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  1. oldtimer

    Beware creating a moral panic about antivaxxers Fiona Fox The Times 2019

    I found this. http://www.greenmedinfo.com/blog/plague-brought-you-best-intentions
  2. oldtimer

    Was Stephen Hawking’s Illness Psychosomatic? (No)

    Very interesting article. A few years ago my mother died of MND. She was just shy of 90. She suffered from it for at least 8 years, probably more, and had a very sharp mind right until the end. She had no trouble with breathing when she died (prematurely from a deliberately prescribed overdose...
  3. oldtimer

    Menopause and ME - what's your experience?

    I felt highly anxious and started getting night sweats around age 50 and was eventually prescribed HRT. Out of curiosity, I've tried to wean myself off it a number of times over the last 15 years, but the anxiety and hot flushes at night are intolerable. My GP and I both believe that taking...
  4. oldtimer

    Peace Arch News: White Rock woman shares her struggle with "horrendous" fatigue

    I love White Rock - well the marvellous view from the Hancock Wildlife Foundation's bald eagle live cam on the water's edge at least:). I've been watching the eagles every year since 2010.
  5. oldtimer

    Peace Arch News: White Rock woman shares her struggle with "horrendous" fatigue

    It's encouraging to see good articles popping up all over the place. I suppose defining it as a neuro-immune disease is as good as anything until we find out where the emphasis actually lies.
  6. oldtimer

    Recliner chairs

    I have a Norwegian Stressless recliner which is a lovely thing but I couldn't sleep on it don't think. It doesn't recline flat and when it is fully reclined the headrest comes forward so you can still watch tv etc. The lumbar support is very good though because it flattens in the reclining...
  7. oldtimer

    Podcast: "It's Not All About ME"

    Thank you John Peters for a great interview. "I just want to clear my head ... I just want my head to clear ..." resonates with me so much. Cognitive limitations are what trouble and frustrate and limit me the most by far. I don't care about the rest either. As luck would have it in...
  8. oldtimer

    The NHS says these are the 20 most painful health conditions you can suffer from - Cambridge News Mar 2019

    I agree it should be up there. Every few years I have what I assume is a gallbladder attack which may be stones, I don't know. It's a predictable 6 hours in the middle of the night of extreme, doubling-over pain. Then it disappears suddenly as if it never was. Unlike childbirth, the memory hangs...
  9. oldtimer

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    Thanks Simone and everyone for their efforts!
  10. oldtimer

    Posture support - does it work or make things worse in the long run?

    With bent posture the muscles across the front of your chest become shortened leading to a vicious circle. Years ago I fixed my slightly bad posture with a couple of undemanding stengthening and stretching execises on the advice of a physio. The petoral stretching exercise involves standing in...
  11. oldtimer

    Is there a connection between ME/CFS and Sjogren's Syndrome? Discussion and a poll about testing

    I ticked the third box but I still don't know whether I have SS or not and have decided that in my case it's not important to know. Recently I was referred to a rheumatologist who did all the usual tests. They were negative which, as already mentioned, doesn't mean you don't have SS. My eyes...
  12. oldtimer

    ME/CFS International Research Symposium, March 2019, Australia

    I just wrote a whole spluttering screed about this rubbish article but what's the point. :banghead: says it all! @rvallee I hope we get to find out why Robert Naviaux will be attending this conference. Strange.
  13. oldtimer

    ME/CFS International Research Symposium, March 2019, Australia

    https://mindd.org/ It's big business, isn't it! https://mindd.org/treatments/
  14. oldtimer

    Book Review: CBT: The Cognitive Behavioural Tsunami

    @shak8 I'm probably in a similar situation to you regarding pain but mindfulness and CBT are not things I would bother with either. In the experiment not everyone found it useful and those who did had varying degrees of relief. You get less of an impression watching the whole thing that it is...
  15. oldtimer

    Book Review: CBT: The Cognitive Behavioural Tsunami

    You might be interested in this. It's a science program on (Aus) ABC tv. This episode follows a university experiment and is from a couple of days ago. One of the participants who is followed is a heavy user of painkillers, including morphine. She was very skeptical at first but found...
  16. oldtimer

    Book Review: CBT: The Cognitive Behavioural Tsunami

    I've watched it several times and think it's brilliant. I've also watched some of the other videos from the same Limbus conference called Challenging the Cognitive Behavioural Therapies. The one by Patrick Pietroni apparently focusses on the NHS. I haven't watched that one...
  17. oldtimer

    ICD-11 Fibromyalgia - MG30.01 Chronic widespread pain

    After reading this thread I have finally sorted out in my mind my own Me and/or FM riddle. A very long time ago I was told I had both and have been in a state of confusion ever since, trying to separate the two and getting in knots. I have a lot of assorted pain that is easily explainable and...
  18. oldtimer

    Use of antidepressants for/with ME/CFS?

    During my "try anything and everything"phase in the 1990s, I tried several tricyclics and SSRIs for sleep and pain. The tricyclics helped with sleep but left me permanently hung over and the SSRIs didn't have any effect on anything. One bright spark told me I suffered from atypical depression -...
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