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  1. Mij

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Merged thread Ron Davis’s ME/CFS Moment: The “Core Technology Disrupter” Gets a Win https://www.healthrising.org/blog/2022/06/09/ron-davis-mecfs-moment-core-technology-disrupter/
  2. Mij

    News from Canada

    Who knew? Thursday is National Long COVID Awareness Day, organized by researchers with the Public Health Agency of Canada to shine a light on the need for better research, and better treatment...
  3. Mij

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    I hope this doesn't involve taking 'natural' blood thinners (bromelain, nattokinase et), unmonitored, and assuming it's safe. Proper testing might not be available and some pwME will experiment on their own. I took bromelain as a potential anticoagulant twenty years ago when...
  4. Mij

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    I had a SED, Fibrinogen, Thrombin Antithrombin Complexes, Soluble Fibrin Monomer, CD62, CD62+ADP, Platelet Activation Index, Prothrombin Fragment 1+2 and Antithrombin Activity test done in 2001 and they all came back normal.
  5. Mij

    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Prof Mark Hallett, MD et al

    Summary Functional neurological disorder is common in neurological practice. A new approach to the positive diagnosis of this disorder focuses on recognisable patterns of genuinely experienced symptoms and signs that show variability within the same task and between different tasks over time...
  6. Mij

    Yoga is effective in treating symptoms of Gulf War illness: A randomized clinical trial Hayley,Younger et al 2021

    Thank god for the BPS. I try to stay away from Yoga Centres because of the high concentration of Tai Chi masters and yoga teachers, they have it in for me. If I had a dime for every time I walked by a pair of Lulu lemons, Sweaty Betties...I'd have Boba for life
  7. Mij

    Morning Exercise Reduces Abdominal Fat and BP in Women; Evening Exercise Increases Muscular Performance in Women and Lowers BP in Men, 2022

    Full Title, Morning Exercise Reduces Abdominal Fat and Blood Pressure in Women; Evening Exercise Increases Muscular Performance in Women and Lowers Blood Pressure in Men, 2022, Paul J Arciero et al Well this is really good to know since I go power walking in the evenings. Don't want my BP...
  8. Mij

    Covid-19 vaccination experiences

    B.C man to receive compensation for vaccine injury one of the first in Canada. The B.C. man was diagnosed with Guillain-Barré Syndrome (GBS), which left him partially paralyzed, after a first dose of the Oxford, AstraZeneca COVID-19 vaccine in April 2021...
  9. Mij

    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    I don't think they take cognitive decline into consideration which may not even be noticeable until years later.
  10. Mij

    Prior beetroot juice ingestion offsets endothelial dysfunction following prolonged sitting, 2022, Takuma Morishima et al

    For the record, I drank tons of beetroot juice when I was juicing in the 90s. I'm still 'here'. Abstract Nutritional strategies to prevent endothelial dysfunction following prolonged sitting remain largely unknown. Given that beetroot juice (BRJ) ingestion enhances nitric oxide (NO)...
  11. Mij

    Implantable neurostimulators for neurogenic orthostatic hypotension: the wave of the future? ... updates on ... autonomic research, 2022, Miglis et al

    Full title: Implantable neurostimulators for neurogenic orthostatic hypotension: the wave of the future? and Other updates on recent autonomic research, 2022, Mitchell G. Miglis et al Multiple system atrophy (MSA) is the most aggressive neurodegenerative disease of alpha-synuclein deposition...
  12. Mij

    Post-Concussive Orthostatic Tachycardia is Distinct from POTS in Children and Adolescents, 2022, Rachel Pearson MD et al

    Abstract Background: Orthostatic tachycardia (OT) affects some patients after concussion/mild traumatic brain injury (mTBI). In this study, we sought to identify the factors associated with increased risk for OT in patients with mTBI. Methods: We conducted a retrospective review of 268...
  13. Mij

    What is the evidence base for non-infectious precipitating factors?

    Dr.Byron Hyde Non-Infectious M.E. Type Disease: I have not discussed noninfectious M.E.-type disease. Similar M.E phenomena can occur due to CNS injuries from toxic chemical injury. I have seen this in police officers who have fallen into toxic chemical ponds in pursuit of those suspected of...
  14. Mij

    USA: Dr Eric Gordon

    Dr. Eric Gordon relishing on 'long haul syndrome' and trying to connect the dots based on pseudo science. Highlights include: Preferred tests and labs Why you shouldn’t settle for a “wastebasket diagnosis” The role of underlying imbalances in your immune system Supporting Long Covid "one of...
  15. Mij

    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    I'm not sure 'damage' is the right term? I'm referring to PEM, it might be reversible, at least that's what I'm hoping.
  16. Mij

    Nanoneedle technology licensed for early disease detection, biomarker discovery, and more

    NonoMosaic Unveils a Method to Enable Proteomics by Combining Aptamers and Antibodies on it's MosaicNeedle Platform at 2022 AACR "Enabling both aptamers and antibodies as the affinity probes and demonstrating high performance with both reagents on the Tessie™ instrument paves the way to...
  17. Mij

    EBV lab test

    My WBC was sky high when EBV and HHV6 reactivated in 2001 from taking immune modulators. My symptoms were quite different from all the other viruses or immune responses that I've experienced in the past 31 years. It's difficult to know what is occurring based on our symptoms. My immune...
  18. Mij

    Pre-Illness Data reveals Differences in Multiple Metabolites and Metabolic Pathways in Those Who Do and Do Not Recover from IM, 2022, Jason et al

    My point was that severity wasn't considered a criteria. Some of his pts were in wheelchairs and he did not give them an M.E dx. History, onset, remitting-relapsing episodes was the reason I was dx with M.E, even if he suspected that I would recover in 5 years.
  19. Mij

    EBV lab test

    I recovered from the initial virus that triggered M.E, don't know what I had b/c I wasn't tested for any that I'm aware of. The triggering/reactivating of viruses and allergens started becoming an issue around the 13 year mark, and now I have 'something' brewing every few months, spring...
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