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  1. Andy

    Opinion Learning points about myalgic encephalitis/chronic fatigue syndrome: Bridging the gap between research, clinical practice & awareness, 2024,Wahi-Singh

    Encephalitis is inflammation of the brain Encephalomyelitis is inflammation of the brain and spinal cord. Myalgic is muscle pain. Of the eight references that the author quotes, five use "myalgic encephalomyelitis" and the other three do not expand on ME. None use "myalgic encephalitis". Am...
  2. Andy

    Diverse immunological dysregulation, chronic inflammation, and impaired erythropoiesis in long COVID patients with chronic fatigue syndrome, 2024

    "All participants were evaluated for the presence of criteria related to ME/CFS based on the DSQ; namely: fatigue (I), post-exertional malaise (II), sleep difficulties (III), pain (IV), neurological/cognitive manifestations (V), and other (VI) which included autonomic, neuroendocrine, and immune...
  3. Andy

    Diverse immunological dysregulation, chronic inflammation, and impaired erythropoiesis in long COVID patients with chronic fatigue syndrome, 2024

    Not sure I agree from the description they give. "The second cohort consisted of 34 LC patients with ME/CFS (median age 48 ± 9.8, 25 females and 9 males) and 34 patients recovered (median age 45 ± 11.39, 24 females and 10 males) from SARS-CoV-2 infection without any long-term symptoms per se...
  4. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 20th May Facebook: https://www.facebook.com/sci4me/posts/pfbid0E2fKkBL8XYRDZTEs7xZMQPi88ny4VPp6bv51DRqdLthk2FGCz8hsbPuaMsoXizkgl Mastodon: https://med-mastodon.com/@s4me/112511986896956087
  5. Andy

    David Tuller Crowdfunding starts May 1st 2024

    $49,120 raised, 75% of total. 5 days left. https://crowdfund.berkeley.edu/project/42302
  6. Andy

    The familial amyotrophic lateral sclerosis-associated A4V SOD1 mutant is not able to regulate aerobic glycolysis 2024 de Holanda Paranhos et al

    Highlights ALS-linked A4V SOD1 mutant is not able to regulate aerobic glycolysis as WT SOD1. PDH activity and E1α phosphorylation are impaired in A4V human SOD1 cells. A4V mutation reduces SOD1 activity and impacts glucose consumption rate. Abstract Under certain stress conditions...
  7. Andy

    Whole-Body Photobiomodulation Therapy Propels the Fibromyalgia Patient into the Recomposition Phase: A Reflexive Thematic Analysis 2024 Fitzmaurice+

    Abstract Background: Recent evidence has identified great promise for the novel whole-body photobiomodulation therapy (PBMT) for individuals with fibromyalgia (FM). However, currently no evidence has documented the experiences of participants. The objective of this study was to qualitatively...
  8. Andy

    The Association of Central Sensitisation with Depression, Anxiety, and Somatic Symptoms: A Cross-Sectional Study of... 2024 Takeuchi et al

    Full title: The Association of Central Sensitisation with Depression, Anxiety, and Somatic Symptoms: A Cross-Sectional Study of a Mental Health Outpatient Clinic in Japan Abstract For patients with chronic pain and persistent physical symptoms, understanding the mechanism of central...
  9. Andy

    Review Inflammatory Markers in Children and Adolescents with Functional Somatic Disorders: A Systematic Review 2024 Hansen et al

    Abstract Functional somatic disorders (FSDs) are common in children and adolescents. Recent findings suggest that low-grade inflammation has a role in the development and maintenance of pediatric FSDs. This systematic review included studies with original data on systemic inflammatory markers...
  10. Andy

    Joint hypermobility in functional neurological disorder: A cross-sectional study 2024 Chen et al

    Highlights Joint Hypermobility was found in almost three quarters of people with FND surveyed. Joint Hypermobility was a stronger predictor of FND than depression or anxiety. Joint Hypermobility moderated the contribution of anxiety to the risk of FND. Abstract Background Functional...
  11. Andy

    The Effect of Physiotherapy on Dyspnea, Muscle Strength and Functional Status in Patients with Long COVID Syndrome 2024 Michalas et al

    Abstract Background: Patients who were infected with COVID-19 may experience Long COVID syndrome. We examined the effectiveness of physiotherapy on dyspnea, muscle strength, and functional status in Long COVID syndrome. Methods: The exercise group underwent an 8-week supervised...
  12. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 20th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid02kXD2YVL5SCNdQpLuvQwqc3dem4fhZ3f2a1zoPqijPspfowwFsRg2Pv6mTDZu76w6l Mastodon: https://med-mastodon.com/@s4me/112506967908292801
  13. Andy

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    Trial By Error: BBC Takes on Lightning Process and Highlights Perspectives of the So-Called “Anti-Recovery Activists” With the advent of Long Covid, LP practitioners began to claim that they could cure this emerging condition as well. Just like the claims about ME/CFS, this one is not supported...
  14. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Experience: ‘I woke up with a Welsh accent’ "I kept my Kent accent through my adult life. Then in 2022, I developed functional neurological disorder (FND), a condition that disrupts how the brain communicates with the body. It caused mobility issues and seizures, but I would also sometimes...
  15. Andy

    Lessons learned in implementing a multidisciplinary long COVID clinic 2024 Palacio, Klimas et al

    Abstract The diagnosis and treatment of long COVID patients is challenging. Our aim is to share lessons learned using a multidisciplinary approach within the Veterans Affairs system. Our long COVID clinic is based in primary care but has imbedded rehabilitations specialists, nutrition. whole...
  16. Andy

    Psychological Therapy for [FND]: Examining Impact on Dissociation, Psychological Distress and General Functioning 2024 Esteban-Serna, Pick, Cope et al

    Full title: Psychological Therapy for Functional Neurological Disorder: Examining Impact on Dissociation, Psychological Distress and General Functioning ABSTRACT Functional neurological disorder (FND) represents a broad group of motor and sensory clinical symptoms which cannot be explained by...
  17. Andy

    Review How do I manage functional visual loss 2024 Stone et al

    Abstract Functional visual loss is a subtype of functional neurological disorder (FND) and is a common cause of visual impairment seen in both general and neuro-ophthalmological practice. Ophthalmologists can generally diagnose functional visual loss reasonably confidently but often find it...
  18. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Following the announcement of the UK's General Election yesterday, AfME have posted an update, which includes, "From Friday [24th May], Carol Monaghan, Chair of the APPG and the Inquiry Panel, will no longer be an MP as will be the case for the other Panel members; APPGs also cease to exist...
  19. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Currently 10,906 signatures, https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
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