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Yup that framing is quite a doozy. They just never heard about it, and it's why social media is such a frequent target of their ire: it's the only place mistreated and gaslighted patients can find out that it's not just them, not unique, not even rare. Systemic problems like this used to be...

Mending Mistrust–Can We Rebuild Faith in Medicine? https://www.peoplespharmacy.com/articles/show-1384-mending-mistrust-can-we-rebuild-faith-in-medicine Posting because it uses ME/CFS as an prominent example of this problem, and the show appears to have a significant audience. It's a 1h+...

This probably is the core of the problem, why evidence-based medicine is largely useless: it's possible to feel better in general, without affecting the actual problem, being no better off in the end. You're better, but also you're not better. They're both true. The former is temporary, the...

Worse and better are possible. Which is mind-boggling but it's probably things like that that help reduce the possible models enough to hone in on the correct(s) one(s). It's so bizarre, but it's precisely that it's so unusual that it only leaves a few valid paths. I'm seeing this approach in...

On that I'd say it's rather no specific, consistent abnormalities. There are many abnormalities, and it's impossible to say whether they are downstream or play any causative role, in triggering or perpetuating, but there definitely are many. And they vary between people, and within people, but...

We may be lucky if it's only two :rofl::( There may be a root with many smaller branches. Or there may be more than one root branch, possibly by factors such as location. And they may not be exclusive, as we saw with attempts to create subsets of Long Covid, they are never exclusionary, some...

It will never cease to amaze me how Wessely managed to get up so high without ever having actually done anything for it. His roadmap is one of administrating various things, but as a psychiatrist he has contributed absolutely nothing worthwhile, in fact much of it is fraudulent at best, a...

But in real life it's more complicated than that. It's almost impossible to work this out in criteria, but many of us, like me, did not have chronic fatigue for many months or years while we had PEM and many of the other symptoms. There was fatigue, sure, but it was a distant and relatively...

And almost always used to mean the opposite of what it means, while feebly hiding the fact.

OK that's great. It'd still be better if they could adjust the studies when new information comes in, but for sure many did start knowing nothing and things tend to be set in stone after a point. Academia, pffft.