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Thanks Graham. That's included in @Brian Hughes ' Twitter thread: If anyone who is on Twitter could generate a PDF and post it here that would be helpful. (The thread unroll tool seems to offer a function to do this if you have a Twitter account) @Lucibee @rvallee @Dx Revision Watch

To refute desperate arguments like this one from Alastair Miller : BBC Radio 4 Today, 18.082021 (listen again online from 07.53); transript by @Lucibee posted here

Sten Helmfrid (Twitter) : "Patients with #MECFS are often accused of “anti-science” activism. The delay in the publication of the carefully prepared NICE guideline on #MECFS because of resistance from parts of the medical establishment with vested interests shows who the real anti-science...

A point repeatedly made by diverse people -- here by Proinsias Ó Martain (Twitter) : "Defenders of CBT and GET claim that healthcare workers know these work for some patients. But the PACE results indicate that if there is any real effect it would be too small to distinguish from natural...

https://twitter.com/b_m_hughes/status/1427966144279990279

https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought deserves its own thread. All points I think still essentially apply during the new guideline is paused.

Brian Hughes' Ten Points on the new (now delayed) NICE guideline are hugely useful, too: https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ Thread here. (even though maybe partially contradictory to what people agreed on in that other thread...

Tweets by Dandy@dandydoodlezart "The reason we have scientific procedures in place is to stop doctors offering treatments based on their own anecdotal opinions. If a doctor decided to ignore guidelines and offer patients “magic water” they’d be rightly struck off. "...

Useful arguments from the debate about the new NICE guidelines before the announcement of the delay but still applicable: Some links copied from other threads: Jonathan Edwards' quote in the Times (16.08.2021) Screenshots and transcript tweeted by @Adam pwme...

The idea of this thread is to collect useful *short* arguments to refute the claims most often used by BPSionists in reaction to criticism of GET and CBT as treatments for ME. Note: Before you post here, please read the discussion on the members only thread on non-evidenced and other...

Why does a regional support group have six medical advisers? It's all so ridiculous. Thanks again for your reply, @Dx Revision Watch. Much appreciated.

They were stakeholders, too, weren't they? Genuine question: How many members have they? How many members have the other ME charities/ patient organizations?

Something just reminded if of this.

Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times, August 18 2021 by Sean O' Neill As her 30th birthday approached, Jennie Jacques was on the up and on the verge of a breakthrough to big-screen stardom. The British actress had played the leading part of...

It's still not clear to me if Goddard speaks for the Royal College of Physicians or if this "We" just refers to those who issued the response from the College as a stakeholder? Also, how is their involvement as a stakeholder discussed within the college? Did it need to be agreed by their...

The problem is that "those" whom the professionals bodies represent in this case don't care for patients but for themselves.

see:

Or some public relations network included the quoted persons in their brief embargoed until late tonight? Edit: On reflection: Weren't there similar quotes from anonymous sources in some of the coverage before? Was that in the BMJ?

I guess this is why the quotes of a spokesperson spokeswoman and of "neurologists" had to remain anonymous? I think it's fair to say that it is to be expected based on the draft and on the fact who left the committee in a manner that people now try to use to attack the review process. So not...

Will you ask for a correction / clarification? Edited to add: Question now redundant. The printed version is different from the online version. The complete and correct quote from Jonathan Edwards is in the online article. https://twitter.com/ABrokenBattery/status/1427536240711249927 --...