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  1. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Oh they will say it. They will all say it. All of them. And we will show the receipts about how they knew. And they will keep on saying it because clearly none of this actually matters, the systems protect themselves above all other considerations.
  2. rvallee

    Cost-effectiveness of an extended-role [GP] clinic for [PPS]: results from the Multiple Symptoms Study 3 (MSS3)... 2024 Deary, Burton et al

    I didn't bother calculating what it means but when you put it like that it's not just completely laughable, as you say this is about years/days of perfect health so it's not even valid since those are healthy years equivalent. It literally means nothing. This is at least as completely delusional...
  3. rvallee

    Cost-effectiveness of an extended-role [GP] clinic for [PPS]: results from the Multiple Symptoms Study 3 (MSS3)... 2024 Deary, Burton et al

    Gonna (presumably, if accurate) quote Gandhi here: "Methodological and ethical standards in psychosomatics? I think it would be a good idea".
  4. rvallee

    Cost-effectiveness of an extended-role [GP] clinic for [PPS]: results from the Multiple Symptoms Study 3 (MSS3)... 2024 Deary, Burton et al

    It's mentioned in the text but they mostly shrug it off as "good enough", even though given that those were a small number of assigned GPs I don't think this excuse holds up well (6 GPs were involved, come on) but I doubt it would have changed anything and it's not as if any of this matters...
  5. rvallee

    Use of passively collected actigraphy data to detect individual depressive symptoms in a... 2024 Price et al

    Aside from being a terrible idea with no possible good outcome, studies like this just shows how medicine is as totally clueless as ever about depression and has not actually made any progress in understanding what it is, let alone how to differentiate it from anything else. In fact the complete...
  6. rvallee

    News from Germany

    Whew, that is one confused individual who is adding as much clarity to the issue as throwing mud helps make water crystal clear. Basically rehashing all the tropes while lamenting wistfully about how, sometimes, maybe there is something but, who knows? For sure he really wants to make sure that...
  7. rvallee

    The Medical Independent: Challenging the ME narrative

    The most salient point is that none of it came from flawed science, it came from flawed beliefs and a process that is a parody alternative to science, built entirely out of logical fallacies. If this had been a scientific process, none of this would have happened. Not that science can't be...
  8. rvallee

    Thousands miss out on vital asthma jabs as GPs don't know they exist

    Could it be because the costs are immediate but the benefits are long-term and so will not bear fruit for decades? I would be truly shocked if it wasn't. One of the problems with health care being a major political issue, even though almost nothing changes whoever is in charge, is that...
  9. rvallee

    STING recognition of viral dsDNA by nociceptors mediates pain in mice, 2024, Berta et al

    And now I'm wondering if this could explain vaccine-induced pain around the site of injection? Maybe partly?
  10. rvallee

    News from the USA, United States of America

    Interview with representative Ilhan Omar about the House version of the Long Covid bill: Should be watchable in full here: https://zeteo.com/p/the-efforts-are-not-enough-rep-ilhan.
  11. rvallee

    Cost-effectiveness of an extended-role [GP] clinic for [PPS]: results from the Multiple Symptoms Study 3 (MSS3)... 2024 Deary, Burton et al

    So the same old nothing. The idea that this is effective, even cost-effective, is laughable. But almost no one seems bothered by that. "Illness without disease". As they explain early on, this is what they perceive as 'somatization'. So, the exact same old nonsense with the same intent and...
  12. rvallee

    Salt

    Ah, so they took correlations and ran with them being causes because it came with an easy lifestyle change that people could do all on their own. A tale as old as time.
  13. rvallee

    News from Scandinavia

    Yeah this is exactly what HIV and climate change deniers say. I don't get this refusal to do anything based on lack of information when it's their whole job to do this. Lazy bums waiting for a handout.
  14. rvallee

    Illness invalidation and psychological distress in adults with chronic physical health symptoms 2024 Woldhuis and Gandy

    All the wrong focus. You can't fake this, and all this training is about not just faking it, but about lying, then lying about the lying effectively. They respond to the problem with a more devious and dishonest form of the problem. Again and again. Like they do here. This article is very much...
  15. rvallee

    Ignored, blamed, and sometimes left to die – leading expert ME explains origins of a modern medical ‘scandal’, Chris Ponting, The Conversation, 2024

    This is a great article. It strikes the careful balance between being formal and informative while emphasizing the human aspect in a way that people can relate to. I wish 'scandal' wouldn't have been quoted, but I assume the editors insisted. This is a scandal, one of the biggest in the history...
  16. rvallee

    Loss of smell and taste

    OK this is an amazing quote. :laugh::laugh:
  17. rvallee

    News from the USA, United States of America

    I've had an interest in US politics for over 2 decades and follow the election closely. I have not once seen any attempt to reach disabled voters. Not once. Same with local politics here. It is not simply not talked about, not a winning electoral strategy, because the message is always centered...
  18. rvallee

    Physical, cognitive, & social triggers of symptom fluctuations in people living with long COVID: an intensive longitudinal cohort study,2024,Greenwood

    This is minor but substantial progress. As in it is very small step, but it is a step. But they still frame it as exercise and while the editorial is far more informed about PEM than the paper, this sentence above massively understates the consequences. The disability is so much more invasive...
  19. rvallee

    Miranda Hart - British comedian

    It's the last great respectable universal belief system. Whereas many beliefs are still OK as long as they are kept private, this is the last one to be publicly approved. Go back a century ago and things like mentalism, hypnosis, telekinesis, ghosts, astrology and so on were very common. There...
  20. rvallee

    Review ENDOTEXT: CHRONIC FATIGUE SYNDROME, 2023, Lim & Torpy

    I hope for someone's sake that the text you quoted was written by a LLM because even then it would have to be a pretty bad one and that's just embarrassing. Reads like someone imitating human language and failing badly at it.
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