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Medium: At What Point Does medical Gaslighting and Patient Blame Become Negligence and Malpractice? COVID-19 Long Haulers Quote Their Providers By Karyn Bishof Quote: The experiences we have faced with the unknowns, medical gaslighting, medical neglect and malpractice, patient blaming, and...

It's the Swedish Minister for Social Security tweeting about the recent news that the government assigns the Social Insurance Agency and the National Board of Health and Welfare to secure support for patients suffering from among other Long Covid and ME. The news was shared by @mango in this...

Opinion piece for CNN: Doctor: My long-Covid patients' stories of recovery sound familiar to me by Susannah Hills (beware, there's a picture of Paul Garner there, but he's not quoted) Quote: Many suffering with long-Covid symptoms will also remain silent. We have learned about the power of...

oh cool - they have separated the part with Leonard Jason and ME to this 8 minutes segment which is also in written version. Quote: The pandemic and its sudden onslaught of long-haulers unable to smell, or out of breath for months on end, may force a change. They’ve ignited renewed investment...

A weekly, Norwegian newspaper - Morgenbladet - has an article about Long Covid where among others Wyller is interviewed. The article is paywalled, but here are some google translated quotes, and it seems he gets a bit resistance from another researcher (Langeland): Wyller is one of the...

The research team has written an article about this study for the Kavli Trust who has supported them financially over several years. The article is aimed at lay people. For now it's only in Norwegian version, but the Kavli Trust often translates articles into English, so let's hope they'll do...

Medscape: COVID-19 'Long-Haul' Symptoms Overlap With ME/CFS by Miriam Tucker - People experiencing long-term symptoms following acute COVID-19 infection are increasingly meeting criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a phenomenon that highlights the need for...

Prof. Vincent Racaniello has shared it on Twitter

There was an article yesterday in The Atlantic also titled: Long-Haulers Are Pushing the Limits of COVID-19 Vaccines. Haven't been able to read it yet, but the author, Katherine J. Wu, PhD, wrote the following summary of the article on twitter. (Tweet nr. 5 really worries me)

Sounds like great attendance!

The BMJ opinion: The stigma is real for people living with long Covid by Marija Pantelic and Nisreen Alwan Quotes: Testimonies from people living with long covid illustrate profound stigmatisation. Many of them have been disbelieved and their ill health was not recognised for months. Stigma...

Depressing editorial in the journal for the Norwegian Medical Association. LP-coach Live Landmark used to be a regular contributor to this journal, and I wonder if the editorial might be part of an ongoing campaign to secure the planned LP-study. The text is both in Norwegian and English...

Tweet from Amy Small sharing Anil van der Zee's tweet on this study: - It's not that I never believed in ME/CFS it's just that I didn't have the empathy for it that I do now. I'll hold my hands up & say that I get it now and l'm so sorry I didn't then. #MedTwitter read this. If you can't...

Just saw on twitter that the German politician Karl Lauterbach warns about opening up society and mentions ME/CFS as one of the reasons for being careful. According to wikipedia he's a professor of health economics and epidemiology and is a Member of the Bundestag. Here are the tweets google...

WSJ Opinion: The Dubious Origins of Long Covid by Jeremy Devine (paywalled) - Echoes of chronic fatigue in the effort to blame to coronavirus for a host of questionable symptoms ... - The topic deserves serious study. Some patients, particularly older ones with co-morbidities, do experience...

Full paper: https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/full

Her reply: Hesitate to give a date now. What date is the new NICE guideline release? ETA: People have answered it's on 21. April, upon which she replied: Thanks! Updating some things is taking longer than I expected, but we're getting there: shouldn't take anything like that long.

Haven't read the article yet, but very convenient if there's something in the rumours about a GET trial for Long Covid. Noticed this reaction on twitter ETA: I've read it now. Even though it doesn't seem he's promoting GET as progressive exercise despite deterioration, it's pretty annoying...

The journal JOSPT has accepted Simon Décary and his team's paper. He shares the title of the publication in the following tweet. The title is: Humility and Acceptance: Working Within Our Limits with Long COVID and ME/CFS

I wonder if "exercise" was ment to be "infection" in the following sentence from the article? - Onset is often after exercise, and the first indications can be flu-like.