Search results

Yeah I guess it's just been taken a little to excess, the blood-brain barrier is definitely significant but it seems to have been taken as license to consider it basically the equivalent of "air-gapped" with physical system security.

As models go, this isn't even worse than the traditional psychosocial view. It's just as much nonsense and assumptions they can't be bothered to falsify but easily could.

That would be no it can't, no it can't, and no it's not. What an odd thing to write. Although what a perfect example what pragmatic evidence-based trials have become completely useless to the point where none can be trusted as reliable. Not a single one. Anything can be found to do, cause or...

Something I've been meaning to work out for a while. For any theoretical model explaining the mechanisms of ME/CFS, there are necessary conditions that must be met, without which a model simply cannot account for the data. What are those? Especially with a purpose to falsify flawed models and...

Today, the CAN-PCC Collaborative published its first two recommendations, both conditional (i.e. optional): The CAN-PCC Collaborative suggests masking for asymptomatic adults in community settings be used for the prevention of COVID-19 infection to prevent post COVID-19 condition (conditional...

They seem incapable of considering the far likelier explanation: that this effort allocation is a biological mechanism based on the body's ability to function. So with that in mind, it wouldn't be making a choice, conscious or not, rather it's limited by a constraint. From that perspective...

They basically excluded many of the most typical symptoms, so not a great study by any means: Not known to them, I guess. It's so hard to, like, read and pay attention to stuff. Like, who has time to read the first studies that came out and established the very concept, when you're busy doing...

Maybe I'm misremembering, but I think that the 2007 guideline actually mentioned an upcoming trial that would prove it correct, likely referencing PACE. It was really all set up together, with the main piece of evidence happening in the future, so that piece of evidence could not fail, hence...

Also since FINE was mentioned, a timely reminder that this is the trial that (IIRC) had a primary objective outcome that was swapped for a subjective one, and where the published paper had the famous quote about how "the bastards just don't want to get better". It was a terrible offensive trial...

Aside from the absurdity of arguing that criticism of the trial happened after they found out what was in the trial... And only loosely related, but this is something I keep seeing lately and although Garner didn't use those words, he kind of said the same thing. When it comes to bad trials of...

Some negative responses on twitter to this announcement, some of it is legitimate, but this isn't like psychosomatic ideologues, I think it's better to involve people with significant influence than it is to shoo them away.

Geez that's high on the WTF!? index. Fear of retirement? Is there any imaginary fear they can't exploit? They've pretty much nearly covered all the types that can be imagined at this point. Especially when you consider that retirement is often the thing most soldiers look forward too. Not all...

Also interesting that it usually comes from people who never have trouble finding a platform to speak from, about things that have always been a dominant force in society, awash in resources and institutional support. What they want is simply for people harmed by their actions and behaviors to...

I was under the impression that, maybe not with such high precision, this was already known. I guess what's significant is finding where and how? Or something like that. Or maybe the significance of vagus neurons in this process. Although I'm annoyed by the odd body-brain framing, last I...

I didn't dig into it much, but at first glance it's actually not clueless. But seeing Jon Stone and how utterly bizarre it is that in response to this whole concept being discriminatory, their solution is to create yet another questionnaire to assess that discrimination, on some bases that are...

Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for healthcare professionals (PSSS-HCP) Brodie McGhie-Fraser, Caoimhe McLoughlin, Peter Lucassen, Aranka Ballering, Sandra van Dulmen, Evelien Brouwers, Jon Stone, Tim olde...

France, but also bits of Luxemburg. Basically an app to track symptoms, looks kind of similar to Visible. It seems to have been built to work with health care, but haven't looked into how well, in association with France's biggest Long Covid community, Après J20 (after day 20).

Criticism between academics is basically the norm. This isn't kindergarten, spit will fly and tempers will flare, this is all normal. In fact finding weirdly positive collegiality is basically a sign that things are, let's go with fucky. I think that what they're not used to is laypeople giving...

Don't know which way he meant it, but I'd say that I fully agree with the more reasonable interpretation that we need better advocates within the medical profession and the academic community. We need more of them, and better ones. Which Long Covid has given us, but not nearly enough to overturn...

That is really impossible to accept. By definition a healthy volunteer cannot have POTS. POTS is rather rare, it's actually hard to find people with POTS, although mostly because of systemic opposition to its existence, but also because of how ridiculously unlikely it is that someone with POTS...