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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Haven't read the article yet, but very convenient if there's something in the rumours about a GET trial for Long Covid. Noticed this reaction on twitter ETA: I've read it now. Even though it doesn't seem he's promoting GET as progressive exercise despite deterioration, it's pretty annoying...
  2. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The journal JOSPT has accepted Simon Décary and his team's paper. He shares the title of the publication in the following tweet. The title is: Humility and Acceptance: Working Within Our Limits with Long COVID and ME/CFS
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I wonder if "exercise" was ment to be "infection" in the following sentence from the article? - Onset is often after exercise, and the first indications can be flu-like.
  4. Kalliope

    News from Scandinavia

    Biology professor Kristian Gundersen has been active again in the ME debate since the latest article with Wyller accusing ME patients to scare researchers from the field. Gundersen recently shared the Reuters article and received a reply from Sten Helmfrid. Then the Canadian Long Covid...
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Inside Sources: Long COVID Has a Baffling Sister: ME/CFS by Llewellyn King quote: Long COVID is the condition wherein people continue to experience symptoms for longer than usual after initially contracting COVID-19. Those symptoms are similar to the ones of another long-haul disease, Myalgic...
  6. Kalliope

    News from Scandinavia

    Apparently in Norway academics do. He repeated that tonight in this tweet. (Translation by me): "Criticism and factual debate is for granted, but also the freedom our researchers have to themselves choose their issues, their methods and to freely publish their research. An increasing number of...
  7. Kalliope

    BPS attempts at psychologizing Long Covid

    Trial by Error by David Tuller Biopsychosocial Brigades Seek Traction with Long Covid Quote: - The biopsychosocial brigadiers have been losing the argument over ME/CFS, given the questionable body of research they have produced and continue to cite. The NICE draft demonstrated that the tide...
  8. Kalliope

    News from Scandinavia

    oh, what a pity to see. I don't think it's a reasonable demand for institutions to support their researchers no matter what. I'd say in contrary. Somewhere in the institutions there surely must be someone responsible for some kind of quality control? It didn't go well when Karolinska ignored...
  9. Kalliope

    BPS attempts at psychologizing Long Covid

    Here's an article from a Norwegian news site about research where researchers and the journalist seem to conflate Long Covid with PTSD, depression and anxiety. Etter korona-pandemien kan vi få en bølge av psykisk sykdom google translation After the corona pandemic, we may have a wave of mental...
  10. Kalliope

    News from Scandinavia

    Just adding that among the authors are Signe Flottorp from the Norwegian Institute of Public Health and Helene Helgeland - paediatric psychiatrist and leader of the national competence center for complex psychosomatic conditions in children and adolescence at Oslo University Hospital.
  11. Kalliope

    Articles by David F Marks

    New article: ME/CFS and CBT - a basic error Quote: In facing the mountain of invalidation that the Wessely School is having to endure, it has made the most basic error for any scientist: converting an inconclusive association into a conclusion of causation.
  12. Kalliope

    News from Scandinavia

    But sadly he liked this tweet from prof. Gundersen sharing the article with the following comment (my translation): This ought to be a "case" in the discussion about academic freedom. Being a researcher should not be a popularity contest. And it is the institution's damn duty to protect the...
  13. Kalliope

    Articles by David F Marks

    New article: ME/CFS and the SMILE trial quote: Implications The SMILE trial contained one of the major methodological problems that occurred in the PACE trial – outcome swapping. The original outcome measure, school attendance at six months, yielded a null result. Repeating the errors of the...
  14. Kalliope

    News from Scandinavia

    It worries me that the Research Ethics committees has shared the article on Facebook. Does this imply they support the LP trial despite the criticism it has received? I've noticed they've also shared another Khrono article from yesterday interviewing researcher Arnstein Mykletun, senior...
  15. Kalliope

    News from Scandinavia

    I wonder if actually someone else than ME patients might have asked some critical questions concerning LP and the planned study, and that this is the reason behind the article? Wyller wants his institution to stand up for him. His appeal might indicate that they're not.
  16. Kalliope

    News from Scandinavia

    Great timing for a hit piece same week as the National Committee for Medical and Health Research Ethics will be having the complaints concerning the planned study on Lightning Process on their agenda. I'm sick to my stomach after having read the article and the way he describes patients. This...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Time - A Year Into the Pandemic, Long COVID Is Still Burdening Patients - and Their Caregivers quote: - One of the leading theories in the field is that some patients have an abnormal immune or inflammatory response, such that the immune system revs into overdrive, attacking the body in the...
  18. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It follows the script to the standard Recovery Norge anecdote. That they were afraid of symptoms, afraid of triggering PEM. I don't know whether it really happened that way or if they've been told so.
  19. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Quote from the interview: - The Cochrane review of exercise treatment for chronic fatigue is very well done and it was useful to me later in the illness, although early on when I was still feverish I needed to rest. ETA: - It’s not been an easy journey and I’ve had the most horrendous...
  20. Kalliope

    The Puzzle Solver by Tracie White

    CNN A Stanford scientist's quest to cure his son could help unravel the mystery of Covid-19 long haulers by Ryan Prior Quote: - We did a study on severely ill patients that we're still working on, and one idea we got from the study is that severe patients are likely to have what's wrong with...
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