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I get the impression that his understanding of the nature of ME is minimal. During the hearing today when he talked about ME, he said patients could be almost bedbound for months. There was also a CDC doctor, whose name I've forgotten, who seemed to believe ME is mainly about fatigue. PEM was...

This is happening now:

A local newspaper has two articles today about what happened. If I have understood it correctly, ME has been removed from functional disorders formally, but not in practice. The diagnostic code now is DG933A, which is according to WHO. But there seems to be a misunderstanding here from both the...

Tweet from @Caroline Struthers : After complaint to @C0PE @cochranecollab have now posted the note stating their review https://cochrane.org/CD001027/DEPRESSN_cognitive-behaviour-therapy-chronic-fatigue-syndrome… **should not be used** on the plain language summary page - hurrah! Interesting...

Prof. Pariante has shared a link on Twitter. Research director dr. Signe Flottorp from the Norwegian Institute of Public Health liked it. There's a comment from dr. Nisreen Alwan: Thank you. This is an interesting article but in my opinion misses the point that it's not the patients who're...

The Guardian: Long Covid is very far from 'all in the mind' - but psychology can still help us treat it by Carmine M Pariante - Carmine M Pariante is professor of biological psychiatry at King’s College London and editor of the blog platform Inspire the Mind Quote: This point is particularly...

Los Angeles Times 'Long haul' COVID-19 sufferers take a page from AIDS/HIV activism to be heard Quotes: Today, the Body Politic COVID-19 Support Group has registered 10,500 COVID-19 patients and their caregivers and families, who have started an independent research group and advised the...

A few days ago Emmanuel Macron tweeted about Long Covid Google translated: Not everything is known about these persistent signs and symptoms of “long COVID”. And yet, a part of our fellow citizens already live with it. Research is underway and our health system is adapting. We need to learn...

Fully agree! And great timing as well. 2 years ago the Danish Parliament ruled unanimously that Denmark must follow WHO's classification of ME as a neurological disease. This week there was a hearing where the Danish minister of Health had to answer for why absolutely nothing has happened since...

Yes, the content was same old, same old - but the timing for this round was interesting as the planned Lightning Process study has received a lot of criticism from pesky patients and a decision is taking place these days on whether or not Wyller and co can go ahead with it. Great to see that...

This was an impressive amount of information given in four minutes

ohh, there's a podcast as well! :) Podcast: Coda Currents Title: When pseudoscience infiltrates healthcare and nutrition Description: There's a lot of bad science surrounding a syndrome called ME/CFS, or what is sometimes known as chronic fatigue. We talk with David Tuller, a journalist who has...

I haven't bothered watching this, but it's on brain training (the Gupta programme) as treatment for Long Covid and in the end there's a doctor endorsing it. ETA: Gee, even Paul Garner's positive thinking is recommended during the last minute. What's happening??

Article from Nina E. Steinkopf about collaboration between psychiatry and the insurance industry - and how a Danish insurance company has allocated enormous amounts of money in order to establish the term "functional disorders". I knew it was bad, but not this bad :-( Nina E. Steinkopf: ME...

New Statesman "Long Covid" has spurred a big research effort, which promises to do more than help sufferers by Phil Whitaker quotes: The other group of illnesses are the “functional” conditions. In these, blood tests, scans and biopsies all appear normal; no objective cause for the patient’s...

Title: Pathophysiology of acute and post-viral neurologic complications of COVID-19 Description: Avindra Nath, MD, MBBS, FAAN, National Institute of Neurological Disorders and Stroke, Bethesda, MA, discusses the acute and post-viral neurologic complications of SARS-CoV-2 infection and the...

There were two other videos made from this interview. These were on Long Covid and didn't mention ME, but were interesting nevertheless. Title: Does Covid-19 enter the brain via the nose? Description: Literature on the neurologic complications of SARS-CoV-2 infection continues to emerge as...

It mentions ME towards the end: With a research agenda in place, moreover, patients infected with other viruses may stand to benefit. The coronaviruses that caused MERS and SARS, as well as the influenza virus and other viral pathogens, have all been implicated with longer-term sequelae. “A...

I forgot the link, but have added it now. Thanks, @Trish !

Quote: In past decades, much research into ME/CFS treatment was devoted to psychological and behavioral interventions. More recently, these studies and their reported findings have been widely criticized as deeply flawed. A 2015 report from the U.S. Institute of Medicine (now the National...