I know it's not good but I thought being a bit ad hominem today could help me digest that some people still like to think the SMILE trial was a properly designed and conducted randomised controlled trial.
Corrected version of the trial paper:
https://adc.bmj.com/content/103/2/155
Editor's note on the corrections (2019):
https://adc.bmj.com/content/early/2019/07/11/archdischild-2017-313375ednote?fbclid=IwAR3-LBW7tdYPwycVC0p0ozmkjdT6bzMx9nz0XVrrfPk97Rp59e1vafba3P0
Archived version of the original...
Since I am not entirely sure about my ME diagnosis, I don't participate in these interesting ME polls anymore.
But I thought I let you know what I was wondering about in another thread:
Might motion sickness or nausea of pregnancy be comparable to some of the gastrointestinal issues pwME...
From the editor's note;
Would be interesting to see these reviews as well as the "further unpublished work" that "suggests [school attendance using school records] highly correlated with the self report measure we used" and "could have provided an objective outcome" if only we had the...
Just have enjoyed comparing the number of retweets and likes...
(8 retwets, 12 likes)
https://twitter.com/MedHums_BMJ/status/1133753380210450433
(21 retweets, 48 likes in 2 days)
https://twitter.com/MedHums_BMJ/status/1146720589413064704
(Didn't see a bmj medical humanities tweet on...
Even with somewhat interested and unerstanding doctors, also in clinics, I rather experienced that they didn't find such reviews helpful. And for the less understanding doctors reviews of this sort only reassured them that all 'proof' of biomedical etiology is unsound and exeggerated. In their...
Blog article now also published in The BMJ Opinion:
https://blogs.bmj.com/bmj/2019/06/20/hilda-bastian-should-we-trust-meta-analyses-with-meta-conflicts-of-interest/
Edited to add: It's an adapted version of the original blog article.
The blog itself was updated on April 29th to add...
New leaflet from EUROMENE about their work. Includes short info on 'What is ME?', diagnosis and prognosis.
http://www.euromene.eu/workinggroups/Euromene.pdf
http://www.euromene.eu/
Hm, interesting. If I unterstand correctly the same group previously found that people with MS related fatigue didn't benefit more from energy conservation management (ECM) compared to an 'information-only control condition'. (I couldn't find information in the abstract whether people benefited...
Thanks for the laugh, @Jonathan Edwards.
That to me appears to summarize pretty well how the proponents of the cognitive-behavioral approach to ME view the alleged benefits of LP.
Michael Sharpe on the SMILE trial: "This trial tests the effectiveness of a commercially available brief...
Thanks, @Snow Leopard . I changed "praised" to "defended", based on that quote:
"In sum, it is rather extraordinary for me to find myself in the position of defending a study that is not in my area and that claims to find a benefit from a pseudoscientific intervention. However, since you ask...
Thanks, @Woolie. It was meant ironically. I'm aware that she even praised defended the SMILE trial. http://www.virology.ws/2018/06/25/trial-by-error-my-exchange-with-professor-bishop/
Ungar, N., Rupprecht, F., Steindorf, K., Wiskemann, J., & Sieverding, M. (2019). Worse or even better than expected?—Outcome expectancies and behavioral experiences in the context of physical activity among cancer patients. Journal of Health Psychology. doi: 10.1177/1359105319832345...
Apologies for just popping in, but when I saw this tweet I thought maybe Dorothy Bishop wanted to write a commentary?
edited to add link: "Science has a problem. Here is how you can help..." http://backreaction.blogspot.com/2019/03/science-has-problem-here-is-how-you-can.html
Whenever I handed over to my doctors a summary of what German charities judged as relevant biomedical research on ME, since 2015 also the IOM report, most doctors understood that as evidence of me having unhelpful illness beliefs whereas one understanding neurologist advised me to not enclose...
In Germany, CFS is mostly treated as psychosomatic /somatoform disorder -- bad enough. But I don't know of any patients diagnosed with "CFS" that were treated with electroshock. It's not mentioned in any guideline on somatoform disorders or fatigue either.
Antidepressants are standard...
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