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  1. rvallee

    Fluctuation of functional somatic disorders in a population-based cohort. The DanFunD study 2024 Schovsbo, Fink et al

    They're actually using the fact that they don't know a damn thing and made this all up to argue that they should be doing more of that. Which they recognize plainly in the abstract, but it has never stopped them from making very specific claims for decades, none of which have any actual...
  2. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Technically we got, what, one actual update? Before the 'hiatus', when we heard a few things about people who got nominated, but then we never heard anything about them other than trying to add another member. Everything else was just using more words than necessary to say things could happen in...
  3. rvallee

    What needs to change to ensure better care for people with ME/CFS with feeding difficulties?

    I don't know how much weight this would have on most people, but one of the things this has revealed is that there is in fact no such requirement. Being required to do something, then facing zero consequences for failing to do it, by definition means that it is not, in fact, required. Unless...
  4. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    A historical record of the complete intransigence they show even when backed up in an argumentative corner. We know it won't matter soon, but later on when this becomes litigated, and it will, it will show the massive failure of those institutions and how all of this was a completely fabricated...
  5. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    As much as we want medicine to be guided by science and evidence, and it should be, we still live in a world in which facts aren't quite true until authorities acknowledge them and the professionals under their rule not only accept them but use them as is in their decision process. At least...
  6. rvallee

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Not sure this is a journalist, anyway this is based on her own certainty that this is why she recovered. More like one of the enthusiasts who got better naturally and decided that they held the answer. I saw her promoting this on Xitter some days ago and tagging basically the legion of...
  7. rvallee

    The Concept of ME/CFS

    A common description of severe states is that it feels like the entire nervous system is on fire, and that the whole body is poisoned, leading to a kind of shock paralysis. I have experienced this state once, and that was enough to have it seared into my memory, and it is apt. This looks far...
  8. rvallee

    The Concept of ME/CFS

    Which is really the main problem in every illness that medicine doesn't understand: what to do while we have this lack of knowledge about how to tell illnesses apart based on observed pathophysiology? Of course when it comes to treatments, drugs and such, this is critical, but we don't have that...
  9. rvallee

    The Concept of ME/CFS

    That analogy works, but backwards. We keep touching the stove. Again and again and again, no matter how many times we get burned. Even through increasingly severe burns that take longer to heal, we look longingly at the stove for the next time we get to touch it. Many times we touch the stove...
  10. rvallee

    Miranda Hart - British comedian

    Or maybe it's the perfect title, if you apply it to the content of the book. Sometimes things like that align perfectly if you view them from just the right angle. Also, just perfect for a Mitch Edberg classic: "I haven't been entirely honest with you, I'm still not, but I haven't been...
  11. rvallee

    Miranda Hart - British comedian

    Considering that the whole CBT/GET paradigm is considered "evidence-based", and so is the Lightning Process and similar quackery in a very rough sense, I think it's better to adopt a different term. I get that evidence-based is the paradigmatic buzzword, but it literally means nothing when...
  12. rvallee

    News from Germany

    "Lying down" demonstration in front of the German Ministry of Research today: Edit: another photo, good turnout.
  13. rvallee

    How Long is Long COVID? Evaluation of Long-Term Health Status in Individuals Discharged from a Specialist Community Long COVID Service, 2024, Sivan+

    Someone really has to look into why they have such abysmal response rates and change this. Having barely a quarter of data is close to useless as the void of data will always be used to minimize and offer alternative explanations, arguing the classic "don't come back to the clinic" = recovered...
  14. rvallee

    The Concept of ME/CFS

    ME/CFS is generally diagnosed after a delayed period, for mostly historical reasons. Traditionally it's been 6 months, far too long. 3 months looks more reasonable, looking at where the recovery curves are, the point at which recovery becomes the exception. LC has provided the best data we have...
  15. rvallee

    Symptoms of Covid-19

    Very damaging disinformation, from someone who spread so much disinformation that she once said on TV she'd stop making predictions. But without consequences for it, it's too easy to get right back to it, news media are always seeking out minimizers and it's always easiest to go with regulars...
  16. rvallee

    Trial Report The effects of chronic fatigue and chronic stress on alterations in immune cell responses to acute psychosocial stress, 2024, Nater

    Given that exercise has similar effects, and that in about 99% of cases stress can be substituted for exertion, isn't this just the normal effect of literally any exertion above base metabolism? Because it just creates completely unnecessary confusion to use the common terminology of stress in...
  17. rvallee

    UK:The Guardian:Unemployed could be given weight-loss jabs to get back to work, says Wes Streeting

    This is impressively delusional. Very biopsychosocial. The primary health care costs of obesity are significant, though I'm sure overstated, but the total costs are probably more similar to smoking, where the reduction in end-of-life care and, especially, longer retirement makes smokers a net...
  18. rvallee

    The Concept of ME/CFS

    That would be far more convincing if there were such a thing. It's not as if PACE featured that, at least outside of a definition that is "trained according to Wessely's beliefs", which is an ideological position. Chiropractors are highly trained in the sense of years of schooling and have good...
  19. rvallee

    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    Historically, institutions locked in a state of systemic failure don't get changed, they get replaced or sidestepped. The enormous size of the wellness and alternative medicine industry is the sidestepping. It's useless sidestepping but it's the only way people can 'vote' with their money, as...
  20. rvallee

    Associations between pain intensity, psychosocial factors, and pain-related disability in 4285 patients with chronic pain, Live Landmark et al, 2024

    Aside from the clownery of having significant digits on such a probability (why not 5 significant digits? why not 10 while you're at it? it's not as if this number is anywhere close to be accurate or relevant), the idea that it doesn't matter what the direction of causality is, that you can...
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