hope it's all going well. Thanks to all involved.
  2. Esther12

    Cochrane ME/CFS GET review temporarily withdrawn

    A bit OT: Have psychologists been better than psychiatrists at speaking out about the problems around PACE? It seems like they really have, but I've no idea why this would be. I don't know the details, but had heard that psychologists were meant to have been better than psychiatrists in...
  3. Esther12

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    [Not about this specific case, I don't know the person involved at all]. I sometimes worry that the progress we've made recently has led to some people wanting to be a noisy voice attracting attention with their outrage, even if they do so in a way that makes advocacy efforts more difficult...
  4. Esther12

    Cochrane ME/CFS GET review temporarily withdrawn

    I missed it to - in the 'Version history' section of the page there are links to the previous versions.
  5. Esther12

    Cochrane ME/CFS GET review temporarily withdrawn

    Ta. Could you let me know how you found them? It might be hand at some point.
  6. Esther12

    Cochrane ME/CFS GET review temporarily withdrawn

    Do you mean the FINE data: -2.12 [ -4.49, 0.25 ] ? If so that's still there on page 65 of the pdf, in Analysis 1.2 I was just about to try to work out what was going on with Larun's response about that. I'm sure I was told that old Cochrane reviews (post 2014?) are still available, but I...
  7. Esther12

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Jen wasn't saying she thinks ME/CFS is a mental health condition, but: "Psychosomatic medicine has tried to dismiss the valid criticisms of the patients it harms by accusing us of being anti-science @columbiamed @columbiapsych #ScienceNotStigma Or of being constitutionally incapable of...
  8. Esther12

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Looks like Shelby completely missed the point. I think Shelby's tweet is far more likely to harm advocacy efforts than Jen's!
  9. Esther12

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Has anyone ever actually got access to documents showing specifically what Per Fink did in relation to Karina? I never like speaking about individual's cases as it can be so difficult to work out what it true.
  10. Esther12

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME - Crawley et al

    I am worried that Crawley (and others like her) are training up PhD students to do cargo-cult science that lets them get a career but contributes nothing to society.
  11. Esther12

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    Few things more interesting than the workings of the Science Media Centre.
  12. Esther12

    Nick Brown looks at study on sexual harassment and 'CFS'

    Slightly OT general questions for @sTeamTraen - I expect the answers will be along the lines of 'there's no easy answer.' How do you decide what to do now with studies like these? Their results seem implausible in a couple of ways but the researchers are resistant to independent scrutiny of...
  13. Esther12

    Bruce Levin to speak at Columbia: "How NOT To Conduct A Randomized Clinical Trial"

    I'm sure I saw someone here link to the video of this talk, but now I can't find it, so thought I'd risk re-posting: @Three Chord Monty : You could edit a link to vid and slides into the first post, just for new readers, if that would be okay? Slides here...
  14. Esther12

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME - Crawley et al

    I just got re-annoyed about this study, but that's possibly because I'm sleep deprived. Is it just me, or does it look as if they just wanted to do a science-looking experiment, rather than get more useful information by just asking kids what they thought should be the MCID? As they note...
  15. Esther12

    Cochrane ME/CFS GET review temporarily withdrawn

    Gerada is an interesting one. The she and Wessely rose so high within UK medicine has to reflect real problems with the whole system.
  16. Esther12

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME - Crawley et al

    NOTE: I'm unusually sleep deprived, so this may be nonsense. "Ethics approval and consent to participate Qualitative data: Full ethical approval was obtained from the NRES Committee North West (08/04/2014, ref 14/NW/0170). An amendment to use one-to-one interviews with children, parents and...
  17. Esther12

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    edit: This comes across as a needlessly moody post! Sorry @Robert 1973 - thanks for posting about this upcoming annoying thing. Really?! You think that this is an otherwise great programme? I guess I've only listened to the shows with people doing harmful stuff and ignoring problems in the...
  18. Esther12

    Nick Brown looks at study on sexual harassment and 'CFS'

    One of the points of the blog was that is was only sexual harassment, not sexual abuse:
  19. Esther12

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    No-one's arguing for turning a blind eye or doing nothing. Aren't there a pattern of abnormalities in Parkinson's that can be identified via autopsy? We don't have the equivalent. Also, even the term 'psychosomatic' can be complicated, with different people using it in different ways. For some...
  20. Esther12

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Because their claims have been more thoroughly debunked than Fink's. We're a long way from the point where the consensus on people like Fink is that they're no more respectable than homeopaths. To make progress most effectively we need to recognise where we are at the moment. To me, it seems...
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