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Just wondering if anyone else has or is experiencing this. I have only noticed this in the last year or so and it comes and goes, so it is not there all the time. I do notice it about 2-3 times a week though. It's a strange feeling, it's like a patch of numbness around and just below the web...

In regards to GP visits leading up to diagnosis of ME for gradual ME patients I wonder how many patients had severe cognitive symptoms as the most obvious symptom in the early mild years. I had significant change cognitively at my mild onset and in the background I was noticing something wrong...

Yes. In my mild ME years I didn't know I had ME but was getting symptoms of ME. I noticed I was not handling stress at work. Before my mild onset I handled stress at work. It got to the stage in my mild years I could no longer deal with the stress so left my job. I was offered other positions...

My brother was having Hep C interferon treatment at the very time of my severe ME onset, same year. His exhaustion sounded similar to mine. I had full-blown ME (in a huge and overwhelming immunological storm) that would not dissipate. It took a good two years for that immunological storm to...

@InitialConditions When I joined the forums years ago I deteriorated and could hardly put a sentence together. If I want to post in a thread that requires a lot more thought I won't read all the posts beforehand. If I did I would be too mentally exhausted to get my thoughts together. Scrolling...

I'm pretty good with too - to, but lately have had to question whether I did use them correctly. A few years ago I completely lost the recognition of bear as in bear a load. All I could see was the animal (bear) whenever I read the word bear. Recognition still hasn't come back completely but...

I saw Dr Vallings 10 months after my severe ME onset. I was so ill I could barely sit in the chair and talk to her. I handed a list of my symptoms over to her. It had taken me a hour to get to her and I burst into tears while with her. I was so so ill. She diagnosed me with ME and I was so...

I don't get blood tests that often but when I do I prefer they take it from my right arm. For some reason it is more painful on my left arm so always ask if they can take blood from my right arm. I haven't had any other problems other than that though.

@JaimeS I have to take extra care in the winter months. Something I came to notice some years into my ME was that my ME would deteriorate when the temperature dropped to 13C/55F and below. I'd love to live somewhere where I never have experience anything under 13C again! So, I let things go in...

Could we have a list and a link to the donation pages for ME research for easier referral. Thank you.

Beautiful little girl @Mike Harley Congratulations to you and your wife. Thanks for sharing.

Hi @Sid :hug: I'm about to take a break from the forum for a while. I'm so glad I caught your post. I often think about the MEs with gut problems and whether they experienced the same altered composition in microbiome which made them vulnerable to getting ME, like me. My changes were vaginally...

I experienced a permanent change in microbiome after an infection. Not the intestine though. I am pretty certain it was the pessary antibiotic that was used at that time. I was never the same again. This was back in the 80s. I tried to get answers from doctors at the time but realised they knew...

Last summer I found placing a cold pack at my lower back really helpful. I was able to move around without feeling like I was going to collapse or faint from over heating. I've always had an unusual heat with my ME. I'm not comfortable with a cold pack on my neck but found my lower back was...

I've caught a lot colds in the doctors waiting room. If your getting a flu shot you might want to wear a mask in the waiting room. Otherwise you could catch the flu while waiting for the flu vaccination.

Firmicutes in my nose sample were 45.49%.

@EzzieD I had the same bacteria Vagococcus at 7.4% as you in the throat swab results. Everything else was different to yours. Did anyone else have Vagococcus? I had it in my nose swab as well at 1.0%

If there are other members who would like to compare but privately as a group let me know by PEM (PM)!

Who do we go to to find out what these results might mean? I have an ENT appointment coming up next week. I'll take my nose and throat results to him/her to begin with. I finally got my throat swab result back too. Mine were quite different to yours. I'll try and get mine up or will PM you mine...

@JaimeS I get the throat problems too, too exhausted to talk, hoarse. I notice an usual taste in my mouth with severer PEMs. With very severe PEM I get very weak, insomnia, no appetite, I retch and vomit and get diarrhoea. This is what reminds me of chemotherapy, it feels like some kind of...