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From the participant information sheet linked in the opening post: I am skeptical as to whether this 'Neurosky MindWave' and the apps are actually able to measure all those things. Also, I find it strange to describe "how calm or clear-minded" someone is as 'Meditation'. Further quotes from...

Sounds promising.

Does anyone who was there feel up to letting the rest of us know how it went?

Thanks Michiel for another useful overview. Does the Cochrane review actually differentiate between GET and any kind of exercise? As far as I know GET isn't recommended or even offered in Germany, only any kind of exercise ("Bewegungstherapie", "Aktivierung") -- but I think the Cochrane...

In Tovey's last released e-mail from 29.05.2019 he isn't that firm anymore: But I don't know what to think about what he said about where he got this new ideas:

New thread on suggestions for a letter to the editor-in-chief: https://www.s4me.info/threads/letter-to-new-cochrane-editor-in-chief.11669/

Thank you @Andy. That's more than I hoped to read. Just missed the clarity to word my suggestion. I think it just needed one ore two additional words: "Is this something S4ME members would like to consider setting up together?" Don't feel up to starting a separate thread right now, but would...

Thank you all who are working on the Cochrane case. I'm not able to read much or word a substantial critique. However, I think the easiest and quickest measures Cochrane now could undertake as a first setp to take evidence-based medicine and patients seriously were to add the editor-in-chief's...

I'm glad you found that psychiatrist. I agree with others' suggestions that ten years after having had a stroke there probably aren't substantially effective treatment options now. To me it seems the new diagnosis might rather be valuable in acknowledging a potential or additional reason for...

Again, I stop by with a trivial point. I'm sure this has been pointed out already, but still this limitation of the review is not sufficiently addressed in the abstract, and not at all in the conclusion. To not specify the features of patients not meeting these selection criteria for the...

https://www.s4me.info/threads/jama-advances-in-understanding-the-pathophysiology-of-chronic-fatigue-syndrome-by-anthony-komaroff.10281/page-2#post-181985

Please add me, too, @Michiel Tack: MSEsperanza, ill with ME since 1998, officially diagnosed with "CFS" in 2005, S4ME forum member since 2017.

Thank you for explaining. I agree it's worth trying to avoid misunderstandings. I rather shouldn't post when I don't feel up to it, but just leave two more thoughts here today: I think there is no need to be afraid of the (reasonable/ high?) standards we apply to research or other scientific...

Hm. Do you think there are reasonable arguments to classify the PACE trial as a controlled trial? What arguments are there? Is the knowledge I acquired on S4ME (that it needs adequately controlled groups to classify a trial as an RCT) disputable? Or is it disputable whether the groups were...

In order to be able to read the correspondence, I needed to put the e-mail snipptes included in the documents in chronological order into one single document. In case anyone else finds this helpful, I leave here my excerpt of the entire correspondence from May 2019 (as requested and...

#MEAction are right that the review authors still claim they "included eight RCTs with data from 1518 participants." Yet the biggest trial, the PACE trial, wasn't a Randomised Controlled Trial, and even the PIs called it only a "Randomised Trial". Didn't ceck the other trials. Edited to add...

from the correspondence between Atle Fretheim (for the review authors) and David Tovey (Cochrane): https://www.s4me.info/threads/cochrane-review-exercise-therapy-for-chronic-fatigue-syndrome-2017-larun-et-al-recent-developments-2018-19.10030/page-4#post-179984

Could it be helpful to refer to the Declaration of Helsinki, last paragraph? Unproven Interventions in Clinical Practice 37. In the treatment of an individual patient, where proven interventions do not exist or other known interventions have been ineffective, the physician, after...

Thank you, @Kalliope I have no idea. Maybe someone requested access to the e-mails attachments and that's what was denied. (I didn't check which e-mails had attachments though). But I'm sure @Kalliope will have an answer soon. Another question @Kalliope: Do you know whether it's also...