I think this was the first time it was used. In an opinion piece by Lightning Process coach Live Landmark from 2017 titled "Norway has an ME epidemic".
https://www.aftenposten.no/meninger/debatt/i/0R0WM/norge-har-en-me-epidemi-live-landmark
Google translated quote:
The harmful attitude of a...
That's actually not off topic at all for a forum about ME. The psychosomatic approach can connect it all for us.
Have you read this blog in the medical newspaper Dagens Medisin from 2018?
Kjønnsdysfori - den nye ME?
google translation Gender dysphoria - the new ME?
Quotes:
A persistent search...
I wonder how history will judge the ethics of doctors warning against even talking about Long Covid, as they believe awareness of Long Covid is causing it. Very little is said about it in public in this country, and that seems to be leading to potentially harmful situations.
In the newspaper VG...
Der Tagesspiegel 100.000 Erkrankte mehr aufgrund von Covid-19
google translation: 100,000 more sick people due to Covid-19
Quotes:
The thermometer shows thirty degrees on Tuesday afternoon in Berlin. According to the RKI, 3,533,376 people in Germany have been proven to have been infected with...
First author of this study, Asgeir Lande, will next week be defending his thesis "Human leukocyte antigen associations in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and immune modulating treatment".
The defence is digital and public.
More information...
Henrik Vogt gave a summary of the article in a post on his Facebook page together with some reflections. Here's a google translated excerpt:
I have received inquiries from Swedish doctors who are a little despairing that people at the new clinics established in Sweden are told to avoid...
CBC Alberta physiotherapists inundated with long-haul COVID patients
The article doesn't mention ME, but has a 9 minute audio interview where ME is mentioned by Jessica DeMars, a respiratory physiotherapist. She also talks about Stop-Rest-Pace as an approach to Long Covid. She appears very up...
Thanks for these links! The article is behind paywall for me, but do you know if it's the same ward they are writing about which the Swedish newspaper Aftonbladet today reports will be shut down?
https://www.aftonbladet.se/nyheter/a/Qm13k8/la-ner-covid-mottagning--med-en-smiley
Tweets from FraudListing:
Today we got this mail: “My daughter showed me your page about Lightning Process today and we both cried. She was 14 when she tried the Lightning Process. She got ME/CFS from mono. We were desperate. She cried and said “But it doesn’t feel right” when we drove home...
Sissel Sunde has organised a MillionsMissing digital awareness campaign with 90 participants!
It is a heart breaking read with all the names, photos and stories about how long people have been ill for and what is their hope.
All the small and big things people are missing out from...
I have to admit I've done the same mistake I'm accusing Vogt for; assuming my own experience is universal.
When I got sick I was certain to soon bounce back as that was my experience from all previous infections. The fluctuating symptoms made it easier to fool myself. Every time I had a good...
I wonder if it's even simpler. That Vogt perhaps believes the way he experiences symptoms is the universal way to experience them. Here from an interview in the Journal for the Norwegian Medical Association in 2018 where he among other talked about how devastating if was for him to get tinnitus...
Henrik Vogt has participated in a "pandemic panel" together with two philosophers in a radio programme about ethics. He talks about Long Covid.
Apparently doctors talking about Long Covid is a driving mechanism of Long Covid.
Here's link to the programme: Verdibørsen
Here's a google...
Ronald W. Davis, PhD presents at OMF's 2021 Open House
Description:
Dr. Ronald Davis is Chair of OMF’s Scientific Advisory Board, and the Director of the ME/CFS Collaborative Research Center at Stanford University. Dr. Davis is a professor of Biochemistry and Genetics at Stanford University...
Dr. Geraghty comments on Twitter:
I said I would share this paper for someone, some novel ideas about how to think about ME-CFS in this, not sure about everything here - one doesnt normally think of ME-CFS and ICU, interesting to have others looking at ME-CFS from different perspectives
Frontiers in Medicine - Infectious Diseases - Surveillance, Prevention and Treatment
Theory: Treatments for Prolonged ICU Patients May Provide New Therapeutic Avenues for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
by Dominic Stanculescu, Lars Larsson and Jonas Bergquist
We...
NeurologyToday For COVID-19 'Long-Haulers,' Neurologists Focus on Acute Symptoms
The Search Is on for Causes of Long-Term Events
Very confusing article and it seems neurologists are steering straight towards FND for Long Covid patients. Good thing Avindra Nath was among those interviewed, the...
The Norwegian ME Association invites to a webinar with prof. Karl Johan Tronstad from the University in Bergen May 12th at 13.00.
Prof. Tronstad is part the ME research team in Bergen with Fluge/Mella. He will be talking about research into energy metabolism, and how it can contribute to more...
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