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  1. Andy

    Illness invalidation and psychological distress in adults with chronic physical health symptoms 2024 Woldhuis and Gandy

    "The most frequently self-reported CPHCs were chronic fatigue syndrome (ME/CFS) (n = 376), fibromyalgia (n = 273), Ehlers-Danlos syndrome (ESD)/ Hypermobility Spectrum Disorder (HSD) (n = 248), Postural Orthostatic Tachycardia Syndrome (POTS), (n = 228) Irritable Bowel Syndrome (IBS) (n = 225)...
  2. Andy

    Illness invalidation and psychological distress in adults with chronic physical health symptoms 2024 Woldhuis and Gandy

    Highlights Illness invalidation occurs for people managing a range of chronic health symptoms. Psychological distress was associated with illness invalidation from three sources. Illness invalidation from family members was most strongly associated with distress. Multimorbidity and longer...
  3. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 14th Oct. Twitter Facebook: https://www.facebook.com/sci4me/posts/pfbid0rwv9zPyfP7HTjfn7QXanJGSLag2zibxCgdeuEHYmEj3gpQ5LDRgkx3LptrGUEmd2l Mastodon: https://med-mastodon.com/@s4me/113344572279294101 Bluesky...
  4. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Now at 12,111 signatures. Petition main page, https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  5. Andy

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    The Wayback Machine internet archive stored a version on the 17th April, https://web.archive.org/web/20240417062600/https://www.bmj.com/content/bmj/384/bmj-2023-076506.full.pdf - does that help? A correction was published on 1st May 2024, https://www.bmj.com/content/385/bmj.q988 "Several...
  6. Andy

    An open letter regarding Scientific Reports

    Yes, the SMILE trial. Dave Tuller wrote this some time ago, David Tuller: Trial by Error: My exchange with Professor Bishop
  7. Andy

    The German guideline on medical clinical diagnostics for indoor mold exposure: key messages, 2024, Hurraß

    Medical clinical diagnostics for indoor mould exposure – Update 2023 (AWMF Register No. 161/001), 2024, Hurraß et al This article is an abridged version of the updated AWMF mould guideline "Medical clinical diagnostics in case of indoor mould exposure - Update 2023", presented in July 2023 by...
  8. Andy

    International: Science for ME social media posts

    News in Brief post for w/c 14th Oct. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid02vkJS9grVim3boQRwHJRztVbkJunEuuExioxVWbUh1b9Cgoc5PfX6gQz3WBiDe5Ehl Mastodon: https://med-mastodon.com/@s4me/113338991144671757 Bluesky...
  9. Andy

    The Concept of ME/CFS

    Yes, same happens for me that while in PEM both my normal symptoms increase in intensity and I develop new ones.
  10. Andy

    Intragenic DNA inversions expand bacterial coding capacity 2024 Bhatt et al

    Bacteria Flip Gene Segments to Alter Proteins Surprisingly Often, with Implications for Human Health "Proteins are vital to our bodies. They serve as structural building blocks for our tissues and organs and are responsible for their functioning in both health and disease. Genes, like recipes...
  11. Andy

    Intragenic DNA inversions expand bacterial coding capacity 2024 Bhatt et al

    Abstract Bacterial populations that originate from a single bacterium are not strictly clonal and often contain subgroups with distinct phenotypes1. Bacteria can generate heterogeneity through phase variation—a preprogrammed, reversible mechanism that alters gene expression levels across a...
  12. Andy

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Lots of discussion about this here, United Kingdom: Science Media Centre (including Fiona Fox)
  13. Andy

    Sera from Rheumatoid Arthritis Patients Induce Oxidative Stress and Pro-Angiogenic and Profibrotic Phenotypes in Human Endothelial Cells 2024 Giordo+

    Abstract Background: Rheumatoid arthritis (RA) is a long-term autoimmune condition marked by persistent inflammation of the joints and various systemic complications, including endothelial dysfunction, atherosclerosis, and pulmonary fibrosis. Oxidative stress is a key contributor to the...
  14. Andy

    Gastrointestinal, Behaviour & Anxiety Outcomes in Autistic Children [in] Study of Synbiotics vs Synbiotics & Gut-Directed Hypnotherapy 2024 Mitchell+

    Full title: Gastrointestinal, Behaviour and Anxiety Outcomes in Autistic Children Following an Open Label, Randomised Pilot Study of Synbiotics vs Synbiotics and Gut-Directed Hypnotherapy Abstract Alterations of the microbiome-gut-brain (MGB) axis have been associated with autism spectrum...
  15. Andy

    Fluctuation of functional somatic disorders in a population-based cohort. The DanFunD study 2024 Schovsbo, Fink et al

    Abstract Background Evidence of incidence of functional somatic disorders (FSD) is hampered by unclear delimitations of the conditions and little is known about the possible interchangeability between syndromes. Further, knowledge on remission and persistence of FSD in the general population is...
  16. Andy

    Article: The early days of peer review: five insights from historic reports

    "The UK Royal Society has more experience of peer review than most publishers, with the practice used by its journals for nearly 200 years. Last month, the society unsealed more than 1,600 historic reports, dating from 1949 to 1954, and added them to its archive. The reports include assessments...
  17. Andy

    The Concept of ME/CFS

    Try this, any issues let me know.
  18. Andy

    Herbal extract (Cervus elaphus Linnaeus, Angelica gigas Nakai, and Astragalus membranaceus Bunge) ameliorates chronic fatigue:... 2024 Ahn et al

    Claims to be about 'CFS', however "The inclusion criteria for this study were as follows: (1) agreed to participate in this study and provide written consent; (2) healthy men and women aged 30–59 years, with a score of 28 or higher on the fatigue severity scale (FSS)32,33 and a body mass index...
  19. Andy

    Herbal extract (Cervus elaphus Linnaeus, Angelica gigas Nakai, and Astragalus membranaceus Bunge) ameliorates chronic fatigue:... 2024 Ahn et al

    Full title: Herbal extract (Cervus elaphus Linnaeus, Angelica gigas Nakai, and Astragalus membranaceus Bunge) ameliorates chronic fatigue: A randomized, placebo-controlled, double-blind trial Abstract Background Chronic fatigue syndrome (CFS) reduces the health-related quality of life in the...
  20. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 7th Oct. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid0yjPytFtduCpocsVuJHgxTBu59uZTh7CkwLmvT3RVkVeifR7RN4muYCEeDt4vngCcl Mastodon: https://med-mastodon.com/@s4me/113305069230318355 Bluesky...
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