Search results

  1. rvallee

    Lifestyle factors as predictors of incident functional somatic disorder. Five-year follow-up of The DanFunD study 2024 JØrgensen, Fink et al

    So, as usual they got nothing. They can't even confirm the old stuff they've been asserting for decades. All the risks they mention here are either generically bad, smoking and alcohol, or not lifestyle, such as sleep quality. Nevermind the huge number of us for whom none of this was even a...
  2. rvallee

    Cost-utility analysis of transdiagnostic [CBT] for people with persistent physical symptoms in contact with specialist service... 2024 McCrone et al

    As impressively delusional as ever, just fiddling around with imaginary numbers. Seems to be the current strategy is to fake numbers in terms of RoI and framing them explicitly as reducing direct health care expenses. Lots of those lately. Hey it's not as if LC alone is estimated in the...
  3. rvallee

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    For severe patients I can't see this working out. They are already do so little activity that deviations wouldn't be noticeable. For mild patients you could observe going down from 3-4K steps per day to something like 500. This would be noticeable. But actimetry wouldn't capture much data for...
  4. rvallee

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    Yeah for sure this is about the constant need to use muscles to balance out the vibrations and movements, completely different from the droning buzz and minor shaking that a healthy body can get used to. And highlights the key difference between somnolence and fatigue. Those are just different...
  5. rvallee

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    Ah we know why ;) They know why ;) But they can lie about it anyway. Because really the problem is not with them. They are clearly deranged but their misbehavior is enabled and defended at the highest levels. Broken systems unable to fulfil their basic functions.
  6. rvallee

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    For sure this is all related. They haven't published anything new for 2 decades and are just coasting on their original claim. They won't be producing anything new in the next decades either. All they have is working behind the scenes. It's done very well for them so far. They can only work to...
  7. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    The UK COVID inquiry pretty much went the same. On the topics of airborne transmission and the risk of Long Covid, basically everyone involved either have giant memory gaps, or in the conduct of their work never considered things they also don't quite remember well, that they admit weren't...
  8. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Then again: "nuh uh". It's their most powerful argument. It works every single time. Which means the problem is not with them, it's with the systems and institutions that stand by this. With trialists who perform studies with null or negative results but still recommend them. With organizations...
  9. rvallee

    Miranda Hart - British comedian

    Well that article obviously can't be true since he had loudly announced in 2002 that he had retired from research on ME and this was published in 2009. It couldn't be that he *gasp* lied?!
  10. rvallee

    News from Canada

    Missed this from August, CIHR has funded a taurine trial at the University of Alberta. They will waste $3.3M on this useless dud. This is scandalous misuse of resources, but what else is new...
  11. rvallee

    Analyses of the economic costs and impacts of chronic illnesses like ME/CFS and Long Covid

    Let me guess the next move... "psychologically-led rehabilitation can lead to people being able to work more than they think, but it can't make them accept that they can". Doesn't matter that it's literally all about the latter. By their own admission. In their own definitions. The quacks...
  12. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I don't know. Much of this started with claims of death threats, mail bombs, comparing us to terrorists, Wessely saying he felt safer on the ground during the Iraq war (he obviously never left the safe fortified compounds but whatever) than with us and so on. If anything, they've toned it down...
  13. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Ah so he just started his business and is basically using this as a disguised advertorial. Smart. Well, petty scammer smart but still, smart. As long as you don't have much of a conscience anyway.
  14. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    It's also evidence that this model doesn't work, but when you can turn a loss into a profit using a single minus sign, then it's all good. It's just not said enough that the accounting equivalent of what the quacks do is literally considered fraud in almost all cases. And not just fraud but...
  15. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    His argument is weak and absurd but what's most notable is that he speaks of struggling for 5 years on his 'recovery" when the rehabilitation model is usually in trials as a few days of intervention, maybe a few weeks or months. The idea of doing years of this is ridiculous. It 95%+ of cases it...
  16. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    That's why they chose to publish this in the form of a letter. Those aren't fact-checked, are not reporting. And the letter links to a commentary published in what is basically their own pet journal. Also someone noted that the other psychologist who wrote a letter has a private therapy...
  17. rvallee

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    My experience is that the payback mostly relates to what 'system' has been overextended. I suffered a few major setbacks following significant physical exertion, from sensory stimuli and from cognitive effort, and they all seem to mostly affect those systems. Although they do all feature some...
  18. rvallee

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    I'm actually curious about what would even constitute good evidence for this. How would that even work? What kind of such evidence would be considered good? How would it involve anything other than surveys of severe patients all reporting that the bar for significant worsening is far lower than...
  19. rvallee

    Illness invalidation and psychological distress in adults with chronic physical health symptoms 2024 Woldhuis and Gandy

    Reminds me of the expression: if everywhere you go to it smells like shit, take a look at your own shoes. But since they carry so much shit on their shoes everywhere they go they leave a clear trail of it that they gleefully point at, as if we can't see that the trail obviously marks out their...
Back
Top