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German documentary about living with ME/CFS on French-German public service TV channel, 10.07.2021, 22:40 (also available on the website during the day) Le syndrome de fatigue chronique - L’EM/SFC, une maladie trop peu (re)connue - Regarder le documentaire complet | ARTE "Des millions de...

Documentary about living with ME/CFS on French-German public service TV channel ARTE, 10.07.2021, 22:00 (also available on the website during the day) Die rätselhafte Krankheit - Leben mit ME/CFS - Die ganze Doku | ARTE...

There are many extremely weird things about this paper, but these two aspects, put together, to me are the most astonishing -- and a bit difficult to digest. I think it's a big success that the paper apparently was not accepted by any of the journals where Crawley usually gets her papers...

No doubt that Fatigue is an important journal for ME research that publishes many highly valuable papers. Also, I appreciate that the journal is a means of exchange and discussion for all kind of topics and people involved with research on ME in general as well as on fatigue in ME and other...

To be fair, pacing I think is behavior and it would be good to see it [edit] more rigorously studied as a means of coping. However, Fred Friedberg gives a workshop together with Leonard Jason on: "Behavioral Assessment and Treatment of ME/CFS and Fibromyalgia"...

Probably due to your browser settings that don't let your browser show embedded social media posts? Here's the link: https://www.facebook.com/whitneydafoe/photos/a.126919172179117/349983023206063/?type=3

Not sure how the editorial is related to the two studies announced here: https://reporter.nih.gov/search/MFkYFqJYG0-YuVKog5mE5Q/projects Some details could be relevant for discussions on research methodology and hint to caveats that apply for ME research in particular. Not able to explain now...

Done. Thank you MEMarge, and everyone else involved with this.

Just have submitted a suggestion. Was too brain fogged to asses if it made sense. A suggestion to differentiate and precisely specify diverse forms of fatigue, based on detailed symptoms monitoring (*) Fatigue is seen as one of the most characteristic symptoms of ME/CFS. While the focus on...

Trial By Error: Journal Corrects “Highlights” Section of Professor White’s GETSET Follow-Up Paper [2nd part about this thread's paper] https://www.virology.ws/2021/06/30/trial-by-error-journal-corrects-highlights-section-of-professor-whites-getset-follow-up-paper/ [...] "Besides the issue of...

Trial By Error: Journal Corrects “Highlights” Section of Professor White’s GETSET Follow-Up Paper https://www.virology.ws/2021/06/30/trial-by-error-journal-corrects-highlights-section-of-professor-whites-getset-follow-up-paper/

Thank you for your reply @PhysiosforME . And apologies for my unbalanced comment. I appreciate your work and the impact of it. My congratulations to your anniversary should have preceded my hint to my concerns about the details on which publisher will sell your book. I just was really shocked...

About the publisher: "Leading publisher in acupuncture, Chinese medicine, yoga & yoga therapy, complementary health and more." o_O Publisher's website: https://uk.singingdragon.com/

Edit: That seems somehow related to a "series looking at chronic pain and long Covid" by Linda Geddes "Sufferers of chronic pain have long been told it’s all in their head. We now know that’s wrong"...

There's another [edit] albeit rather halfhearted one: Bull, L. (2007). Sunflower therapy for children with specific learning difficulties (dyslexia): A randomised, controlled trial. Complementary Therapies in Clinical Practice, 13(1), 15–24. doi:10.1016/j.ctcp.2006.07.003...

Came across when I searched something else in another thread. Dorothy Bishop referred to the study in a reply to @dave30th on Virology Blog: "I agree that it is important to be cautious where outcome measures are based on subjective report, as apparent improvement may not be mirrored by...

Commenary / rebuttal paper: Mathews, M. O., Thomas, E., & Yeung, A. (2009). Rebuttal paper to “Sunflower Therapy for children with specific learning difficulties (dyslexia): A randomised, controlled trial.” Complementary Therapies in Clinical Practice, 15(1), 44–46...

(This is a reference to the discussion on bias due to a lack of blinding here.) Bull, L. (2007). Sunflower therapy for children with specific learning difficulties (dyslexia): A randomised, controlled trial. Complementary Therapies in Clinical Practice, 13(1), 15–24...

Three 'patient research partners' are co-authors. Another co-author is Eleanor Stein. Hm. (I don't understand how something "was shown to be improved" when it's acknowledged that the studies had "small sample sizes, heterogeneous diagnostic criteria, and a high risk of bias". Isn't there a...

Only had a look last year on his website and liked that part of it: https://www.sciencefictions.org/corrections