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  1. MSEsperanza

    Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B

    Sandler, C; Llloyd, A Barry, B (2016), Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome, Medicine & Science in Sports & Exercise: October 2016 - Volume 48 - Issue 10 - p 1875–1885 doi: 10.1249/MSS.0000000000000983 /...
  2. MSEsperanza

    The PACE trial video series by A Broken Battery

    Well, I was amazed at the video's succinctness... ;)
  3. MSEsperanza

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    https://twitter.com/ElahFeder/status/1155909816080093185
  4. MSEsperanza

    The PACE trial video series by A Broken Battery

    Thank you @Adam pwme . As listening to and watching videos for me is a much more demanding activity than reading, I am particularly grateful that you provide a transcript here as well as on youtube. Very much appreciated!
  5. MSEsperanza

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    A man called David Tuller just published an article on virology blog about this: http://www.virology.ws/2019/07/29/trial-by-error-more-get-drivel-from-australia/
  6. MSEsperanza

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    from: Tom Chivers, Does psychology have a conflict-of-interest problem? https://www.nature.com/articles/d41586-019-02041-5
  7. MSEsperanza

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Letters to the editor Letters for publication should be sent to these addresses. The sender’s full postal address and phone number are required, for verification only: Guardian: guardian.letters@theguardian.com Observer: observer.letters@observer.co.uk Corrections and clarifications of...
  8. MSEsperanza

    The HANDI Working Group

    Their interests: "A committment to promoting effective non-drug treatments" https://www.racgp.org.au/clinical-resources/clinical-guidelines/handbook-of-non-drug-interventions-(handi)/about-handi/what-is-the-handi-project The authors...
  9. MSEsperanza

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    There seems to be a problem with their evidence assessment system. GET was rated with the highest evidence level (NHMRC level of evidence I ) "The RAGCP currently use the NHMRC levels of evidence and in the future we will move to a GRADE process."...
  10. MSEsperanza

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    From the transcript (T. Chalder): Chalder did a trial with I. Marks and Wessely on cognitive behavior therapy for chronic fatigue syndrome (1997): https://www.ncbi.nlm.nih.gov/pubmed/9054791 see also...
  11. MSEsperanza

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    The corresponding author, P. Glasziou, is the co-author, together with the three principal investigators of the PACE trial, of the withdrawn Cochrane individual patient data review (protocol) on exercise therapy for CFS...
  12. MSEsperanza

    Objective assessment of diverse types of MS related fatigue and fatiguability

    I seem to have misrepresented the listed studies by only quoting the abstracts of the studies that used fMRI. Actually I find the earlier papers examining gait more relevant, see the papers I posted (again) here...
  13. MSEsperanza

    Motor Cortex Function in Fibromyalgia. De Tommaso et al (2019)

    Eleonora Gentile, Katia Ricci, Marianna Delussi, Filippo Brighina, and Marina de Tommaso, “Motor Cortex Function in Fibromyalgia: A Study by Functional Near-Infrared Spectroscopy,” Pain Research and Treatment, vol. 2019, https://doi.org/10.1155/2019/2623161...
  14. MSEsperanza

    The ME Patient Foundation

    I find this puzzling, too. I can't understand how endorsing Dr. Myhill and at the same time referring to EBM to criticize ME research could add up. Also, on the foundation's website, Dr. Myhill is listed in the category "Scientists involved in biomedical research" which to me seems to suggest...
  15. MSEsperanza

    The ME Patient Foundation

    https://twitter.com/mepfuk/status/1150718868400328704
  16. MSEsperanza

    Updates on Karina Hansen

    I think he isn't, it's just how Google translates Fredericia
  17. MSEsperanza

    Updates on Karina Hansen

    https://twitter.com/LeneCch/status/1148902391250608128 https://fredericiaavisen.dk/stig-gerdes-sidste-laegegerning/ Google translate: https://translate.google.com/translate?hl=de&sl=auto&tl=en&u=https://fredericiaavisen.dk/stig-gerdes-sidste-laegegerning/
  18. MSEsperanza

    [ME Association] Raising Awareness of Severe ME – A Call for Case Studies [deadline Weds 24th July]

    Thanks to the ME Association for doing this. Why not make this optional? Isn't it possible to report pwME's stories anonymized? I think being exposed on newspapers and social media with their real identity will unnecessarily stress people.
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