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Yesterday there was a symposium by Polybio showing their latest work. Both LC and ME/CFS but there is more focus on LC given recent funding so I put it there. Here is a very extensive thread covering much of it (200+): And a shorter summary: Summary document...

Maybe campaign isn't the right word, it's more of a theme, very close to #MillionsMissing. It's gaining some steam, I've been seeing more of it lately. So basically #NotRecovered on social media with hashtags. Eventually some right combination of words will resonate and gain more presence. And...

This is common in LC. I see a lot of people who declared themselves recovered (for some time it was common for people to make posts on the LC sub-reddit about leaving because they recovered, much less nowadays) who relapsed later. And one of the most common themes is being X% recovered, with...

Which given the data we have from LC sounds about a good cut-off for better odds of recovery, but it's still very disruptive to be ill for 3 months. I don't agree with the idea that there is a fundamental difference between those who recover and those who don't. There is a difference, but it...

Tales from the pan: damn the fire looks good

What's especially absurd about this is how incredibly rare such a thing is. The odds of a MD seeing this once in their career is probably 1:1000. And yet even though it's excessively rare, it's often thought about. Meanwhile chronic illnesses like us are a few % of the population, far more...

Exactly as expected given that many questions overlap. So what is even the point of using questionnaires that have overlapping questions? If other fields of science did this it would lead to completely absurd findings, but here it seems to bother basically no one. All organs are connected with...

This makes absolutely zero sense. It's nothing but an echo chamber "turtles all the way down" model that simply ignores real-life data.

This is ridiculous enough that it makes the Stanford prison experiment look like a serious study. What is wrong with these people? This is clownish nonsense, it has zero validity, actually reminds of me of satirical experiments mocking the type of absurd research that went on in the mid 20th...

OMG I love this

How many times does this have to happen before something gets done about it? There are millions of documented cases of harm inflicted by a hasty diagnosis of acronym syndrome. Most of it is simply dismissed as inconsequential, doubling down on the initial harm, but there is plenty that isn't...

I really hate how this is so easy to find out, there have been more than enough studies on fully-monitored extensive bed rest to do meaningful comparisons. And yet this trope still survives, even when the patients say they were never bedbound, even when researchers themselves openly admit that...

Why are they still using health records, when it's long been shown that they are missing a lot of problems?! Yeah, obviously this study started a while ago but still, the inability to adjust to new information is basically the freaking cornerstone of intelligence. If our SCIENTISTS can't...

This seems... significant? Interferon response is specifically antiviral, so this would make sense with viral reservoirs, complete or not. Could suggest suppression of interferons, which if I understood it correctly is a common viral defense. A growing model seems to form around cells being...

To hell with consensus. We'll never have agreement with the people who want the magical pseudoscience, our goals are mutually exclusive in every possible way, they will be furious and excluded once a breakthrough occurs and it's the last thing they want. We need science and facts, and a move...

BACME: They were actually saying boo-urns!

Those tests don't seem to be standardized enough to matter, though. If it were a validated test, I can't see how it would be disputed, but it hasn't made a dent for the most part. They have a lot of interpretation behind them, are not anywhere near as valid as basically anything done in...

Out of curiosity, tried to find what is hypertension, the mechanism itself, and as best as I can tell... it's unknown. There is a description of what it is and risk factors but the why appears to be, dare I say, (cue spooky theremin) mysterious. Which I guess means lots of possibilities. The...

More like between 'bad days' and 'worse days'. I haven't had a good day in... I don't even remember. That old life is so far in the past I can't remember any of it. It's a completely different version of me, even though I am still mostly that same person. In the mildest patients good days...