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Yeah, having found that in my Genova test results, I'm no longer worried. Will probably ask doctor anyway, but will defer to her opinion of whether or not investigation is needed. It most likely is a reaction to some minor dietary change, but since its current impact on my quality of life is...

But! Looking back at my Genova stool test results, my fecal calprotectin (a marker of inflammation) is healthily low. "Although a normal fecal calprotectin does have a high negative predictive value for colorectal cancer, no single biomarker on the GI Effects panel is intended to exclusively...

Hmm, I've found the NICE guideline, and I wouldn't meet the requirements for referral, unless the doctor felt a mass upon examining my abdomen. But that isn't particularly comforting, since the bloke that I know who died from bowel cancer, didn't meet the NICE requirements for referral either...

Hmm, just looked on the NHS website and it says that the faecal occult blood test doesn't guarantee you don't have bowel cancer and you should still see your GP if you have any symptoms of it.

You mean they test your poo first, before referring you for a camera inside your bowel? Is that a "faecal occult blood test"? Because I had that done recently as it was included in a stool test that I did through Genova in the hope of seeing if there was anything in my gut impacting my fatigue...

How bad do loose stools need to be for it to be a possible sign of bowel cancer? (Edit: for the women reading this, please also be aware that a change in bowel habit can be a possible sign of ovarian cancer.) I would class my loose stools as 'mild annoyance', I don't need medical help for...

Did anybody watch/listen to this? What did he say?

In terms of cognitive fatigue, and my easily getting overwhelmed/exhausted by sensory information, I tell my family that my brain is like our old Windows computer which worked slowly and would freeze and stop functioning if you tried to use it like a 'healthy' computer (if you tried to make it...

Wtf

Me too.

Yes, maybe we should create a new word and define it. I vote for "frobbadacious". PS: oh dear, now I have the "supercalifragilisticexpialidocious" song in my head!

Sounds good. I'm sorry if my post came across as aggressive? I just meant it as throwing ideas out there. Am not good at tone in writing - I'm autistic so just speak directly and sometimes this comes across as rude? Sorry if so. Too much brain fog to think how to do differently. Only trying to...

Also I disagree wrt the 50% thing. Plenty of people with "mild" ME have a lower reduction in functioning than that. Still a reduction which affects them significantly, for sure. But we can't wait until they drop to 50% to diagnose them with ME.

I'm not trying to suggest that people with "mild" ME aren't sick. I had "mild" ME at one point myself. "Mild" isn't really an appropriate term for it, but it's the one that's generally used. We do need to be able to say that some are more severely affected than others - and to recognise that the...

Except that, whatever level of battery charge your phone has, it does all things normally until it runs out of battery. Well, my phone exhibits certain symptoms when it gets down to 5%, but apart from that it can perform all functions normally. That might be how a person with "mild" ME feels...

@Andy I have already seen on Facebook somebody saying that they won't take part if it doesn't use ICC criteria. I'm not sure what criteria it is using? Please be aware of the small number of ME patients that are very active online and have extreme views about ME. I wouldn't be surprised if...

If you work with the SMC to publicise this then many ME Patients will get suspicious and refuse to participate. Any perceived connection with psychological research, at all, will make people think it's a conspiracy to say that it's psychological.

@Jonathan Edwards https://www.bbc.com/future/article/20180523-how-gender-bias-affects-your-healthcare https://psmag.com/social-justice/is-medicines-gender-bias-killing-young-women https://www.salon.com/2018/12/14/new-research-reveals-how-sexism-in-healthcare-can-literally-kill-women/...

Yeah like martine mccutcheon. Not helpful at all.

I think the biggest ones from that list are 2 5 6 7 8 9 10 11.