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    USA: Mount Sinai PACS clinic and Dr David Putrino

    Andy, did you read that as him suggesting PEM was a sign of FND? In my view, he was saying there that FND people interpret basically every symptom and manifestation of fatigue, dizziness, etc. as a sign of FND, as in: "People have relapses after minimal exertion? Must be a positive clinical sign...
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    Post-Traumatic Stress Disorder and Complex Post-Traumatic Stress Disorder in people with long COVID, ME/CFS, and controls 2023 Sanal-Hayes et al

    I assume that was supposed to be 16 months--at least, I hope so! but I haven't heard of complex PTSD before.
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    apparently they submitted their response on Oct 1st, submitted a revision in November, and it is awaiting a final editorial response:
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    Science: The New England Journal of Medicine kicks off a historical series looking at its troubled past

    Yes, this is standard. Many or most publications capitalize Black when it refers to racial/ethnic issues. White is not capitalized.
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I assume this is the case. but they should publish their response as a pre-print to get it out there.
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    News from The Netherlands

    I think the full results will be out next month.
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    I used to but I've learned that getting worried is pointless and then wasted when it actually works out!
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Luckily, that choice was ultimately rejected.
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    Post-Acute Sequelae of COVID-19 (PASC) in Pediatrics: Factors That Impact Symptom Severity and Referral to Treatment, 2023, Soprano et al

    I saw that sentence and it sort of came out of nowhere. They hadn't justified that in any way.
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    Illness-Promoting Psychological Processes in Children and Adolescents with Functional Neurological Disorder 2023 Kozlowska et al

    I thought pushing difficult thoughts and feelings out of your mind was supposed to be a positive thing in the context of "functional" illnesses, since negative thoughts/feelings are considered to reinforce the catastrophic thinking. But here they consider pushing negative thoughts/feelings away...
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    UK: Recruiting: Inflammation and brain function in Functional Neurological Disorder: implications for diagnosis and treatment: Study 1

    In her TED talk, she also repeats the claim that FND is the #2 diagnosis at neurology clinics--as I have shown, this is a complete exaggeration based on a mis-reading of a 2010 paper.
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    Preprint Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms & Patient Experiences After Covid-19 Immunization, 2023, Krumholz, Iwasaki +

    If there are a lot of anecdotal reports, as happens in this sort of reporting system, it's worth reviewing what they say and then perhaps conducting a systematic look to find out if there's any reality to the phenomenon. I understand the point about not touting it on social media and agree it...
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    Preprint Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms & Patient Experiences After Covid-19 Immunization, 2023, Krumholz, Iwasaki +

    I haven't read the study but to me it's clear it involves descriptive data based solely on self-reported symptoms. As you suggest, that data can be useful. I agree that the final statement takes it for granted that the data "prove" the phenomenon is a real thing. I would say the data suggest...
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    Long Covid in the media and social media 2023

    I wondered that as well. How do you improve prognosis if there's no research on what's causing the symptoms.
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