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And what are these randomized clinical trials (plural) he's talking about? In his recent essay on FND past/present/future, he noted that only one big RCT--the CODES study--has been done. And what is the promise it showed? Patients say they feel better after CBT even though there is no reduction...

What he has written there is basically saying, we know very little or nothing about any of this. And yet we're confident that FND exists and is about software despite obvious "hardware" changes, which we used to not think existed.

Exactly. In my posts about CODES, I called it post-hoc outcome-switching.

It could have been a garbled account of our aborted attempts six years ago, perhaps...

This sounds like hearsay to me and strikes me as highly, highly unlikely. I have been in touch with a BBC documentarian recently and if this happened, they knew nothing about it. It's also just almost impossible that journalists who made the program would sit still for this and not leak it to...

Right, Buchanan. I've just checked my e-mails, and it was indeed six years ago. I didn't remember that Jonathan had actually been interviewed after our meeting. Buchanan is still at BBC. So is Helene Daouphars, the French journalist working at BBC who initially contacted me. I'll write them and...

That makes it a bit more complicated, I think. The conflict of interest would be more apparent if it were an independent business than if it's part of their responsibilities as university employees. Hm.

what study is this? I haven't heard about it. Do you have a link?

Another thing that seems contradictory about the whole thing is that every article on diagnosis/management says how challenging it can be to diagnose. At the same time, they claim the purported rule-in clinical signs (Hoover's sign, entrainment, etc) are highly specific. If a test or sign is...

Brian's a great interviewee, but it's the journalist trying to push the story past the obstacles that needs the credentials and clout at a UK news organization. When I was a reporter at the SF Chronicle, for example, I could have pushed through a big package like that. My crowdfunding, however...

Jo, Willy Weir and I had a meeting at BBC after someone who worked there contacted me and was trying to push something through. I can't remember when it was, but I think a year or two before the pandemic--I thought it was later than 2017. The meeting included a doc-maker who'd worked on the...

Is NKCV a private entity or part of the university?

It also mentions his honoraria from UpToDate, where he wrote that the Scottish Neurological Symptom Study showed a prevalence of "conversion disorder" at 6% of outpatient neurology clinic visits, not 16%. He also mentions the null findings of the CBT study for non-epileptic seizures and uses...

And taste. I don't like zucchini soup. I do like zucchini bread, howver.

of course. they keep repeating the same bullshit

Hm. They might insist they are including them in another study or something. Maybe they'll do three CBT long covid trials, call them all a success, then publish all three sets of null actigraphy findings together a few years later while explaining how they're not a good measure because they...

More than a pity. It is research misconduct.

Wow, thanks!

Interestingly, they now claim in their response that there was no difference in the actigraphy results. Has anyone ever seen a response in correspondence that cites data deliberately left out of the actual study? ADD: And isn't it research misconduct to fail to report results that do not support...

can someone figure out how to make the thread into a text block without me having to cut-and-paste each tweet? I don't know how to do this