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  1. rvallee

    The use of the labels ME, CFS, ME/CFS

    I'm not really sure where best to place this comment given that the discussion has veered away from Maeve and the inquest in the thread (https://www.s4me.info/threads/maeve-boothby-oneill-articles-about-her-life-death-and-inquest.31707/page-87), but this whole confusing mess really highlights...
  2. rvallee

    UK: LBC phone in on ME 8pm, 24th August 2024

    Raises all sorts of awkward questions about how this obvious public interest story was held back. The demand to know more, to improve things is there from the public. Not everyone, but there are many stories that get loads of attention that much fewer people care about. But the people...
  3. rvallee

    SARS-CoV-2-specific plasma cells are not durably established in the bone marrow long-lived compartment after mRNA vaccination, 2024, Nguyen et al.

    'Hybrid immunity' was promoted as a verified fact. By simply asserting it. As it turns out, wishes don't become reality just because it would be handy if they did. So all immunity to COVID is short-lived, and the virus is both wildly mutating and highly contagious. So it's just a question of...
  4. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I know that medicine works differently, but I think that the common definition of a word is a perfectly fine application of it in most contexts. Systemic has a meaning and it applies very well here: As opposed to locally or part of. But of course medicine is special and uses words differently...
  5. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    There is a huge difference between making speculative claims about biological mechanisms that need to be proven right or wrong through credible research following up on possible leads, vs making assertive claims based on speculative narratives that are debunked and depend on conditions that are...
  6. rvallee

    'It is the saddest thing': ECG tests being misinterpreted with tragic consequences

    All hail our future AI overlords. Because it truly can't be worse than what we have right now. We will not survive ourselves otherwise.
  7. rvallee

    Stem cells reverse woman’s diabetes — a world first

    Biomedical breakthroughs: thousands and counting, with billions of lives improved, hundreds of millions of lives saved, and a huge RoI. Biopsychosocial breakthroughs: literally none, and a massively negative RoI. But somehow the future of medicine is pinned on the latter. Why are humans so...
  8. rvallee

    Review Perceived Strengths and Difficulties in Children and Adolescents With Chronic Physical Health Conditions A Meta-Analysis, 2024, Pinquart

    This is such a mess. They keep talking about screening for psychological symptoms as if this is a thing that can be done reliably even in normal circumstances, let alone when there are huge, deliberate, overlaps in the questions that just make the entire process an exercise in excessive...
  9. rvallee

    Alzheimer’s scientists and falsified data

    How odd that a neglected crisis, for which nothing was done to even reduce, continues to do the thing crises do. Even with the lack of ideological denial, this is fundamentally the same crisis we face. It's not about replicability, it's about validity. None of this would be happening to us or...
  10. rvallee

    News from Scandinavia

    If only they could let go of the multidisciplinary rehabilitation now. Having people go to multiple exhausting appointments to help them manage their energy makes as much sense as having people on the verge of destitution pay hundreds of dollars to attend classes that will tell them how to...
  11. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I'm surprised the coroner can leave it at that because it basically leaves us with a paradox: ME is not fatal, but Maeve died of natural causes, which by definition has to involve a naturally fatal condition. Starvation is obviously not in itself a natural cause. The legal profession usually...
  12. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    They do seem the most experienced specialists with the frailty levels of severe ME. Makes sense, although this is only in terms of palliative care, so for nursing practices, and not really the specialty itself.
  13. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    If I'm not mistaken, publications like this tend to be in packaged formats, such as PDF, re-hosted versions (which I assume is one way they make money from licensing) or in printed form, meaning there are several copies out there so that even if the original were flagged, the copies would not...
  14. rvallee

    Subacute Combined Degeneration of the Spine: A Case Study of Delayed Diagnosis in the Emergency Department. 2024 Ryan and Tolby

    A cynical person (me) might actually start to see the primary goal of this ideology as a very effective way of protecting health care systems from litigation in cases of negligence or failure of duty of care. Because unless there is a blatant mistake such a misreading a test that was indicative...
  15. rvallee

    Subacute Combined Degeneration of the Spine: A Case Study of Delayed Diagnosis in the Emergency Department. 2024 Ryan and Tolby

    This ideology is so dangerous. Life stressors is a completely generic concept and even if present, they can obviously be unrelated. To frame this as "highly suggestive of a conversion disorder" shows just how low the bar is, how it takes nothing at all to jump from absence of evidence to...
  16. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    That graphic sums it well. Where is it from?
  17. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    She wasn't the first. And there was no need for such a precedent. People shouldn't be left to starve to death in a hospital on the basis of delusional beliefs, and no health care professional should require specific guidance for this. 10 year-old is about the age where you expect someone to not...
  18. rvallee

    Hypothesis Microbes in mind - New Scientist article

    There are microbes that live in the most restricted clean rooms in the world, including vacuum chambers. Extremophiles everywhere, hot and cold, acidic and basic. There are basically microbes everywhere you look. But somehow actual physicians decided that the brain must be a special snowflake...
  19. rvallee

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Impressive load of bullshit from Kjöller. The lies. The damn lies!
  20. rvallee

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Medical attention from a biopsychosocial perspective is never positive for patients. Never. It is not meant to provide benefits for patients. It is meant to provide benefits, comfort mostly, to physicians, to increase private profits for insurers, and to create the illusion of savings for...
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