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  1. rvallee

    UK writer with ME Susanna Clarke - press articles

    Susanna Clarke Wrote a Hit Novel Set in a Magical Realm. Then She Disappeared. Gift article, courtesy of John Scalzi: https://www.nytimes.com/2024/10/25/books/susanna-clarke-strange-norrell-sequel-interview.html?unlocked_article_code=1.U04.X4jJ.MGewGek4hVg3&smid=url-share.
  2. rvallee

    Why are places allowed to not follow the NICE guidelines?

    Why is it that we sometimes see the opposite claim? That guidelines either forbid something or don't allow for something and that's the only reason they don't do it and that's final because it's written in stone and blood in the guidelines? Is there a second set of super duper secret...
  3. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    You remember it well, that definitely did not happen. He had a platform being a professor of medicine. He was able to publish his own personal musings multiple times in the BMJ and national newspapers, something that ordinary patients have no chance of achieving in a whole lifetime. Some people...
  4. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    They're all silenced. You can hear all about it on the all-exclusive "WE'VE BEEN SILENCED!" channel, featuring 24/7 footage, reports, live shows and tambolas (? really? OK then) and documentaries about special retreats, conferences and festivals of the silenced, live on all channels, all...
  5. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    LMAO aside from citing something from WWI, if Steele claims to have been healed by the LP, how did her being 'trolled' (i.e. criticized for making absurd claims) make her crash from an illness she recovered from? And if hope helps people recover, then this would be worth of a Nobel prize in...
  6. rvallee

    Introducing Long COVID Essentials, a new resource series

    This isn't as helpful as real medical care, but it's definitely far more helpful than the mockery of medical care that is available for most people with LC or ME. It's actually leagues beyond, which is just plain embarrassing, even though it's not much.
  7. rvallee

    Encyclopedia Britannica website: entry on CFS

    Probably a fringe opinion, it's nothing as convoluted for the most part. From how the patient community talks about it, it's because it features a lot of neurological symptoms. As in about 99%+ of comments don't make any reference to historical artifacts, or the WHO categorization, and rely...
  8. rvallee

    NHS England web pages on ME/CFS

    Still not NICE-compliant, though, as they list CBT as a treatment, when it's explicitly described as support in the guideline. So as usual it's a compromise between reality and fiction.
  9. rvallee

    Four Years in, What Are the Research Priorities for [LC]? A Research Priority-Setting Partnership Between People With..., 2024, Grant et al

    That's everything and the kitchen sink. As in: what work needs to be done? The work. Literally the whole work. There isn't a single thing that needs to be done that has been checked off the list. Not one. They aren't just the same priorities as on day -1, they are the exact same priorities...
  10. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I assume it's the main goal. It's been very effective. We see it all the time, in bits and pieces of rumor framing everything, including research proposals. They succeed as long as it's a maligned topic, hence why they stick entirely to politics and maligning. It's not as if they'd reasonably...
  11. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I'll try if I come across it but it would be worth replying with how the same claims were exposed as a blatant lie for some secret conference held in... Norway? Same strategy. Same lie.
  12. rvallee

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    As many are aware, this is a common strategy employed by narcissists, DARVO: deny, attack, and reverse victim & offender.
  13. rvallee

    FDA approves first app-based treatment for major depressive disorder

    I didn't have this future on my bingo card: old pseudoscientific bullshit delivered through 21st century technology. This is the weirdest combo ever. I kind of expected that getting to the future would involve some level of getting dumber because we get wiser but this is a bit extreme. I'm...
  14. rvallee

    FDA approves first app-based treatment for major depressive disorder

    FDA approves first app-based treatment for major depressive disorder https://time.com/7086622/depression-treatment-app-rejoyn/ The app, called Rejoyn, is cleared as a supplement to currently approved therapies and works by using specifically designed tasks on a smartphone app to rewire neural...
  15. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    His description frames him as someone who recovered from Long Covid using neuroplastic methods. Plainly a N=1 anecdotal narrative. What the hell is this Sense about science outfit even doing there? This is beyond ridiculous, they are exposing experts and academics as frauds with this stuff. You...
  16. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It has been said a lot, but I have not seen or read any actual example of them being silenced. I am including the other "I am being silenced!" here. Everything they talk about is a combination of people telling them they are wrong and patients begging them to stop causing us harm, or pointing...
  17. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    It's been a massive disappointment so far, but I would strongly emphasize the RECOVER initiative on this. Even though it features a few useless trials for this stuff. In fact, mostly because of the complete imbalance it shows. From the science side, the psychobehavioral woowoo is not even...
  18. rvallee

    Miranda Hart - British comedian

    That would make sense. Like the spam test. Who the hell falls for spam? It's filled with mistakes and weird language. And that's on purpose, because they want to hook the fishes who fall for the opening line with enough certainty that they can be brought in the boat. They don't want to waste...
  19. rvallee

    Miranda Hart - British comedian

    Hey, maybe this is the key piece to develop artificial general intelligence. It's very hard to be able to discern deeper meanings from language. Especially things like tone and mood, being able to tell that someone is being mean or sarcastic for example. If rice can do it. Imagine the...
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