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  1. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Twitter thread by someone who was initially diagnosed with FND and Fibromyalgia, given Physical Therapy, meditation, yin yoga, and talk therapy, but subsequently received a diagnosis of May-Thurner syndrome (a condition whereby one blood vessel becomes compressed by another vessel against the...
  2. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Social media posts linking to the two letters sent by the committee. Facebook: https://www.facebook.com/sci4me/posts/pfbid0cUCd2zbtnYTLtLFB6YwCYk3YHh1cjgsNUByaos5WvvCfDFmXHszGDnU3hnX6GkFXl Mastodon: https://med-mastodon.com/@s4me/112252304846115728
  3. Andy

    Association of circulating biomarkers with illness severity measures differentiates ME/CFS and post-COVID-19 condition, 2023, Domingo, Castro-Marrero

    Now published, Full title: Association of circulating biomarkers with illness severity measures differentiates myalgic encephalomyelitis/chronic fatigue syndrome and post-COVID-19 condition: a prospective pilot cohort study Open access...
  4. Andy

    The Association of Emotion Regulation and Somatic Symptoms 2024 Petzke and Witthöft

    Abstract Objective People with functional somatic symptoms have difficulties in various stages of the emotion regulation (ER) process (1). As an adaptive and flexible use of ER strategies is a core tenet of emotional health, having difficulties in this area is often assumed to be the key...
  5. Andy

    A case series of post-infectious chikungunya myeloradiculoneuropathy 2024 Selvam et al

    Abstract Chikungunya fever is an arboviral illness caused by chikungunya virus (CHIKV) and transmitted by the bite of Aedes aegypti and Aedes albopictus. It is an RNA virus belonging to the genus Alphavirus and family Togaviridae. We present a case series of three patients with chikungunya...
  6. Andy

    Type I interferons induce an epigenetically distinct memory B cell subset in chronic viral infection 2024 Cooper et al

    Highlights scATAC-seq and scRNA-seq reveal expansion of an MBC subset in chronic LCMV infection A distinct chronic MBC subset is associated with increased IFN-I-associated ISG signature The chromatin landscape of MBCs is established during a critical window early in infection IFN-I dynamics...
  7. Andy

    Perceived misdiagnosis of psychiatric conditions in autistic adults 2024 Kentrou et al

    "Perceived misdiagnoses When entering the register, participants were asked if they had received any additional psychiatric diagnoses in the past, before receiving a diagnosis of autism (“Have you received any other (psychiatric) diagnose(s) in the past before receiving your diagnosis within...
  8. Andy

    Perceived misdiagnosis of psychiatric conditions in autistic adults 2024 Kentrou et al

    Summary Background Many autistic people, particularly women, do not receive an autism diagnosis until adulthood, delaying their access to timely support and clinical care. One possible explanation is that autistic traits may initially be misinterpreted as symptoms of other psychiatric...
  9. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Current total is 10,626 https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  10. Andy

    Editorial: A special issue of The BMJ, led by patients [welcomes proposals for patient led articles, deadline 30th April 2024]

    "we wish to ... identify the barriers that are holding us back from realising the full value of patient and public partnership in healthcare" Such as only giving 21 days notice of a deadline for proposals?
  11. Andy

    Editorial: A special issue of The BMJ, led by patients [welcomes proposals for patient led articles, deadline 30th April 2024]

    "A special issue To mark 10 years of commitment to patient partnership and over 20 years since our first patient theme issue, we will publish a special issue of The BMJ led by patients on 13 July 2024. We expect that most of the content will be written by patients or led by their views...
  12. Andy

    Review Recent advances in understanding the neurobiology of pediatric functional neurological disorder 2024 Kozlowska and Scher

    ABSTRACT Introduction Functional neurological disorder (FND) is a neuropsychiatric disorder that manifests in a broad array of functional motor, sensory, or cognitive symptoms, which arise from complex interactions between brain, mind, body, and context. Children with FND make up 10%–20% of...
  13. Andy

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    Introduction The classification of the so-called “functional” psychiatric disorders has long been debated. Diagnostic and Statistical Manual of Mental Disorders, fourth edition (DSM-IV; 1994) retained the “somatoform” psychological-primacy concept but had poorly devised subdivisions with...
  14. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 1st April. Facebook: https://www.facebook.com/sci4me/posts/pfbid0acxNpGXucCKKiGXnvnJQW3pacwHbBXxV9uPZ14sMunrNpHQMYgfsA4bqz8hLkVdTl Mastodon: https://med-mastodon.com/@s4me/112234932500952686
  15. Andy

    Automated microscopic measurement of fibrinaloid microclots and their degradation by nattokinase, the main natto protease 2024 Grixti, Pretorius et al

    Abstract Nattokinase, from the Japanese fermented food natto, is a protease with fibrinolytic activity that can thus degrade conventional blood clots. In some cases, however, including in Long COVID, fibrinogen can polymerise into an anomalous amyloid form to create clots that are resistant to...
  16. Andy

    Higher level of physical activity reduces mental and neurological symptoms during and 2 years after COVID-19 infection in young women, 2024, Takács et

    Trial By Error: My Letter to Scientific Reports about New Study of Physical Activity and Long Covid "The other day I posted a blog about yet another problematic Long Covid study published by a major journal. The study concluded that physical activity (PA) can “reduce” symptoms in young women...
  17. Andy

    Protocol Personalised Exercise-Rehabilitation FOR people with Multiple long-term conditions (PERFORM): protocol for a randomised feasibility trial 2024 Simpson

    '‘Health and Well-being’ self-care support sessions aim to support self-management of common symptoms and risk factors and to enhance self-management skills, including problem-solving, planning, self-monitoring and cognitive adaptation. The list of core sessions that will be delivered to...
  18. Andy

    Protocol Personalised Exercise-Rehabilitation FOR people with Multiple long-term conditions (PERFORM): protocol for a randomised feasibility trial 2024 Simpson

    Abstract Introduction Personalised Exercise-Rehabilitation FOR people with Multiple long-term conditions (PERFORM) is a research programme that seeks to develop and evaluate a comprehensive exercise-based rehabilitation intervention designed for people with multimorbidity, the presence of...
  19. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 1st April. Facebook: https://www.facebook.com/sci4me/posts/pfbid023oqeG7sYeyP5auijB3gZo9b3HmA49zZ6X2TE5mQhAJGnxG8LyTXCGvV7t4ia23ZEl Mastodon: https://med-mastodon.com/@s4me/112229108518479720
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