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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    CTV News Canada: Some COVID-19 long-haulers are developing a 'devastating' syndrome quote: “I’ve heard people say, ‘long COVID isn’t ME/CFS.’ Well, they don't understand what ME/CFS is, right? The case definition of ME/CFS describes the clinical presentation. And if people with long COVID meet...
  2. Kalliope

    Blog: The Science Bit by Brian Hughes

    Time to flatten the curve of shoddy COVID scholarship (Article also touches upon NICE, Guardian articles, Garner) quote: A global pandemic should challenge us to apply rigorous thinking to help solve the world’s problems. It should not be seen as a sexy topic that can be commandeered into your...
  3. Kalliope

    Critical article from Finland about Gupta and LP as treatments for ME and Long Covid. Prof. Bergquist interviewed

    This was a great article from the national broadcaster in Finland, Yle (their Swedish department). Svenska Yle: "Det är inget annat än hjärntvätt" - HUS förespråkar kontroversiell vård till patienter, också postcovidpatienter har hänvisats till samma klinik google translation: "It is nothing...
  4. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    At least dr. Fors seems happy about the study, so that's nice. Here's a google translated tweet from today about the study where he tags the university (NTNU) where the planned Lightning Process study will take place as well as the Ministry of Health and Care Services and the Norwegian...
  5. Kalliope

    BPS attempts at psychologizing Long Covid

    ah, I see, thanks for letting me know. Yes, you are probably right, then. I think those of us with foreign IP address can access five articles pr. week, so probably it was just me having reached the limit..
  6. Kalliope

    BPS attempts at psychologizing Long Covid

    The Guardian: 'It's terrifying': parent's struggle to get help for children with long Covid - Lack of research into area means children are being sent away from A&E and parents told they are overanxious (article is paywalled)
  7. Kalliope

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Seems only the Abstract synopsis is available. Can't find it on Sci-Hub yet.
  8. Kalliope

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Journal of Orthopaedic & Sports Physical Therapy Editorial Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Simon Décary, PT, PhD et al Abstract Synopsis The term long COVID was coined by patients to describe the...
  9. Kalliope

    NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome

    I spotted the article via a Tweet from Dysautonomia International, who says this is NIH's first news story on POTS.
  10. Kalliope

    NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome

    Quotes: As a person living with POTS, Goff wants to see researchers focus more on why POTS happens. “I feel like current treatments aren’t really getting to the root problem, and I also worry about the effects of taking steroids long term,” Goff said. “I’d like to see possibly better treatments...
  11. Kalliope

    Well known, famous people reported to have Lyme Disease.

    .. and Henrik Vogt just received the Norwegian Medical Association (GP's) annual writer's award for that opinion piece.. (source) Here's a google translation of the jury's justification: HENRIK VOGT The winner of the writer's award for 2020 has for several years been responsible for a number...
  12. Kalliope

    Can vaccines cure ME/CFS or Long Covid?

    Uplifting to see this twitter thread from prof. Akiko Iwasaki on them launching research into understanding how vaccination may help improve Long Covid, particularly the last tweet where she says: Ultimately, our hope is to learn about the underlying disease pathogenesis, sex differences in...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There's a transcript of the podcasts. After a quick skim it seems that it's only in the podcast with dr. Avindra Nath that ME is mentioned. He also talked among other things about exercise intolerance in Long Covid. Here's link to podcast episode and transcript. Quote: And I've talked to a lot...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The journalist Vivien Marx has tweeted a thread about the article, including links to three podcasts that she made with those interviewed in the article (haven't heard them myself yet)
  15. Kalliope

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    :party::party::party::balloons::balloons::balloons:100% :party::party::party::balloons::balloons::balloons:
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Science Media Centre New Zealand Long COVID in New Zealand - Expert Q&A Interviews dr. Anna Brooks, cellular immunologist and Emeritus professor Warren Tate, biochemist, molecular biologist and ME/CFS expert. Quote: “In my longstanding (more than 30 years’) experience with ME/CFS, while New...
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