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So the professional bodies' representatives preferred to hide their names in a paywalled BMJ article. Anyone else was surprised that the RC of Paediatricians didn't sign the joint statement? Also, I thought it's interesting that, if I looked properly, of all the signatories the Royal College...

And a submission to the RIMS (Rehabilitation in MS) Annual Conference 2019 on motor fatigability Visual evaluation of gait pattern compared to Fatigue Index Kliniken Schmieder in terms of motor fatigability (Identification of fatigability by gait observation) 2019 1Kim-Charline Broscheid...

Parking another title on cognitive fatigability: Fatigue and fatigability in patients with multiple sclerosis before and after cognitive load versus relaxation – a pilot study (2021) S. E. Stoll, M. S. Gölz, D. Watolla, I. Bauer, V. Lunz, M. Metsch, P. Kath, A. Löser, S. Schwarz, A...

Forum thread here.

Still only able to skim --not sure if it's clear that there were two BMJ news articles, both published 29 October 2021: - the one Charles Shepard responded to (4 responses to date): "ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE"...

@Michiel Tack :thumbup: We had positive responses from patient groups. It's important to listen to those who have recovered.

Haven't read but perhaps interesting for the discussion? Largent EA, Peterson A, Lynch HF. FDA Drug Approval and the Ethics of Desperation. JAMA Intern Med. Published online October 25, 2021. doi:10.1001/jamainternmed.2021.6045...

Ganslev CA, Storebø OJ, Callesen HE, Ruddy R, Søgaard U. Psychosocial interventions for conversion and dissociative disorders in adults. Cochrane Database Syst Rev. 2020 Jul 17;7(7):CD005331. doi: 10.1002/14651858.CD005331.pub3. PMID: 32681745; PMCID: PMC7388313...

This was from the pull quote I think? At least I remember being reassured by the pull quote. Unfortunately, the pull quote now has the same ambiguous wording as the main text: "We are now confident that the guideline can be effectively implemented and we will discuss the input from the meeting...

https://www.nice.org.uk/news/articl...ps-for-publication-of-its-guideline-on-me-cfs NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic...

A second chapter could be added to Graham's paper about recently published papers on CBT not only for ME/CFS but also for other illnesses seen as functional disorders or 'MUS' occurring with 'established' chronic diseases. Some recent examples, all covered by David Tuller and various...

The same appears to apply to CBT, of course -- see this article by the late Graham: McPhee G. Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome. Journal of Health Psychology. 2017;22(9):1181-1186. doi:10.1177/1359105317707215...

Somehow this seems to have made it into the Swiss journal Paediatrica. Google translate of the article: https://www-paediatrieschweiz-ch.translate.goog/chronic-fatigue-syndrome-bei-kindern-und-jugendlichen-mehr-als-nur-muedigkeit/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=de&_x_tr_pto=nui About the...

Very interesting. Is it published somewhere? Would you mind to share the title?

Just posting these links to UK ME/CFS service surveys in case they contain anything useful with regard to questions about implementing the new NICE guideline: BACME’s National Services Workstream undertook a 2018 snapshot audit of the current provision of NHS CFS/ME services in the UK: BACME...

Once again, thank you for your important work, @dave30th . As one of the by-products of your crowdfunding, I particularly like the recap of your work and summaries of recent highlights. For 'reach out' it would be extremely helpful if you inserted links to your most relevant criticism of MUS...

The author replied to some questions on the forum: https://www.s4me.info/threads/uk-bath-understanding-how-people-living-with-myalgic-encephalomyelitis-chronic-fatigue-syndrome-utilise-data-from-emerging-sensing-technologies.11805/page-2#post-209974

Not sure now were I read some strikingly similar wording but think could be in this thread? From the Wikibooks' Textbook of Psychiatry, chapter on 'Somatoform Disorders': Pathogenesis "One issue around all medically unexplained syndromes is when do they become medically explained? Everyone...

I think her reply is interesting. Also interetsting that she didn't feel the need to reply again to your reply and Andrew Kewley's comment. Did you see she co-authored a comment in the Lancet on the NICE guideline on chronic pain after she had resigned from the committee for that guideline...

Just had a look at the paper and the authors, clicked on the "on behalf of the CODES study group" and now have to cope with being confronted with that number of members (in addition to the 17 authors) .... https://www.sciencedirect.com/science/article/pii/S2215036620301280#bfn2 Edited to...