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See also Stigmatisation in medical encounters for persistent physical symptoms/functional disorders: scoping review and thematic synthesis, 2024, Treufeldt Persistent somatic symptom related stigmatisation by healthcare professionals: A systematic review... 2023 McGhie-Fraser et al

Highlights In consultations for PPS/FDs, stigmatisation can occur in various ways in the communication process. Current models do not accurately reflect the patients’ experiences of stigmatisation in their consultations for PPS/FDs. New way to understand and categorise common forms of...

The question I would ask MEAction is why they feel making this claim, "In the UK, there are an estimated 700,000 to 1.2 million people with ME", is useful.

News in Brief posts for w/c 3rd June. Facebook: https://www.facebook.com/sci4me/posts/pfbid0511JA9cQRxmnPSpe9kCkM8XDFaQv661iLFHcTKngvu4GmMJhFKA5Atg5ypu7DFv4l Mastodon: https://med-mastodon.com/@s4me/112586115458574898

I've seen on Twitter that apparently the ME Association have highlighted this study in their weekly email newsletter. This is the listing on the Be Part of Research website, https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=11083&location=&distance=, where the contact is...

Highlights C. albicans depletes sorbitol in gnotobiotic mice and needs oxygen to catabolize it E. coli requires oxygen respiration to limit a post-antibiotic C. albicans bloom Depletion of Clostridia by antibiotics disrupts anaerobiosis to boost Candida growth 5-ASA restores epithelial...

Background Many Ebola virus disease (EVD) survivors have reported somatic and neuropsychological symptoms after discharge from the Ebola Treatment Unit (ETU). Since the 2014–2016 Ebola epidemic in West Africa, various studies have investigated and identified these symptoms. Evidence on somatic...

Being paywalled, I am unable to determine how "chronic fatigue syndrome" was specified. Given that they then refer only to chronic fatigue in the later part of the abstract I doubt they used any criteria that screened for PEM.

Abstract Objective This study aimed to evaluate the effect of Astragalus root extract on nurses suffering from post-COVID-19 chronic fatigue syndrome. Materials and methods The study was designed as a triple-blind, randomised, controlled trial in Iran in 2023. 64 chronic fatigue syndrome...

My suspicion was correct, the Genetics Delivery Team confirm that DecodeME will "perform a genome-wide association study (GWAS) which covers both coding and non-coding regions of the genome (the later representing more 98% of the genome) rather than looking at specific regions. Actually, the...

Now at 11,111 signatures. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

My opinion is that if the acronym ME/CFS is going to be used, which I personally favour, then it should be written as, "ME/CFS Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), sometimes referred to as myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS) is a serious and...

Simple answer is I don't know if we will or won't. I suspect that as we are looking across the whole genome, some of our results will come from what are currently considered to be non-coding regions, but I have asked the question of the team, and will come back with an informed answer.

https://www.s4me.info/threads/blog-the-science-bit-by-brian-hughes.17272/

Thanks to Solve for promoting the petition on social media. Facebook: https://www.facebook.com/SolveMECFSInitiative/posts/pfbid0Te37stELrfYaGZUyFK2XqNwrmpLxrJSBR7DzSHC63PoBoFdEnUV7B3pGkE28d4szl

Those who have signed the pledge can be found here, https://europeanmecoalition.com/the-me-cfs-pledge-for-the-european-elections/#list-of-signees

Articles: Bowel disease breakthrough as researchers make ‘holy grail’ discovery https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway Major cause of inflammatory bowel disease found https://www.bbc.co.uk/news/articles/c1wwdd6v2wjo

Abstract Increasing rates of autoimmune and inflammatory disease present a burgeoning threat to human health1. This is compounded by the limited efficacy of available treatments1 and high failure rates during drug development2, highlighting an urgent need to better understand disease...

Now published, Integrated care model for patients with functional somatic symptom disorder – a co-produced stakeholder exploration with recommendations for best practice, open access, https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-024-11130-9

"Guidelines were excluded if they related to LTCs resulting from accident or injury, rather than disease, mental health conditions or developmental disorders. Guidelines relating to cancer were excluded because a systematic review of clinical guidelines for the management of cancer-related...