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  1. Kalliope

    BMJ letter from LongCovid doctors.

    Trial by Error by David Tuller: UK Docs Speak Up on Long-Covid; Mayo Shifts Gears (a Little) the Mayo Clinic changes are discussed on this thread https://www.s4me.info/threads/david-tuller-trial-by-error-mayo-clinics-crappy-website.12783/page-2
  2. Kalliope

    USA - Mayo clinic

    Trial by Error by David Tuller: UK Docs Speak Up on Long-Covid; Mayo Shifts Gears (a Little) the U.K. Doctors with Long Covid letter is discussed on this thread https://www.s4me.info/threads/bmj-letter-from-longcovid-doctors.16887/#post-288620
  3. Kalliope

    BPS attempts at psychologizing Long Covid

    ETA: It worries me a bit that Preben Aavitsland, epidemiologist and management and Staff for Infection Control and Environmental Health at Norwegian Institute of Public Health liked this tweet. He's a main expert in media during the pandemic. ETA: He retweeted himself and added
  4. Kalliope

    Podcast: "The Stigma of Chronic Fatigue" - The Patient is In

    The Patient is In - A Podcast by StuffThatWorks Stories showcasing what's possible when people are empowered to advocate for their own health, or the health of their loved ones. Hosted by Dina Kraft & produced by Skyler Inman September 7 2020 - Episode 11 For 15 years Joe Landson lived with a...
  5. Kalliope

    UK writer with ME Susanna Clarke - press articles

    I received the full article on PM. Thank you!! Her chronic fatigue syndrome got mentioned a couple of times in the article: Only months after the publication of her debut, Clarke became ill with what was eventually diagnosed as chronic fatigue syndrome. “I was doing a lot of travelling and...
  6. Kalliope

    UK writer with ME Susanna Clarke - press articles

    Her debut, Jonathan Strange & Mr Norrell, sold 4m copies - 16 years on, Clarke has written a second novel. She talks about chronic fatigue syndrome https://www.theguardian.com/books/2020/sep/12/susanna-clarke-i-was-cut-off-from-the-world-bound-in-one-place-by-illness Would love to read some...
  7. Kalliope

    RSVP Live - "Dublin mum shares warning signs of ME in children after daughter's diagnosis aged just 7"

    "Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Trial by Error by David Tuller: Some Stuff about Long-Covid, BMJ and ME It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two...
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thank you for the quote, @Rick Sanchez This wading in cognitive dissonance is fascinating to observe..
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Could that expert you listened to possibly be the other professor who made the chart of long covid symptoms; prof. Jens Lundgren? I read an interview in the journal for the Danish Medical Association with his daughter, who is a doctor and struggling with symptoms following Covid, including...
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Danish Broadcasting Corporation DR has an article about long covid today. Expert interviewed in the article is Lars Østergaard, professor in infectious diseases at Aarhus University. He talks about people not being able to perform at work. Many patients having problems with concentration and...
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The journal for Norwegian physiotherapists (Fysioterapeuten) has an article that recommends as much activity as possible for Covid-19 patients. Their source is the British The Chartered Society of Physiotherapy (CSP). The article says the amount of activity might vary from person to person and...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The reference is to p. 20 in the NHS document Aftercare needs of inpatients recovering from COVID-19 (2. version) where it is stated: Although some people who have had COVID-19 may experience post-viral fatigue, there does not appear to be an association with post-viral fatigue and diagnosis of...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    LBC (Leading Britain's Conversation) 'Long covid' sufferers tell of battling debilitating symptoms that last for months For Prof Garner, who regularly writes for the British Medical Journal on the topic, he compared his "extremely similar" symptoms with that of chronic fatigue syndrome...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    MedicalNewsToday: 'Ill, abandoned, unable to access help:' Living with long COVID “I think we, as medical professionals, need to be better at saying ‘I don’t know what’s wrong, but I’m willing to go and read up more about this’ […] You know, we’ve all been faced in the past with patients with...
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Guardian: Coronavirus: 60,000 may have 'long Covid' for more than three months - UK study Tim Spector, a professor of genetic epidemiology at King’s College London who runs the app-based Covid symptom study, said around 300,000 people had reported symptoms lasting for more than a month. A...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Age: Long-term effects of virus shine a light on chronic fatigue sufferers Opinion piece by Sue Green It would be utterly perverse to say I’m glad COVID-19 leaves some sufferers with long-term symptoms, including crippling fatigue. I wouldn’t wish that on anyone. But as one who has coped...
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