Trial by Error by David Tuller:
UK Docs Speak Up on Long-Covid; Mayo Shifts Gears (a Little)
the Mayo Clinic changes are discussed on this thread
https://www.s4me.info/threads/david-tuller-trial-by-error-mayo-clinics-crappy-website.12783/page-2
Trial by Error by David Tuller:
UK Docs Speak Up on Long-Covid; Mayo Shifts Gears (a Little)
the U.K. Doctors with Long Covid letter is discussed on this thread
https://www.s4me.info/threads/bmj-letter-from-longcovid-doctors.16887/#post-288620
ETA: It worries me a bit that Preben Aavitsland, epidemiologist and management and Staff for Infection Control and Environmental Health at Norwegian Institute of Public Health liked this tweet. He's a main expert in media during the pandemic.
ETA: He retweeted himself and added
The Patient is In - A Podcast by StuffThatWorks
Stories showcasing what's possible when people are empowered to advocate for their own health, or the health of their loved ones.
Hosted by Dina Kraft & produced by Skyler Inman
September 7 2020 - Episode 11
For 15 years Joe Landson lived with a...
I received the full article on PM. Thank you!!
Her chronic fatigue syndrome got mentioned a couple of times in the article:
Only months after the publication of her debut, Clarke became ill with what was eventually diagnosed as chronic fatigue syndrome. “I was doing a lot of travelling and...
Her debut, Jonathan Strange & Mr Norrell, sold 4m copies - 16 years on, Clarke has written a second novel. She talks about chronic fatigue syndrome
https://www.theguardian.com/books/2020/sep/12/susanna-clarke-i-was-cut-off-from-the-world-bound-in-one-place-by-illness
Would love to read some...
"Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits.
"You’re constantly...
Trial by Error by David Tuller: Some Stuff about Long-Covid, BMJ and ME
It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two...
Could that expert you listened to possibly be the other professor who made the chart of long covid symptoms; prof. Jens Lundgren?
I read an interview in the journal for the Danish Medical Association with his daughter, who is a doctor and struggling with symptoms following Covid, including...
The Danish Broadcasting Corporation DR has an article about long covid today. Expert interviewed in the article is Lars Østergaard, professor in infectious diseases at Aarhus University. He talks about people not being able to perform at work. Many patients having problems with concentration and...
The journal for Norwegian physiotherapists (Fysioterapeuten) has an article that recommends as much activity as possible for Covid-19 patients. Their source is the British The Chartered Society of Physiotherapy (CSP). The article says the amount of activity might vary from person to person and...
The reference is to p. 20 in the NHS document Aftercare needs of inpatients recovering from COVID-19 (2. version) where it is stated:
Although some people who have had COVID-19 may experience post-viral fatigue, there does not appear to be an association with post-viral fatigue and diagnosis of...
LBC (Leading Britain's Conversation)
'Long covid' sufferers tell of battling debilitating symptoms that last for months
For Prof Garner, who regularly writes for the British Medical Journal on the topic, he compared his "extremely similar" symptoms with that of chronic fatigue syndrome...
MedicalNewsToday: 'Ill, abandoned, unable to access help:' Living with long COVID
“I think we, as medical professionals, need to be better at saying ‘I don’t know what’s wrong, but I’m willing to go and read up more about this’ […] You know, we’ve all been faced in the past with patients with...
The Guardian: Coronavirus: 60,000 may have 'long Covid' for more than three months - UK study
Tim Spector, a professor of genetic epidemiology at King’s College London who runs the app-based Covid symptom study, said around 300,000 people had reported symptoms lasting for more than a month.
A...
The Age: Long-term effects of virus shine a light on chronic fatigue sufferers
Opinion piece by Sue Green
It would be utterly perverse to say I’m glad COVID-19 leaves some sufferers with long-term symptoms, including crippling fatigue. I wouldn’t wish that on anyone. But as one who has coped...
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