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  1. Kalliope

    BPS attempts at psychologizing Long Covid

    Let me know if anyone wants the whole article google translated and sent as a private message.
  2. Kalliope

    BPS attempts at psychologizing Long Covid

    New article in Morgenbladet - this time an interview with Paul Garner. Also this is paywalled, but here are two google translated quotes: Recovery Norway is an organization that shares stories about people who, with the help of cognitive and mental techniques, have recovered from medically...
  3. Kalliope

    Blog: The Science Bit by Brian Hughes

    The Science Bit: Off the PACE and not NICE Quote: Here is a video of a lecture I gave in Belfast just before COVID, entitled “Off the PACE and not NICE: Challenges with Evidence in ME/CFS.” The lecture was part of a conference organised by Hope 4 ME & Fibro NI(kudos to Joan McParland and team)...
  4. Kalliope

    BPS attempts at psychologizing Long Covid

    Medium: At What Point Does medical Gaslighting and Patient Blame Become Negligence and Malpractice? COVID-19 Long Haulers Quote Their Providers By Karyn Bishof Quote: The experiences we have faced with the unknowns, medical gaslighting, medical neglect and malpractice, patient blaming, and...
  5. Kalliope

    News from Scandinavia

    It's the Swedish Minister for Social Security tweeting about the recent news that the government assigns the Social Insurance Agency and the National Board of Health and Welfare to secure support for patients suffering from among other Long Covid and ME. The news was shared by @mango in this...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece for CNN: Doctor: My long-Covid patients' stories of recovery sound familiar to me by Susannah Hills (beware, there's a picture of Paul Garner there, but he's not quoted) Quote: Many suffering with long-Covid symptoms will also remain silent. We have learned about the power of...
  7. Kalliope

    USA radio: NPR/WHYY Episode: The Aftermath of Viruses

    oh cool - they have separated the part with Leonard Jason and ME to this 8 minutes segment which is also in written version. Quote: The pandemic and its sudden onslaught of long-haulers unable to smell, or out of breath for months on end, may force a change. They’ve ignited renewed investment...
  8. Kalliope

    BPS attempts at psychologizing Long Covid

    A weekly, Norwegian newspaper - Morgenbladet - has an article about Long Covid where among others Wyller is interviewed. The article is paywalled, but here are some google translated quotes, and it seems he gets a bit resistance from another researcher (Langeland): Wyller is one of the...
  9. Kalliope

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    The research team has written an article about this study for the Kavli Trust who has supported them financially over several years. The article is aimed at lay people. For now it's only in Norwegian version, but the Kavli Trust often translates articles into English, so let's hope they'll do...
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Medscape: COVID-19 'Long-Haul' Symptoms Overlap With ME/CFS by Miriam Tucker - People experiencing long-term symptoms following acute COVID-19 infection are increasingly meeting criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a phenomenon that highlights the need for...
  11. Kalliope

    BPS attempts at psychologizing Long Covid

    Prof. Vincent Racaniello has shared it on Twitter
  12. Kalliope

    Can vaccines cure ME/CFS or Long Covid?

    There was an article yesterday in The Atlantic also titled: Long-Haulers Are Pushing the Limits of COVID-19 Vaccines. Haven't been able to read it yet, but the author, Katherine J. Wu, PhD, wrote the following summary of the article on twitter. (Tweet nr. 5 really worries me)
  13. Kalliope

    USA: News from #MEAction

    Sounds like great attendance!
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The BMJ opinion: The stigma is real for people living with long Covid by Marija Pantelic and Nisreen Alwan Quotes: Testimonies from people living with long covid illustrate profound stigmatisation. Many of them have been disbelieved and their ill health was not recognised for months. Stigma...
  15. Kalliope

    News from Scandinavia

    Depressing editorial in the journal for the Norwegian Medical Association. LP-coach Live Landmark used to be a regular contributor to this journal, and I wonder if the editorial might be part of an ongoing campaign to secure the planned LP-study. The text is both in Norwegian and English...
  16. Kalliope

    'Reluctant pioneer': A qualitative study of doctors' experiences as patients with long COVID, 2021, Taylor, Chew-Graham et al

    Tweet from Amy Small sharing Anil van der Zee's tweet on this study: - It's not that I never believed in ME/CFS it's just that I didn't have the empathy for it that I do now. I'll hold my hands up & say that I get it now and l'm so sorry I didn't then. #MedTwitter read this. If you can't...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Just saw on twitter that the German politician Karl Lauterbach warns about opening up society and mentions ME/CFS as one of the reasons for being careful. According to wikipedia he's a professor of health economics and epidemiology and is a Member of the Bundestag. Here are the tweets google...
  18. Kalliope

    BPS attempts at psychologizing Long Covid

    WSJ Opinion: The Dubious Origins of Long Covid by Jeremy Devine (paywalled) - Echoes of chronic fatigue in the effort to blame to coronavirus for a host of questionable symptoms ... - The topic deserves serious study. Some patients, particularly older ones with co-morbidities, do experience...
  19. Kalliope

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Full paper: https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/full
  20. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Her reply: Hesitate to give a date now. What date is the new NICE guideline release? ETA: People have answered it's on 21. April, upon which she replied: Thanks! Updating some things is taking longer than I expected, but we're getting there: shouldn't take anything like that long.
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