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At the very least if this included proper recording, it would clear up a lot of the false data made up for psychosomatic beliefs and used to cover up systemic failures. It would also expose many flaws in the system. It's one of the most disappointing thing in health care: the lack of data. It's...

We have to fight the illness, the medical profession, the health care systems and far too often the few under-funded charities making blunder after blunder. Damn this mess.

That it cites the awful LC clinics funded in the UK as some sort of model, when they are widely considered a joke, is just one of so many problems here.

I laughed when I saw it and wondered if it was worth posting here :laugh: Every time I saw this dude when he was doing interviews on TV, he only got softball questions and could basically say whatever he wanted. This was an educational program and he was just not prepared for an actual...

Interesting interview on a public channel funded by the Ontario government. It features one of the goto pandemic minimizer (Bogoch), along with a professor of immunology and a professor of psychiatry, who makes many good points about how ignoring the cumulative impacts of COVID is foolish. Being...

Odd 'study', if it can be called that. The choice of the name itself is odd. This 'PCS' is very rarely used and this study is published after hundreds on the same issue have been published. I guess it's because using LC in a study by MDs, for MDs, about MDs is seen as problematic. Snowflakes...

Good grief we deserve so much better research than this. It's all been so underwhelming. Even closing in on 5 years all the research is so small. Everything is small. They think small and act even smaller.

I used a device exclusively for fitness for a while (a WHOOP). Had to stop because I couldn't endure it on my wrists anymore, but it did provide relevant data. One of the most interesting was how some days I would hit close to the max level of exertion. I obviously was not exerting myself...

I agree. This type of research should be banned. It's custom built to produce fake results and does nothing but harm. But they badly want the fake results. They love them so much. Absurd.

Biopsychosocial evidence-based medicine in a nutshell. Lots of people find homeopathy helpful. And acupuncture. And reiki. And chiropractic. And Scientology. And so on. This is not how any of this should be done. It's literally null. It's not not convincing, it's convincingly ineffective. This...

This entire paradigm is no different than "Theranos technicians using proprietary tests behind closed doors find Theranos technology amaze-ing". There is no independent validation. It's all a giant racket.

Everyone involved in those randomized non-controlled (no idea what they put that misleading term in the title) would assert that they have always done so. Bias is the root cause. They don't even believe in the outcomes they create unless they are favorable to them. And even then they seem to...

Pretty absurd. They have no way to determine demand, and people usually don't even have a choice anyway. I've never seen it available. IIRC last year it was made available, but later than the other ones so by the time it could have been made available, most people were already vaccinated. And...

For people who made this BS paradigm all about 'teaching' us to think differently, they sure seem unable to learn anything or think any other way than the same way that has never worked, which is pathological behavior. It's behavior that harms, and includes not even listening about harms, but...

I started disagreeing a bit, that those not involved are definitely being failed, but it's nowhere near in the same universe as how badly we have been failed for decades.

Yes. By all means, let's have another wasted decade, probably more, of terrible biased studies from biased ideologues while the current flawed guidance remains in place and continues to harm people. Good grief this profession is such a mess. Even in LC all the trials are tiny pilot/feasibility...

There are no effective treatments. This is the treatment, which contradicts the very nature of the illness. Yeah that about sums up the state of things here. "Hey Sisyphus, if you want to get that rock up the hill, you have to push it downhill as fast as you can".

I have a simple rule, any mention of any of the tropey "mind interaction" gets the whole thing thrown in the bin without even looking beyond the title. OK I have many rules but this one never fails. It's as reliable as any mention of quantum in the context of health care or medicine. There are...

To be fair, if I didn't have to be on twitter because however lousy it has become, it's still a very important resource for all advocacy and basic awareness about most things chronic illnesses, I wouldn't be either. It has become such a cesspool, but the chronic illness community is one of the...

How does that even make sense to someone, that a 10 week exercise program would find no improvement on such a simple test? Yet find nothing wrong with the idea? I have the same overall issue. Early this year I started being able to do very light exercise, such as light weights and walking. I...