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I had huge problems with falling asleep since the age of 7. It's not as bad now as it used to be, but it used to take me 4+ hours to fall asleep, sometimes even more, especially when I was a teenager. I also had chronic fatigue during that time. Not CFS. Fatigue, chronically. I was still able to...

Pompous nonsense from the school of thought that doesn't want to bother pretending that beyond a label change, psychosomatic illness is the old Freudian hysterical conversion disorder, and that attempts from the biopsychosocial school of thought to pretend to legitimize them as being medical...

COVID inquiry, CMO of England (Chris Whitty): And yet, nothing. Continued denial. Not much to say about the £50M they mostly wasted on pet projects or known deniers of chronic illness. It yielded absolutely nothing because it was poorly allocated. Some of it even was pretty much "Long Covid? I...

copied from UK news COVID inquiry, CMO of England (Chris Whitty): And yet, nothing. Continued denial. Not much to say about the £50M they mostly wasted on pet projects or known deniers of chronic illness. It yielded absolutely nothing because it was poorly allocated. Some of it even was...

It's a bit wild how they're noticing how there are no structures in place to make such complaints, but can't connect the dots as to why this is the reason those are mostly voiced on public forums like newspapers and social media. With patients, there are loads of factors that come into play for...

Making it immediate seems a bit flawed, too binary. So many of us struggle to do anything standing up, at all or for more than a few minutes, often can't have conversations this way and need to sit down for it. It's not an immediate "I have to lie down flat or I will faint" but it seems to fit a...

Severity and variety seem to explain most of this to me. When people have various viruses, COVID or the flu, there's a huge range of symptoms and degrees of impairment. Between people, and sometimes for the same people. I have seen so many accounts of LC saying they had COVID 2-3x before and it...

And some sort of temporary editorial note on the review that we were told would happen some time but we have never heard anything about since. Has the note been written? Waiting on Cochrane for approval? Waiting on the IAG for review? Waiting on Cochrane for publication? Has any work been done...

Covid inquiry with lots of discussion of Long Covid. I think this is the CMO of Scotland. Some "particular nuances"... Still not prepared, or able. In almost any other setting, when you have answers like this, loads of people are fired, management first, departments are reorganized...

Not sure where people can watch this. I think in the US it's available on Youtube. IIRC it's available on HBO/Max. As a taste of what an episode on Long Covid / ME could be like:

Long Covid teachers join forces to sue ministers https://schoolsweek.co.uk/long-covid-teachers-join-forces-to-sue-ministers/ About 85 teachers in the UK have expressed an interest in joining the action Founder Emily Mason said long Covid had been “catastrophic for people’s lives and careers”...

Oh yeah my annoyance is at how it's almost always framed this way. Even worse when it's stated in a way that makes it sound like it's been over for a while. Oonagh did great here.

Hypothesis: we would likely see similar things from MDs who believe in psychosomatic models. People get out of fundamentalist ideologies. This isn't a rigid construct in the structure of the brain, has nothing to do with genetics or any fixed conditions. It's a dynamic process. And just as...

The joys of being in an industry that isn't subject to supply and demand pressures, and in fact you have 10x more demand than supply so you never have to actually bother producing good outcomes beyond whoever supervises/funds you wants out of you. It does cost them a lot of credibility. But it...

Amazing what one can do when there is no oversight or accountability and you can just make stuff up.

Some of those biases are unconscious. Most are definitely conscious. They're even taught at medical school, encouraged within the culture of health care, voiced out loud and put in writing. They're very overt, in fact. More often than not they're said in places and circumstances where they think...

Oh, so just like they've done for decades. But more? Or with a different tone? I guess? But yeah we know this is ineffective and mostly useless, even counterproductive at times.

Always. And it's really pissing me off that it's pretty much always. I almost never notice framing that it's an ongoing scandal, even in writen articles you get a tone that things used to be this way, but have changed since. In a rapid conversation you can understand it, it goes so quickly, but...

Intuitively, it does seem reasonable that a change in the body would see changes in the neural networks that regulate them. In fact the opposite would be kind of odd, but then again biology doesn't care about making sense or being intuitive. Maybe this would in turn tell us what is being...

Seems spot on: