The research project Tjenesten og MEg consists of two independent research organisation collaborating on investigating ME patients meeting with the health care service in Norway. One of them, SINTEF, has already written three very thorough reports on the lack of care for ME patients.
The...
Very much in line with the book The Secret that says what you send out in the universe is what you will receive. It got translated into 50 languages and 30 million copies have been sold world wide.
In Norway there's an idiom warning against saying something negative, because trolls can make it...
The article is paywalled, so don't know if ME is mentioned. Got a bit worried when the title mentions singing..
The Telegraph: The hunt for a long Covid cure - from vaccines to antihistamines and singing
My apologies if this has been shared on other threads. The article is a few days old and the first part is about Long Covid and the illness in children. But towards the end Paul Garner appears.
Manchester Evening News The kids who have had Covid for a years and the war against a sickness...
As part of the conference, a video interview has been made with paediatric neurologist professor Kristian Sommerfelt, PHD candidate Ingrid G. Rekeland and professor Øystein Fluge. The interview is made by journalist and TV documentarist Paal Schaathun...
This is what the Journal of the Swedish Medical Association says in their review of the book:
The author shows that cheating is not a unique exception but rather a phenomenon that can be found in many, perhaps most, academic environments. Survey studies of researchers and doctoral students...
Kjell Asplund, MD and professor emeritus at Department of Public Health and Clinical Medicine
has published the book Fuskarna - (My translation of title: The cheaters. On Macchiarini and other's betrayal of science)
It's about several research misconducts, both in Sweden and internationally. He...
Opinion piece by a journalist in the Norwegian financial newspaper Dagens Næringsliv titled: "Will Long-covid become the next fashion diagnosis? The fuzz can be making more people sick, experts claim"
It's paywalled, but here's a google translated quote:
A heated debate is taking place in the...
This was a nice article in the journal of the Norwegian Nurses Organisation.
It's about an out-patient clinic for HIV and ME in a hospital in Kristiansand, Norway, where the patients themselves are part of the decision making concerning how things are run.
Sykepleien: Pasienter med hiv og ME...
Brian Hughes shares an article he wrote in 2019 about the HRA report on the PACE trial. Useful with this reminder of the details, as it was mentioned in Sharpe's Guardian letter today.
The Science Bit: The HRA report does not exonerate the PACE trial, it merely confirms that its Research Ethics...
Inside Sources: Psychiatrist Would Abandon Research on Long COVID and Chronic Fatigue Syndrome by Llewellyn King
- The knowledge that the National Institutes of Health will be spending $1.15 billion on Long COVID was music to the ears of people who suffer from Myalgic Encephalomyelitis, also...
Response from Sharpe in the Guardian:
- George Monbiot has written about post Covid-19 illnesses (Apparently just by talking about it, I’m super-spreading long Covid, 14 April). He referred to slides he had obtained from a talk I was invited to give because of my clinical expertise in this...
Trial by Error by David Tuller: The World According to Sharpe
Quote:
Poor Professor Michael Sharpe. The distinguished psychiatrist from Oxford University has a dilemma. His science sucks big-time, and he can’t defend it effectively with standard argumentation. He does not seem to grasp why...
Duration is 2 hours and 18 minutes. Not sure I'll be able to watch the whole thing, but CFS is mentioned already 8 minutes in by Eliane Maxwell - Clinical Adviser at the National Institute for Health Research
ETA: At 50 minutes the Italian researcher Simone Benatt goes through a study he did...
Science How scientists are teasing apart the biology of Long COVID
M.S.: I find in talking to patients, they’re afraid to exercise because they think they have heart damage or lung damage. I tell them that we’re doing a lot of testing. If we don’t find any evidence of serious damage in the...
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