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Heh, not quite true. It's not nearly as bad, but sickness is almost always awful and features a lot of that. The difference is that where it matters, they're treated mostly seriously, at least in most cases. But I've seen enough people with cancer saying they're sick of hearing this stuff to...

So from a rehabilitation clinic, the vast majority are still impaired, and that's good prognosis? The 9% having a good quality of life at the start suggests those must have been the mildest people they could find, which is usually the case. And of course natural improvements explain the...

Agree that the details are weird yet again. I almost never see testimonies like this, with those words and framing, especially "convinced she wouldn't recover". Somehow it's usually people who have something to sell. Really furious at all the damn sickxploitation and how it's enabled by bad...

Uh, always thought she was. But looking at what she was involved with, and it's basically all the other ones except FINE, based on the exact same ideas. Close enough, I do agree with the general idea that calling her a researcher is a stretch, though. ;)

On anti-mask and anti-vax disinformation: Social media is not the primary driver here, public health and the institutions of medicine are. I see far more people reporting being scoffed at or admonished by MDs about "why are you wearing a mask?" than the opposite. The primary driver of vaccine...

Pseudoscience peddlers always disagree with research exposing their quackery. These people destroy all hope of recovery for us, then go on about promoting hope. What absurd nonsense. What do they disagree with? Reality? The data? The survey?

For what it's worth, there was a recent discussion on the LC sub-reddit over someone being told by two MDs that LC was psychosomatic that it was explained to them that psychosomatic means that their central nervous system is malfunctioning, which of course is a complete bullshit explanation that...

Having seen thousands of people discussing being told they have FND over the years, a small fraction of which was definitely positive, I say, with all due respect: Horse. Shit. They can pretend if it makes them sleep better at night but the only way to know this is to ask and they don't want to...

They are testing the 'hypothesis' for the treatment model that has been most used from day 1. Right. As one does. Has anyone bothered to test whether drinking cold water works for minor aches, lately? Anyone? Bueller? Their excuse for drop-outs, reasons for are not documented, is speculation...

So, one of the latest trends is clearly to argue that people who may or may not report PEM don't show PEM according to them. This are several studies doing the same bit. "Views" such as widespread reports of PEM, which not everyone with GWI has, and this cohort was clearly highly active so...

The same problem is found in almost all health problems. So are they going to do more training on all those conditions? No one is ever going to understand all diseases, so advising training on all conditions is delusional. This isn't the way to address this, it's not even close to be realistic...

0 = 0 = effective = give us more money. The scam equation. Imagine being in any other job and doing a lot of work, to then show your boss that you did no better than something that you were already doing and lacks evidence of efficacy and concluding that they should spend resources on both and...

"One popular approach is "brain trfaining."" You know what, just leave it as is. It's perfect. Although to say that the premise of 'brain retraining' is "use it or lose it" is just false. It's mostly used clinically nowadays to 'treat' cognitive symptoms, which are not the product of 'not...

I left a comment pointing out how the LP and similar 'brain retraining' programs are routinely promoted by MDs, and that it's largely identical to the CBT+GET model, making it impossible to criticize. Only 2 comments so far.

The next day she did a 5 km run. Something that normally takes a few weeks when starting from scratch. Not walking 5 km, a 5 km run. She probably was scuba diving the week before that. But yeah that journalist comes off as very gullible and has done a poor job given the stakes. I don't usually...

I didn't keep some tally or anything, but roughly speaking, I'd say that most of the predictions I saw from medical experts about COVID were wrong. And sometimes completely so, even laughably. Too often despite there being more than enough data to know better. Experts know a lot more, and...

Incorrect, it preceded availability of tests. In fact it was a huge clusterfuck at first because tests were first unavailable, then in very short supply and contingent on arbitrary criteria, such as travel to China or fever. Not by much but still, it's just as important to be accurate as...

One of the people interviewed in favor of the LP by the BBC is Rachel Whitfield, a LP practitioner who was a NLP coach before who has infiltrated, and has been banned from, several Long Covid groups to promote the LP, is a member of COFFI. Thread on COFFI here...

This relates to a recent BBC report on the LP: BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.

Some photos from a protest in Hamburg for International ME day: