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I do think there needs to be more research into the safety of vaccines, which may help to make them even more safer.

I agree. Really important children have all vaccinations. It saves lives. And leniency for those children who have illnesses that might not cope with vaccination. A lot of us might not be alive today if it weren't for the childhood vaccinations.

Yes, that is me too. So much going on in this illness.

Does relapse/remit mean free of all symptoms and able to function normally at healthy level? If so, I have not experienced that. I am never free of ME. I may have days where I can feel near normal but it really isn't normal because I get PEM and I am resting all afternoon and evening to keep...

I will be donating in 2 weeks time and might be able to donate again 2 weeks after this.

@Wonko I am staring to likle this uncorrected typingm, i might jsut kep it dor this thread :woot: @Alvin Lol, I'll never forget going out with a friend who also has ME. Her and I were a lot sicker than we are now. One particular day we both needed to get out for our own sanity but we were...

To this day I still cannot write my full signature. It's shortened by half. I cannot keep the flow going. It began at my mild ME onset. I was still working and I noticed the change when writing my signature on my timesheet. I have to miss out about 4 letters of my last name. This was one of the...

I don't know @Skycloud I was just trying to think which specialty/system it would fit into.

So interesting. I did a basic course for a few years on Human Anatomy and Physiology well over 20 years ago and have forgotten a lot of what I learned about all the systems in the body. I was just thinking about which system of the body you would put the microbiome in. I thought the...

I agree, faecal transplants, to me, are more topical and will wash away because whatever produces the microbiome composition in the intestines will just keep pumping out an altered composition and the walls will keep returning to the altered state. We need to find out what is going on in the...

I'd appreciate that so much Marco. Honestly with the cognitive problems I have I find all the options so hard to figure out with the e-cigs. I will PM you in the next few days. I have a bit of vertigo at the moment and as soon as that eases up I will message you.

Congrats @Marco If it hadn't been for the pain I experienced I would have switched over as well. It's the best thing we have ever had to quit and we need it to remain an option. Here in NZ they have been talking about making us smokefree by 2025 and yet they are now considering legalising...

I'll never forget a long train trip I did before I got sick with ME. Only 2 smoking stops on the 10 hour trip. I had withdrawals the majority of the journey. I dreaded the return trip. On the way home, about halfway, the train driver stopped the train to let everyone out to view and take...

I never felt any sense of sedation when I woke in the morning either. Yes, the ME is still there even with better sleep. I can't remember having sleep problems in my earlier onset years. Insomnia is more a severe PEM symptom for me.

@Snowdrop You may find melatonin will still work well at smaller dosage. I started out at 1mg and reduced to half then found a quarter still helped me to get off to sleep within a hour. I tried melatonin when my ME was at moderate level and felt no negative side affects that I can remember...

I think a separate poll.

@Ravn I can't bear rocking or any kind of movement like that. I caught a train to downtown a few weeks ago, it took just under 15 minutes to get there, the swaying was very unpleasant and I wouldn't want to do a longer trip.

I'd be interested to know what level of ME the sleep problems began. For me, I can't remember noticing sleep problems in the early years of ME onset. It was only when I reached severe/very severe.

Yes, same with me. Have you experienced the level where you start retching and being sick as if poisioned? The weakness is even worse with this, you can't eat even though your stomach is rumbling with hunger, also you get diarrhoea with it. I get this one with accumulated PEM. The last time I...

Same here with the wired and tired and gut becoming irritated. Insomnia is a sign of severe PEM for me. At it's worst I will not be able to sleep at all and will lie awake all night. I usually only have one or two nights like this now and then improve but in my severe years the insomnia was...