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  1. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    There seem to be two documents published on eInnsyn which we haven't seen yet (documents from 24.06.2019, published 08.08.2019) edited to add: Google translate of the title: "Complaint - Denial of access to document 12 and 13 in case 17/10566" So doesn't seem to be correspondence between...
  2. MSEsperanza

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Thank you, Jonathan, for another great letter. In case a rapid response to the BMJ needs editorial approvement, it has been approved. In any case, it's published here: https://www.bmj.com/content/366/bmj.l4898/rr
  3. MSEsperanza

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Eleven letters now.... http://www.virology.ws/2019/09/11/trial-by-error-experts-send-more-tough-letters-to-dr-godlee/ Again, thank you David and all letter writers.
  4. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Nina Steinkopf mentions the affiliations of Recovery Norway with the Lightning Process in her article: https://translate.google.com/translate?sl=no&tl=en&u=https%3A%2F%2Fmelivet.com%2F2019%2F09%2F08%2Fen-messias-i-norsk-helsevesen%2F I'm sure the affiliations have been discussed on the forum...
  5. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Henrik Vogt, founder of 'Recovery Norway' : "[...] the focus has beed one-sided on those who are still suffering, on the dark side. More should be written on those who make it into the light". https://henrikvogt.com/2016/08/31/cfsme-listen-to-those-who-got-well/
  6. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Professionals about 'Recovery Norway': Rona Moss-Morris, Professor of Psychology as Applied to Medicine, Head of Health Psychology, King’s College, London, UK: “We can learn a lot from these stories about recovery from CFS – look forward to more”...
  7. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    https://www.recoverynorge.org/2019/01/20/arild-berg-me-cfs/ From wikipedia: https://en.wikipedia.org/wiki/Arild_Berg Tried to save the page to the webarchive, don't know if it worked? http://web.archive.org/web/20190911070031/https://www.recoverynorge.org/2019/01/20/arild-berg-me-cfs/...
  8. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Organisational affiliation of the review: London Metropolitan University https://www.londonmet.ac.uk/ ETA: "Phil Parker is a post graduate researcher in the School of Psychology at the London Metropolitan University, London, UK" (Latest paper I found: Parker, Phil, Banbury, Samantha and...
  9. MSEsperanza

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    https://twitter.com/cem_oezdemir/status/1169570191900106752 Cem Özdemir is a prominent member of the German parliament. The football team VfB was relegated to the second division of the German league only this spring: https://en.wikipedia.org/wiki/VfB_Stuttgart The Tweet says: "#Point of...
  10. MSEsperanza

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    This could go on like the game "I packed my bag": I have signed a letter which was sent to you on 27 August about the pediatric study of the Lightning Process. Following the e-mails of Professor Ola Didrik Saugstad (Oslo, Norway), Professor Vincent Racaniello (New York, USA), Professor Elisa...
  11. MSEsperanza

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    As an aside, it seems remarkable to me that Morriss et al also used some objective measures to validate two of the constructed "four factors of fatigue", and if I understood correctly, they claim the objective measures correlated with the subjective assessments? Factor 1 (cognitive...
  12. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    How about doing a trial on the effectiveness and cost-effectiveness of trials on the effectiveness and cost-effectiveness of interventions in ME?
  13. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    @dave30th, could you take a look at this? Starting here: https://www.s4me.info/threads/investigating-the-effectiveness-and-cost-effectiveness-of-fitnet-nhs-compared-to-activity-management-to-treat-paediatric-cfs-me-2018-crawley-et-al.2592/page-3#post-198320
  14. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    It took me quite a while to find the location where all versions of the protocol are collected: https://www.journalslibrary.nihr.ac.uk/programmes/hta/14192109#/ Edit: A summary of all changes to the protocol can be found here, pp. 36-42 https://njl-admin.nihr.ac.uk/document/download/2029706...
  15. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    Stop criteria published protocol, 22 Feb 2018, Trials volume 19, Article number: 136 (2018), https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3
  16. MSEsperanza

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I assume also this? https://s4me.info/threads/the-norwegian-me-associations-report-on-severe-me.10140/
  17. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    I saw this only now. In addition to all already pointed to in the previous comments I found the part about "possible benefits and risks of participating" very strange. What are possible benefits and risks of participating? (And if FITNET-NHS is not effective?) Also the supposed risks seem...
  18. MSEsperanza

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Irony? https://twitter.com/CochraneUK/status/1168170398976004097 Guess who else retweeted this.
  19. MSEsperanza

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Anyone could help me understand this example? Are there machines for data collection that cannot be repaired or new ones would be too expensive, so that a broken machine would require utterly different methods of data collection or the collection of other data?
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