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Background: In addition to the morbidity and mortality associated with acute infection, COVID-19 has been associated with persistent symptoms (>30 days), often referred to as Long COVID (LC). LC symptoms often cluster into phenotypes, resembling conditions such as fibromyalgia, postural...

In case it is useful. "A total of 14,789 (86.6%) participants met CCC and/or IOM/NAM criteria" Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

All that is reported in the case report takes place less than one full year from the subject's confirmed Covid infection, so nothing to suggest that this person might not have recovered naturally without taking random drugs.

"In response to increasing requests for advocacy support from people with ME/CFS in hospital, including those more severely affected, The 25% ME Group, Action for M.E., Blue Ribbon for the Awareness of ME and the ME Association have co-produced a new resource. Supporting people with ME/CFS in...

Twitter thread from Dr Mark Faghy from Derby University starts here Selected quotes from thread "The third speaker spoke about clinical screening and determination of #LongCOVID, suggesting that treatment approaches should be compartmentalised to target symptom domains... here were some of...

DESCRIPTION The emergency phase of the federal COVID-19 response ended in May 2023, but concerns remain about health impacts from post-COVID conditions, or long COVID. According to CDC, in Spring 2023, 4.6% of US adults reported activity limitations from long COVID symptoms, suggesting that...

Blog previously posted here, Blog: The Science Bit by Brian Hughes

$65,450 raised, target reached!

Abstract We report the case of a 7-year-old boy who presented with post-viral myositis, rhabdomyolysis, and hepatitis, who was later readmitted due to a seizure-like activity and ultimately found to have episodes of recalcitrant polymorphic ventricular tachycardia secondary to simultaneous QT...

Also see People from ethnic minorities seeking help for Long Covid: a qualitative study 2024 Smyth, Chew-Graham et al

The irony of Chew-Graham publishing something that includes, "Empathy, validation of experiences, and fairness in recognition and support of healthcare needs are required to restore trust in healthcare." shouldn't be lost.

Background: People from ethnic minority groups are disproportionately affected by COVID-19, are less likely to access primary healthcare and report dissatisfaction with healthcare. Whilst the prevalence of Long Covid in ethnic minority groups is unclear, these groups are under-represented in...

A new toolkit designed to help enhance research into Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) through funding has been made available for download with the support of the Chief Scientist Office (CSO) After the establishment of a UK Clinical Research Collaboration (UKCRC)...

Abstract Introduction Fatigue is prevalent across a wide range of medical conditions and can be debilitating and distressing. It is likely that fatigue is experienced differently according to the underlying aetiology, but this is poorly understood. Digital health technologies present a...

Abstract The severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is the causative agent of the highly contagious respiratory disease Corona Virus Disease 2019 (COVID-19) that may lead to various neurological and psychological disorders that can be acute, lasting days to weeks or months...

Yep. Work being done here in the UK has shown that as well. "White individuals were approximately 5-fold more likely to be diagnosed with ME/CFS than others; black, Asian or Chinese ethnicities are associated with particularly low rates of ME/CFS diagnoses. This ethnicity bias is stronger than...

With the next General Election taking place on Thurs 4th July, the updated information from the Electoral Commission is that "The deadline to apply for a postal vote in the Parliamentary general election is 5pm on Wednesday 19 June. You must also be registered to vote by 11:59pm on Tuesday 18...

Abstract Introduction Illness perception refers to patients’ subjective representations and appraisals of somatic and mental symptoms. These are relevant for self-management and outcome. In clinical practice, patients with functional neurological disorder (FND) often encounter a fragmented...

"The FND of movement and sensation has a prevalence of roughly 50 per 100 000 population and an incidence of 4–12 per 100 000 population per year. FS contributes a further 1.5–4.9 per 100 000 population per year, with a prevalence of 2–33 per 100 000 population.5 Patients with FND make up 9% of...

Abstract Introduction Functional neurological disorder (FND) is a common cause of referral to neurology services. FND has been shown to lead to significant healthcare resource use and is associated with significant disability, comorbidity and distress. This leads to substantial direct...