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Trial by Error by David Tuller: The World According to Sharpe Quote: Poor Professor Michael Sharpe. The distinguished psychiatrist from Oxford University has a dilemma. His science sucks big-time, and he can’t defend it effectively with standard argumentation. He does not seem to grasp why...

Duration is 2 hours and 18 minutes. Not sure I'll be able to watch the whole thing, but CFS is mentioned already 8 minutes in by Eliane Maxwell - Clinical Adviser at the National Institute for Health Research ETA: At 50 minutes the Italian researcher Simone Benatt goes through a study he did...

Science How scientists are teasing apart the biology of Long COVID M.S.: I find in talking to patients, they’re afraid to exercise because they think they have heart damage or lung damage. I tell them that we’re doing a lot of testing. If we don’t find any evidence of serious damage in the...

Full transcript is now available here These are the parts there Koroshetz mentioned ME: WALTER KOROSHETZ: I’d say that from our point of view, I think one thing that David said is really important that I’m trying to develop treatments that will help people. This is the time to do it. I think...

Noticed today this twitter account trying to push Meldonium in threads concerning CFS. Is that even legal? https://twitter.com/MeldoniumS

VOX Scientists haven't figured out long Covid. Here are 5 of their best hypothesis Quotes: Most people who get the coronavirus will fully recover and go right back to their lives. But the latest research suggests that at least 10 percent have long-term symptoms, even after their body has...

Try clicking on the "CC" down to the right on the video?

They've added subtitles in English! :):):)

This might turn into a column in the Guardian

:heart: A Life Hidden - Emily at 40: In Celebration and Sorrow Quote: In the week when Emily would have turned 40, we remember her with love, admiration and grief. A vibrant spirit trapped within a body crippled by suffering, and badly let down by the very system that should have protected...

This is how she's titled in the journal: Adjunct Full Professor in Philosophy, University of Maryland Global Campus ETA: This is her twitter bio. Not sure what's the best way to title her.. Diane O'Leary is a philosopher and bioethicist, currently a Visiting Fellow at the Center for Philosophy...

There are now 5 responses to this editorial. One in English by professor Diane O'Leary: A balanced view of animosity between researchers and the public The rest are in Norwegian. One by an ME patient, two from the Norwegian ME Association, and the newest from professor emeritus Ola D...

I believe the prejudice against ME is so deep that speaking up against colleagues after coming down with it yourself will take a lot of courage and receive a lot of backlash. So extra kudos to dr. Muirhead and other doctors with ME as dr. Shepherd for their advocacy work. To be honest, I do...

Description: In this episode, Dr. Nina Muirhead, an Oxford-educated dermatologic surgeon and an ME patient, talks frankly with Llewellyn King about the diagnosis hole she fell into in Britain, how she coped with her deteriorated health, her wrenching private life (having to stay away from her...

Science Friday What Does The Future Look Like For COVID-19 Long-Haulers? Interview with Walter Koroshetz from NIH and David Putrino from Mount Sinai. Duration 37 minutes. Koroshetz mentions ME/CFS a couple of times. That Long Covid is an opportunity to learn more about ME as well. As far as I...

Time has shared the article on social media. They have 12 million followers on FB and 8 million followers on Twitter, so do give a thumbs up and retweet those who can :-)

Robert Saunders: Thanks. Can you clarify, are you referring to a progress report or the new review of exercise therapy for ME/CFS? If it’s the former, what is holding it up? This was billed as a “pilot project for engaging stakeholders (such as consumers...)”. As a consumer I feel let down...

Her answer: I'm sorry - I know it's inordinately slow: certainly didn't expect it to be. Not going to pre-empt the report, I'm sorry.