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  1. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 28th Oct. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid02QEzkbjYg9xsHxemavTepL4gTirA8HmBwbVjjDsQjLPRy8qavce3dsKRxLrkBhHLjl Mastodon: https://med-mastodon.com/@s4me/113418513221563582 Bluesky...
  2. Andy

    Is “inability to recover and improve from exercise” a core component of ME/CFS? How common is it?

    Definitions are important here, I think. If by exercise you mean any activity that takes me beyond my sustainable exertion limit then, to answer the poll question, I might have very short term temporary benefit from it but very soon I will no longer gain any benefit and start to deteriorate. If...
  3. Andy

    Patient and public involvement and engagement: Do we need an ‘ethical anchor’? 2024 Suri et al

    Abstract Background Working alongside patients and the public to shape and engage with research, Patient and Public Involvement and Engagement (PPIE), facilitates more impactful research outcomes. The UK Standards for Public Involvement provides a framework for conducting PPIE; however, they...
  4. Andy

    Comparison of [CBT] versus activity management, both delivered remotely, to treat paediatric [CFS/ME]: the UK FITNET-NHS RCT 2024 Metcalfe et al

    Full title: Comparison of cognitive behaviour therapy versus activity management, both delivered remotely, to treat paediatric chronic fatigue syndrome/myalgic encephalomyelitis: the UK FITNET-NHS RCT Authors: Esther Crawley, Emma Anderson, Madeleine Cochrane, Beverly A Shirkey, Roxanne...
  5. Andy

    Review Sport and exercise therapy for burnout and fatigue – a narrative review 2024 Gerland and Baumann

    Abstract Burnout and fatigue have overlaps in their symptoms. The common denominator is exhaustion. Physical activity has been shown to be a risk-reducing factor for the development or manifestation of symptoms. There is also evidence of an effect of physical activity in the acute phase...
  6. Andy

    Two-Day Cardiopulmonary Exercise Testing in Long COVID Post-Exertional Malaise Diagnosis, 2024, Gattoni

    Or perhaps this shows that the mDSQ is poor at defining PEM. Dead, heavy feeling after starting to exercise. Next day soreness or fatigue after non-strenuous, everyday activities. Mentally tired after the slightest effort. Minimum exercise makes you physically tired. Physically drained or sick...
  7. Andy

    Rituximab Is Ineffective for Treatment of Fatigue in Primary Biliary Cholangitis: A Phase 2 Randomized Controlled Trial 2019 Khanna et al

    Not sure if you missed it but this was from 2019, so may not represent what she is currently working on.
  8. Andy

    Rituximab Is Ineffective for Treatment of Fatigue in Primary Biliary Cholangitis: A Phase 2 Randomized Controlled Trial 2019 Khanna et al

    Abstract Primary biliary cholangitis (PBC) is a chronic cholestatic liver disease. Half of patients experience debilitating fatigue, which is currently untreatable. Previous studies have shown muscle bioenergetic abnormalities in PBC, including increased muscle acidosis with exercise linked to...
  9. Andy

    Editorial: Reconsidering Persistent Somatic Symptoms: A Transdiagnostic and Transsymptomatic Approach 2024 Löwe et al

    Introduction Regardless of cause, persistent somatic symptoms (synonymous with persistent physical symptoms) are distressing somatic complaints, which are present on most days for at least several months [1]. The term “persistent somatic symptoms” is therefore not linked to a specific cause of...
  10. Andy

    Crowdfunding for David Tuller starts October 1st 2024

    The best way to notify the moderator team of any request is to use the "Contact moderators" button at the bottom of any relevant post and make your request in the dialog box that comes up. This way, if Trish or Hutan are not available, then any of the team can look at it.
  11. Andy

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Existing threads, https://www.s4me.info/threads/are-you-sensitive-to-alcohol.5964/ https://www.s4me.info/threads/are-you-sensitive-to-alcohol-the-poll.5975/
  12. Andy

    Pilot study of a parent-based intervention for functional somatic symptoms in children 2024 Etkin et al

    From https://www.spacetreatment.net/ "What happens in SPACE treatment? Parents who participate in SPACE will learn skills and tools to help their child overcome anxiety, OCD or related problems. The treatment focuses on changes that parents can make to their own behavior, they do not need to...
  13. Andy

    Pilot study of a parent-based intervention for functional somatic symptoms in children 2024 Etkin et al

    Abstract Objective Functional somatic symptoms are associated with significant distress and impairment for children and their families. Despite the central role that families play in their children’s care, there is little clinical research to guide how parents can support their children with...
  14. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 21st Oct. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid0LnGQRomNNHRsuv6rQwfxtqzoh1yrLRbQBbyBVEpDV8Aoc3tUamS2qaUwHgQbw48Ql Mastodon: https://med-mastodon.com/@s4me/113384395423203990 Bluesky...
  15. Andy

    Trust, belief and transitions: people’s experiences of multidisciplinary inpatient treatment for persistent physical symptoms 2024 Lewis et al

    Abstract Purpose People with Persistent Physical Symptoms experience physical symptoms that are not wholly explained by a medical disorder or disease. Multidisciplinary treatment is recommended for people with severe difficulties and is provided in a small number of specialist centres in the...
  16. Andy

    The substantial role of sleep, stress and physical activity in persistent high levels of fatigue in patients with [IBD]... 2024 Bredero et al

    Full title: The substantial role of sleep, stress and physical activity in persistent high levels of fatigue in patients with inflammatory bowel disease: A longitudinal trajectory study Abstract Background and Aims Fatigue is a common and burdensome problem for patients with inflammatory...
  17. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 21st Oct. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid0377qNzLL9aJcT7JznqLertN81xd5TFp9VpC5Afn8vnjX3hBXnHCsrGvyZfAtahmNil Mastodon: https://med-mastodon.com/@s4me/113378774714167329 Bluesky...
  18. Andy

    Functional disabilities and adverse well-being by COVID-19 and Long COVID history and employment status:... 2024 Silver et al

    Full title: Functional disabilities and adverse well-being by COVID-19 and Long COVID history and employment status: 2022 Behavioral Risk Factor Surveillance System Abstract Background Long COVID can lead to functional disabilities and decreased well-being and limit the ability to work. No...
  19. Andy

    Chronic Rheumatologic Disease in Chikungunya Virus Fever: Results from a Cohort Study Conducted in Piedecuesta, Colombia 2024 Lozano-Parra et al

    Abstract This study aimed to determine the incidence of post-chikungunya chronic rheumatism (pCHIK-CR) and its impact on quality of life (QoL) and chronic fatigue in adults seven years after the 2014–2015 CHIKV outbreak in Piedecuesta, Colombia. We evaluated 78 adults (median age: 30 years...
  20. Andy

    Diagnostic classification systems for disorders of gut-brain interaction should include psychological symptoms 2024 Jones et al

    Abstract Background and Aims The group of disorders known as Disorders of Gut Brain Interaction (DGBI) were originally labeled functional GI disorders and were thought to be disorders of the gastrointestinal tract that had several psychological conditions as comorbidities. Despite mounting...
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